Results 91 to 100 of about 2,832,836 (324)

Onasemnogene Abeparvovec in Patients With SMA: Interim Results of the RESTORE Registry in Japan

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objective There are limited real‐world data regarding the safety and effectiveness of onasemnogene abeparvovec (OA; Zolgensma) infusion, a one‐time gene replacement therapy, for Japanese patients with spinal muscular atrophy (SMA). We aimed to improve understanding of the real‐world outcomes for OA in Japan.
Kayoko Saito, Kamal Benguerba, Ken Tsuchida, Kazushige Yazawa, Isao Tsumiyama, Hiromitsu Kayama, Sandra P. Reyna, Farid Khan, Richard S. Finkel   +8 more
wiley   +1 more source

Managing compassion fatigue: a self-care guidebook for helping professionals

, 2020
Compassion fatigue, a phenomenon observed among helping professionals, is the combination of burnout and secondary traumatic stress (Adams, Figley, & Boscarino, 2008).
Crawford, Katie
core  

Addressing Economic Insecurities Can Improve Patient‐Reported Outcomes in Lupus

Arthritis Care &Research, EarlyView.
Objective Economic insecurities, such as food, housing, transportation, and financial challenges, are modifiable risk factors and influence patient‐reported outcomes (PROs) in systemic lupus erythematosus (SLE). We examined the following: (1) associations between economic insecurities and PROs, and (2) the impact of screening and addressing economic ...
Jay Patel, Tripti Singh, Meredith Ingersoll, Shelby Gomez, Amanda Weber, Sarah E. Panzer, Sancia Ferguson, Christie M. Bartels, Shivani Garg   +8 more
wiley   +1 more source

Formal and Informal Social Care in People With Rheumatic and Musculoskeletal Diseases: A Cross‐Sectional Multicenter Survey

Arthritis Care &Research, EarlyView.
Objective Rheumatic and musculoskeletal diseases (RMDs) are leading causes of physical disability, necessitating support with activities of daily living. This study describes social care received by patients with RMDs in two disparate regions of England: Salford (urban) and Norfolk (rural).
Mehreen Somro, Karen Durrant, William G. Dixon, John McBeth, Alex MacGregor, Max Yates, Jenny H. Humphreys   +6 more
wiley   +1 more source

Helping patients help themselves: A systematic review of self-management support strategies in primary health care practice

PLoS ONE, 2019
Background Primary health professionals are well positioned to support the delivery of patient self-management in an evidence-based, structured capacity.
Sarah Dineen-Griffin, V. García-Cárdenas, Kylie A. Williams, S. Benrimoj   +3 more
semanticscholar   +1 more source

Crying Among Helping Professionals: A Cross-Cultural Study of Emotional Expression

Jurnal Psikologi Teori dan Terapan
Background: Crying is a universal but understudied emotional expression serving intrapersonal and interpersonal functions such as stress regulation, empathy, and social bonding.
Ágota Pap
doaj   +1 more source

Risk of Retinopathy Associated with Long‐Term Use of Hydroxychloroquine in Patients with Rheumatic Diseases: A Systematic Review and Meta‐Analysis

Arthritis Care &Research, EarlyView.
Objective We aimed to estimate the prevalence and cumulative incidence of hydroxychloroquine retinopathy (HCQ‐R) and its risk factors among patients receiving long‐term HCQ with rheumatic diseases through a systematic review and meta‐analysis of observational studies that used spectral‐domain optical coherence tomography (SD‐OCT) for screening ...
Narsis Daftarian, Chloe Yue, Steve D Levasseur, Hui Xie, J. Antonio Avina‐Zubieta   +4 more
wiley   +1 more source

Psychometric analysis of the GAD-7 questionnaire in Slovak helping professionals

Journal of Affective Disorders Reports
The GAD-7 is a widely used screening tool for the measurement and diagnosis of symptoms of generalized anxiety disorder. It has been translated and validated across more than 20 cultural contexts.
Katarina Krizova, Júlia Halamová, Bronislava Strnádelová, Martina Baránková   +3 more
doaj   +1 more source

Reply to “Do We Always Practice What We Preach? Real Vampires’ Fears of Coming Out of the Coffin to Social Workers and Helping Professionals.”

Critical Social Work, 2019
This reply analyzes criticism of the article “Do We Always Practice What We Preach?  Real Vampires’ Fears of Coming Out of the Coffin to Social Workers and Helping Professionals” published in Critical Social Work (2015), 16(1) by DJ Williams and Emily E.
Joseph Laycock
doaj   +1 more source

Integrating Patient‐Reported Quality Measures in Systemic Lupus Erythematosus: Development of the American College of Rheumatology Implementation Guide

Arthritis Care &Research, EarlyView.
Objective To support high‐quality, patient‐centered care for systemic lupus erythematosus (SLE), the American College of Rheumatology (ACR) developed evidence‐based measures incorporating clinical and patient‐reported outcome measures (PROMs). Using the Consolidated Framework for Implementation Research (CFIR), we conducted semistructured interviews ...
Catherine Nasrallah, Cherish Wilson, Christine Hariz, Christie M. Bartels, Shanthini Kasturi, Wambui Machua, Amy Bennett, Kate Chiseri, Allison Plitman, Starla Hairston Blanks, April Jorge, Patti Katz, Jinoos Yazdany, Shivani Garg   +13 more
wiley   +1 more source