Development of an eHealth Intervention in Pediatric Home Infusion Therapy: Interview Study of Needs and Preferences of Parents and Health Care Professionals [PDF]
BackgroundWith the provision of home infusion therapy in children with acute or long-term illness on the rise, eHealth technologies have the potential to bridge the transition between hospital and home.
Helena Hansson +4 more
doaj +2 more sources
Transforming long-term post-acute care for the aging population through home infusion therapy in China: assurance for quality and safety of care delivery (Part 2) [PDF]
BackgroundChina's healthcare system may benefit from the integration of home infusion therapy (HIT) combined with home health services (HHS) to address the urgent need for a sustainable long-term, post-acute care model for the aging population and those ...
Wei Zuo +23 more
doaj +2 more sources
Safety of home administration of cipaglucosidase alfa plus miglustat in late-onset Pompe disease: results from multiple clinical trials [PDF]
Background: Late-onset Pompe disease (LOPD) is caused by a deficiency of the acid α-glucosidase enzyme. In LOPD treatment, enzyme replacement therapy is delivered via intravenous infusion, typically in clinical settings. Cipaglucosidase alfa is delivered
Henning Andersen +11 more
doaj +2 more sources
Transforming long-term post-acute care for the aging population through home infusion therapy in China: an assessment of need and demand (Part 1) [PDF]
BackgroundChina’s healthcare system is confronting a rising burden of antimicrobial resistance, chronic complex diseases, and an aging population requiring long-term, post-acute care.
Wei Zuo +24 more
doaj +2 more sources
Managing Home Infusion Therapy [PDF]
This article is part of a series, Supporting Family Caregivers: No Longer Home Alone, published in collaboration with the AARP Public Policy Institute. Results of focus groups, conducted as part of the AARP Public Policy Institute's No Longer Home Alone video project, supported evidence that family caregivers aren't given the information they need to ...
Bronwyn E, Fields +2 more
openaire +2 more sources
Objectives: Access to patient information may affect how home-infusion surveillance staff identify central-line–associated bloodstream infections (CLABSIs). We characterized information hazards in home-infusion CLABSI surveillance and identified possible
Susan M. Hannum +9 more
doaj +1 more source
Background: Congenital nephrotic syndrome of the Finnish type (CNF) is a rare, severe glomerular disease caused by mutations in the NPHS1 gene, which codes for nephrin. It is characterised by massive proteinuria and severe edoema.
Eugènia Serramontmany +6 more
doaj +1 more source
This nationwide study assessed how outpatient parenteral antimicrobial therapy (OPAT) is organised by Dutch acute care hospitals, the barriers experienced, and how an OPAT program affects the way hospitals organised OPAT care. We systematically developed
Hester H. Stoorvogel +6 more
doaj +1 more source
Home-based enzyme replacement therapy in children and adults with Pompe disease; a prospective study
Background Pompe disease is a lysosomal storage disease treated with life-long enzyme replacement therapy (ERT). Home-based ERT has been provided in the Netherlands since 2008 because it diminishes the burden of treatment, increases patient flexibility ...
Imke A. M. Ditters +5 more
doaj +1 more source
Time at home is a critically important outcome to adults with acute myeloid leukemia (AML) when selecting treatment; however, no study to date has adequately described the amount of time older adults spend at home following initiation of chemotherapy ...
Christopher E. Jensen +7 more
doaj +1 more source

