Effectiveness of progressive moderate-vigorous intensity elastic resistance training on quality of life and perceived functional abilities in people with hemophilia: Secondary analysis of a randomized controlled trial. [PDF]
Abstract Introduction and Aim Strength exercise training is advised for people with hemophilia (PWH); however, few studies have been published and have methodological limitations. The purpose of this study was to evaluate the effectiveness of progressive elastic resistance training on quality of life and perceived functional abilities in PWH.
Cruz-Montecinos C +9 more
europepmc +2 more sources
Prophylaxis and hemophilia care in LATAM: Baring it all-Highlights from the CLAHT 2021 symposium. [PDF]
Abstract A large group of countries constitute Latin American (LATAM) countries, where hemophilia care is as varied as the landscape of this region. To better understand the care provided to persons with bleeding disorders, especially hemophilia, a symposium was organized as part of the CLAHT Congress 2021 in Colombia to highlight the issues of ...
DiMinno GG +6 more
europepmc +2 more sources
Introducción: La hemofilia adquirida es un trastorno de la hemostasia que se produce por la presencia de autoanticuerpos inhibidores dirigidos contra el factor VIII de la coagulación. Clínicamente se manifiesta por sangrados espontáneos principalmente en piel y tejidos blandos, y a diferencia de la hemofilia hereditaria, la presencia de hemartrosis es ...
Milanesio M +4 more
europepmc +2 more sources
Identifying Professional Responsibilities and Designing the Optimal Curriculum for Haemophilia Nurses in Spain: A Round Table Discussion. [PDF]
ABSTRACT Introduction There is a lack of consensus on professional competencies or educational requirements needed for registered nurses working with haemophilia patients (namely, haemophilia nurses) in thrombosis and haemostasis units in Spain. Their role is not officially recognised in many healthcare systems (HCS), including Spain.
García-Barcenilla S +12 more
europepmc +2 more sources
Safety and Efficacy of Damoctocog Alfa Pegol in Previously Treated Children Aged 7 to < 12 Years With Severe Haemophilia A in the Phase 3, Open Label Alfa-PROTECT Main Study. [PDF]
ABSTRACT Background In the earlier PROTECT VIII Kids study (NCT01775618), damoctocog alfa pegol was efficacious for prevention and treatment of bleeds in children aged < 12 years with severe haemophilia A. Objective Assess the safety of damoctocog alfa pegol, including hypersensitivity and loss of efficacy (LoE) due to an immune response to ...
Ozelo MC +13 more
europepmc +2 more sources
Are we Measuring Knee Proprioception Correctly? A Case-Control Study of Joint Reposition Sense and Reflex Latencies for Measuring Proprioception in Knee Hemophilic Arthropathy. [PDF]
ABSTRACT Background and Aims Knee proprioception deficits have been found in several types of knee injuries using different measurement techniques. In some cases, such as hemophilic arthropathy, such deficits have been largely inferred from the results of gait and postural stability tests.
Alberola Zorrilla P +4 more
europepmc +2 more sources
Surgery in a Patient with Haemophilia A and Lymphoma [PDF]
An increased incidence of haematologic malignancies and other cancer types among patients with haemophilia compared with matched controls has been reported in several longitudinal studies.
M. S. Cruz +5 more
doaj +2 more sources
Physical Activity Awareness and Understanding of Treatment Protection Among People With Haemophilia and Their Caregivers in Central Europe. [PDF]
ABSTRACT Background Physical activity is now considered generally beneficial for persons with haemophilia (PWH). However, the specific type and extent of activity and its impact on quality of life (QoL) and bleed protection during exercise is under‐researched.
Batorova A +9 more
europepmc +2 more sources
Exercise Programmes for People With Haemophilia: A Scoping Review. [PDF]
ABSTRACT Background Advances in haemophilia treatment have enabled safe exercise practice as recommended by disease management guidelines, yet there is no gold‐standard protocol for optimal dose. Emerging therapies could influence exercise recommendations, highlighting the need for evidence‐based guidelines tailored to people with haemophilia to ensure
Veríssimo M +7 more
europepmc +2 more sources
Nuevos paradigmas en la Hemofilia
La hemofilia es una diátesis hemorrágica producida por la deficiencia hereditaria de un factor (proteína) de la coagulación sanguínea que afecta principalmente a los varones.
Gloria Ramos-Ramos +1 more
doaj +3 more sources

