Developing and applying the 'Participatory Research to Action Framework' for meaningful engagement of experts-by-experience in applied health services research: a case study approach. [PDF]
L Giosa J +3 more
europepmc +1 more source
Supporting public involvement in research design and grant development: a case study of a public involvement award scheme managed by a National Institute for Health Research (NIHR) Research Design Service (RDS) [PDF]
Jonathan Boote +5 more
openalex +1 more source
Diffusion Tractography Biomarker for Epilepsy Severity in Children With Drug‐Resistant Epilepsy
ABSTRACT Objective To develop a novel deep‐learning model of clinical DWI tractography that can accurately predict the general assessment of epilepsy severity (GASE) in pediatric drug‐resistant epilepsy (DRE) and test if it can screen diverse neurocognitive impairments identified through neuropsychological assessments.
Jeong‐Won Jeong +7 more
wiley +1 more source
Development and piloting of a modular evaluation tool for patient and public involvement in health services research: protocol of a mixed-methods study. [PDF]
Seeralan T +5 more
europepmc +1 more source
Constructing questionnaires based on the theory of planned behaviour: A manual for health services researchers [PDF]
Jill Francis +8 more
openalex
ABSTRACT Background Neurodegeneration with brain iron accumulation (NBIA) comprises a genetically and clinically heterogeneous group of rare neurological disorders characterized particularly by iron accumulation in the basal ganglia. To date, 15 genes have been associated with NBIA.
Seda Susgun +95 more
wiley +1 more source
Surgical Health Services Research as a Path to Health System Leadership. [PDF]
Broman KK +3 more
europepmc +1 more source
Implementation of the Chief Nursing Officer for England's National Strategy for Nursing Research in Mental Health Service Provider Organisations: A Mixed‐Methods Study [PDF]
J. Green +4 more
openalex +1 more source
Amyotrophic Lateral Sclerosis Prevalence Projection in 2040: A Less Rare Disease
ABSTRACT Objective To project ALS prevalence across multiple countries through 2040, accounting for both population aging and increased survival. Methods Data from the Piemonte and Valle d'Aosta ALS register (PARALS) was used to estimate the trends in incidence and prevalence from 2005 to 2019. Survival trends over this period were also assessed.
Rosario Vasta +18 more
wiley +1 more source

