Results 81 to 90 of about 19,346 (234)

Prognostic Factors in Patients With Submacular Haemorrhage Complicating Age‐Related Macular Degeneration: A Post Hoc Analysis of the STAR Study

Clinical &Experimental Ophthalmology, EarlyView.
ABSTRACT Background To investigate prognostic factors of recent submacular haemorrhage (SMH) complicating neovascular age‐related macular degeneration (nAMD) treated with surgery or pneumatic displacement combined with intravitreal injection of anti‐vascular endothelial growth factor.
Pierre‐Henry Gabrielle, Petra Eid, Ludwig Serge Aho, Laurent Kodjikian, Eric Souied, Joel Uzzan, Jean Baptiste Conart, Marie‐Noëlle Delyfer, Catherine Creuzot‐Garcher   +8 more
wiley   +1 more source

Prevalence of spina bifida across the lifespan in the USA

Developmental Medicine &Child Neurology, EarlyView.
Abstract Aim To estimate the prevalence of spina bifida across the lifespan, the number of people with spina bifida by state, and variations in spina bifida prevalence by insurance type, state, and selected demographics. Method This was an observational study that used administrative insurance data.
Julie Bershadsky, Catharine Riley, Sandra L. Pettingell, Sheryl A. Larson, Jennifer Hall‐Lande, Libby Hallas, Tiebin Liu, Jennita Reefhuis   +7 more
wiley   +1 more source

Contrasting Approaches in the Implementation of GRADE Methodology in Guidelines for Haemophilia and Von Willebrand Disease

Haemophilia, EarlyView.
ABSTRACT Introduction The 2024 ISTH clinical practice guideline (CPG) for treatment of congenital haemophilia, the NBDF‐McMaster Guideline on Care Models for Haemophilia Management, and ASH ISTH NBDF WFH guidelines on the diagnosis and management of VWD all utilised GRADE methodology.
Mark W. Skinner, Manuela Albisetti, Jesús Ardila, Jan Astermark, Jan Blatny, Manuel Carcao, Pratima Chowdary, Nathan T. Connell, Miguel Crato, Yesim Dargaud, Roseline d'Oiron, Amy L. Dunn, Miguel A. Escobar, Carmen Escuriola‐Ettingshausen, Emna Gouider, Annie Harroche, Cedric Hermans, Victor Jimenez‐Yuste, Radoslaw Kaczmarek, Gili Kenet, Liane Khoo, Robert Klamroth, Florian Langer, David Lillicrap, Johnny Mahlangu, Christoph Male, Tadashi Matsushita, Sandrine Meunier, Wolfgang Miesbach, Beatrice Nolan, Johannes Oldenburg, Brian O'Mahony, Margareth Ozelo, Glenn F. Pierce, Gloria Ramos, Michael Recht, Olivia Romero‐Lux, Dawn Rotellini, Rita C. Santoro, Tammuella C. Singleton, Alok Srivastava, Sophie Susen, Kate Talks, Huyen Tran, Leonard A. Valentino, Jerzy Windyga, Renchi Yang, Maria Elisa Mancuso, also on behalf of AICE, AHAD‐AP, AHCDC, ATHN, CLAHT, EHC, French CRH & MHEMO, HTCCNC, NBDF, PEDNET, UKHCDO, WFH   +59 more
wiley   +1 more source

The complex intervention day hospice — a quality-assured study on the implementation, realization, and benefits with model character for Germany (IMPULS) using the example of “Day hospice Adiuvantes”

BMC Palliative Care
Background Currently, a conclusive experience on the uniform implementation and benefits of day hospice structures and interventions is lacking in Germany.
Ulrich Kaiser, Ursula Vehling-Kaiser, Ana Hoffmann, Moritz Fiedler, Alexandra Hofbauer, Michael Rechenmacher, Anne Benning, Michael Koller, Florian Kaiser   +8 more
doaj   +1 more source

An Australian standard of care for Niemann–Pick disease type C

Internal Medicine Journal, EarlyView.
Abstract Background Niemann–Pick disease type C (NP‐C) is the fifth most prevalent lysosomal disorder in Australia. Diagnostic delay is common, impacted by disease heterogeneity, limited awareness within clinical gateway services and exclusion from state‐based newborn screening programmes.
Michel Tchan, Nicholas Smith, Heidi Peters, Ellie Van Velsen, Catherine Marraffa, Carolyn Ellaway, Katrina Cruz, Shekeeb S. Mohammad, Maina Kava, Joy Yaplito‐Lee, Shanti Balasubramaniam, Yusof Rahman, Brendon Boot, Ashley Bush, Felicity Munro, Leniza Hamoy, Ya Hui Hung, Philippa Johnston, Deanna Carpino, Molly Williams, Sharmila Kiss, Rebecca Quin, Ingrid Sutherland, Mark Walterfang   +23 more
wiley   +1 more source

The Nurse's Role in Curative‐to‐Palliative Transitions in Advanced Cancer: A Theory Synthesis Using Turner's Method

Journal of Advanced Nursing, EarlyView.
ABSTRACT Aim This paper aims to explain the process of formulating a robust theory that comprehensively explains the nurse's role during the transition from curative to the palliative phase in advanced cancer care. Design A qualitative theory synthesis approach was applied, utilising Turner's 9‐step theory synthesis method to integrate five grounded ...
Geya George, Deborah Kirk, Davina Porock
wiley   +1 more source

Development and Validation of the End‐of‐Life Assessment Tool for Advanced Dementia: A Multi Method Study

Journal of Advanced Nursing, EarlyView.
ABSTRACT Aims To develop and validate the End‐of‐Life Care Assessment Tool for Dementia (EoLC‐ATD). Design A methodological study with multiple phases. Methods Five sub‐studies comprising: a review of 90 validated dementia measures to compile an item bank of advanced dementia symptoms; focus groups with registered nurses on advanced dementia symptom ...
Carolyn Bourke, Lynn Chenoweth, Ekavi Georgousopoulou, Anna Williams   +3 more
wiley   +1 more source

Short‐ and long‐term outcome of neonates with thrombocytopenia from maternal immune thrombocytopenia

British Journal of Haematology, EarlyView.
Boris Sorin, Billal Azzouguen, Valentine Loustau, Emmanuelle Boutin, Helene Henique, Julie Graveleau, Odile Souchaud‐Debouverie, Laurent Pascal, Laurent Gilardin, Nathalie Costedoat‐Chalumeau, Quitterie Reynaud, Brigitte Pan‐Petesch, Stéphane Cheze, Louis Terriou, Thibault Comont, Gaetan Sauvetre, Bruno Royer, Matthieu Mahévas, Marc Michel, Florence Canoui‐Poitrine, Bertrand Godeau, Stéphanie Guillet   +21 more
wiley   +1 more source

Surrogate Decision‐Making Practices Regarding End‐of‐Life Care for People With Dementia in Long‐Term Care Hospitals: A Qualitative Descriptive Study

Journal of Advanced Nursing, EarlyView.
ABSTRACT Aim To explore surrogate decision‐making practices regarding end‐of‐life care for people with dementia in Korean long‐term care hospitals from the perspective of healthcare providers. Design A qualitative descriptive study. Methods The data were collected through individual semi‐structured interviews with 24 healthcare providers (physicians ...
Hyejin Kim, Jeonghyun Cho, Jongsun Park, Sang Suk Kim   +3 more
wiley   +1 more source

Recovery From Anorexia Nervosa: A Concept Analysis

Journal of Advanced Nursing, EarlyView.
ABSTRACT Aim Despite decades of research, we still know surprisingly little about how best to bring about lasting recovery from anorexia nervosa (AN). Furthermore, there is a lack of consensus in the research and treatment communities about what constitutes recovery from AN, or whether “recovery” is even an appropriate term to use in this context.
Sarah Ramsay, Kendra Allison
wiley   +1 more source