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On a Formal and User-friendly Linguistic Approach to Access Control of Electronic Health Data [PDF]

open access: yes, 2013
The importance of the exchange of Electronic Health Records (EHRs) between hospitals has been recognized by governments and institutions. Due to the sensitivity of data exchanged, only mature standards and implementations can be chosen to operate.
Margheri, Andrea   +3 more
core   +1 more source

Evaluating the Utility of Paired Tumor and Germline Targeted DNA Sequencing for Pediatric Oncology Patients: A Single Institution Report

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Objective To evaluate the diagnostic yield and utility of universal paired tumor–normal multigene panel sequencing in newly diagnosed pediatric solid and central nervous system (CNS) tumor patients and to compare the detection of germline pathogenic/likely pathogenic variants (PV/LPVs) against established clinical referral criteria for cancer ...
Natalie Waligorski   +9 more
wiley   +1 more source

Project HealthDesign: Rethinking the Power and Potential of Personal Health Records: Round One Final Report [PDF]

open access: yes, 2009
Describes an initiative to develop prototypes for next-generation personal health record applications on a common platform focused on self-management for better health.

core  

Estimated Risk of HIV Acquisition and Practice for Preventing Occupational Exposure: A Study of Healthcare Workers at Tumbi and Dodoma Hospitals, Tanzania. [PDF]

open access: yes, 2013
Health care workers (HCWs) are at risk of acquiring human immuno-deficiency virus (HIV) and other infections via exposure to infectious patients' blood and body fluids.
A Kilale   +25 more
core   +1 more source

Development and Pilot-Test of Blockchain-Based MyHealthData Platform

open access: yesApplied Sciences, 2021
The concept of MyData emerged as a paradigm shift in personal data management and the process of seeking to transform the current organization-centered system.
Ye-Seul Bae   +7 more
doaj   +1 more source

Financial Burden Associated With Hospitalisation Among Families of Childhood Brain Tumours in Australia

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Background Families of children with cancer experience significant financial strain, even with universal healthcare. Indirect costs, such as productivity losses and non‐medical expenses, are rarely included in economic evaluations, and little is known about how effectively financial aid programmes alleviate this burden. Childhood brain tumours
Megumi Lim   +8 more
wiley   +1 more source

Comparison of birth weight between school health records and medical birth records in Denmark:determinants of discrepancies [PDF]

open access: yes, 2015
OBJECTIVE: To compare reported birth weight (BW) information in school health records with BW from medical birth records, and to investigate if maternal and offspring characteristics were associated with any discrepancies.
Baker, Jennifer L   +4 more
core   +2 more sources

Era of Personal Health Records in Korea [PDF]

open access: yesHealthcare Informatics Research, 2022
Jae-Ho Lee
doaj   +1 more source

A Blockchain-Applied Personal Health Record Application: Development and User Experience

open access: yesApplied Sciences, 2022
This study aims to introduce a novel blockchain-applied personal health records (PHR) application and validate its user experience. The system transmits the part corresponding to the patient’s personal information off-chain and prevents data forgery and ...
Ji Woong Kim   +3 more
doaj   +1 more source

The Role of Invasive Procedures in the Treatment of Complicated Gastrointestinal Graft‐Versus‐Host Disease in Pediatric Patients

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Background Gastrointestinal graft‐versus‐host disease (GI GVHD) following hematopoietic stem cell transplant is typically managed with medical therapy, but surgery and angioembolization may be warranted in selected cases with life‐threatening complications.
Gaia Brunetti   +12 more
wiley   +1 more source

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