Results 31 to 40 of about 65,601,074 (263)

Abstracts From the 2024 Health Care Systems Research Network (HCSRN) Annual Conference, Milwaukee, Wisconsin

Journal of Patient-Centered Research and Reviews
The Health Care Systems Research Network (HCSRN) comprises 20 learning health systems with integrated care delivery and embedded research units. The network’s annual conference serves as a forum for research teams from member institutions to disseminate ...
Health Care Systems Research Network
doaj   +1 more source

Evidence‐Informed Multidisciplinary Consensus Guidance for the Psychosocial Care of Adolescents With High‐Risk Cancer: Recommendations From the Italian Association of Pediatric Hematology and Oncology

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Adolescents with high‐risk cancer face complex developmental, psychosocial, and ethical challenges that extend beyond disease‐directed treatment. Although international recommendations exist for communication, psychosocial care, pediatric palliative care, survivorship, and shared decision‐making, these have largely evolved within ...
Johanna M. C. Blom, Dorella Scarponi, Giulia Zucchetti, Teresa Perillo, Maria Montanaro, Elisa Marconi, Chiara Rutigliano, Paolo Colavero, Paola Quarello, Marina Bertolotti, Monica Cellini, Carlo Clerici, Maurizio Mascarin, Francesca Bomben, Andrea Ferrari, the expert workgroup   +15 more
wiley   +1 more source

Research ethics in Ireland: how do we strengthen and harmonise the system? Irish Health Research Forum recommendations and event report [PDF]

, 2023
This report presents the proceedings of the Irish Health Research Forum on May 11th 2023, on strengthening and harmonising the Irish research ethics system, also setting out recommendations on how to achieve this.Roche Products (Ireland ...
Health Research Charities Ireland
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Bridging the Loneliness Gap: Depression, Connectivity, and Isolation in Pediatric Oncology Patients and Their Peers

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Loneliness is associated with adverse physical and mental health outcomes and remains understudied in children and adolescents undergoing cancer therapy. Pediatric oncology patients may be at increased risk due to medical isolation and disruption of social networks.
Charlotte N. Stahlfeld, Scott H. Maurer, Michelle D. Watkinson, John Nury, Elise Barberis, Molly C. Mack   +5 more
wiley   +1 more source

Poor self-reported health and its association with biomarkers among Canadian Inuit [PDF]

International Journal of Circumpolar Health, 2012
Objectives. To determine the extent to which demographic characteristics, clinical measurements and biomarkers were associated with poor self-reported health (SRH) among Inuit adults in the Canadian Arctic. Study design.
Helga Saudny, Zhirong Cao, Grace M. Egeland   +2 more
doaj   +1 more source

Early Body Mass Index z‐Score Change and Resolution of Severe Malnutrition in Children With Sickle Cell Anemia in a Low‐Income Setting: A Prospective Single‐Arm Extension Study

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Children with sickle cell anemia (SCA) in low‐income settings are at risk of severe malnutrition, but optimal nutritional management has not been established. We evaluated an intensified ready‐to‐use therapeutic food (RUTF) regimen in children with persistent severe malnutrition after initial treatment and assessed whether early ...
Safiya Gambo, Shehu Umar Abdullahi, Hassan Adam Murtala, Halima Kabir, Khadija A. Shamsu, Sari A. Acra, Virginia A. Stallings, Mark Rodeghier, Michael R. DeBaun, Lauren J. Klein   +9 more
wiley   +1 more source

Reflections, impact and recommendations of a co‐produced qualitative study with young people who have experience of mental health difficulties

Health Expectations, 2021
Background There is limited evidence of genuine equal partnership where power is shared with young people with mental health difficulties throughout all research stages, particularly in data collection and analysis.
Lindsay H. Dewa, Anna Lawrence‐Jones, Caroline Crandell, Jack Jaques, Katy Pickles, Mary Lavelle, Sofia Pappa, Paul Aylin   +7 more
doaj   +1 more source

Central Nervous System Tumors Among Infants in Canada: A Report From CYP‐C

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Central nervous system (CNS) tumors in infants are rare, pose unique clinical challenges, and lack large‐scale evidence‐based data to guide management. This study seeks to describe CNS tumors in Canadian infants and to compare their outcomes with those of older children.
Samuel Sassine, Hallie Coltin, Sylvia Cheng, Lucie Lafay‐Cousin, Vanan Issai Magimairajan, Craig Erker, Stéphanie Vairy, Lynette Bowes, Adam Fleming, Donna Johnston, Sarah McKillop, Roona Sinha, Julie Bennett, Christina Coleman, Laura Wheaton, Shayna Zelcer, Samuele Renzi, Thai Hoa Tran   +17 more
wiley   +1 more source

Research governance: a guide for health research charities

, 2021
Health research charities are important leaders in research which addresses the unmet health needs of patients and the public. Much of the funding that goes into research by charities has been donated by their members or supporters who wish to make a ...
Health Research Charities Ireland
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How to be responsive and resilient in the face of crises. Irish Health Research Forum recommendations and event report [PDF]

, 2022
This report presents the proceedings of the Irish Health Research Forum held on November 17th, 2021. The event provided an opportunity for reflection on the challenges that the health research community faced in 2020 and 2021: namely Covid and the cyber-
Health Research Charities Ireland
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