Results 131 to 140 of about 1,685,245 (302)

The effect of family centered care on meeting parental information needs of ‎hospitalized children

Journal of Holistic Nursing and Midwifery, 2012
Introduction: Information about the nature of disease decreases the anxiety and unusual ‎behaviors of parents specially mothers, and reduces their problems in recurrence of disease, ‎which occurs in at least ‎‏30%‏‎ of cases ...
Jaleh Zeinali, Seyedeh Noshaz Mirhaghjou, Mahshid Mirzaei, Fatemeh Alhani, Ehsan Kazem Nezhad Leili, Maryam Dehghani   +5 more
doaj  

Compound Heterozygote Friedreich Ataxia Patients With Covert Proximal FXN Gene Deletions

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT We present Friedreich ataxia patients with frataxin gene deletions. Data and records were collected at the Children's Hospital of Philadelphia from patients enrolled in the FACOMS natural history study. Patients with proximal deletions initially diagnosed with only one GAA expanded allele had more severe disease than their homozygous expansion
Michael P. Lazaropoulos, Morgan C. Devore, Christina Lam, Courtney Park, Sanjay Bidichandani, David R. Lynch   +5 more
wiley   +1 more source

Sertraline Treatment Can Mimic Niemann‐Pick Type C Biomarker Profile: A Diagnostic Pitfall

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Background Oxysterols (cholestane‐3β,5α,6β‐triol and 7‐ketocholesterol) and N‐palmitoyl‐O‐phosphocholineserine (PPCS) are sensitive biomarkers for Niemann‐Pick disease type C (NPC) screening. However, false‐positive results occur, with a biomarker profile suggestive of NPC despite the absence of pathogenic variants in genes involved in NPC or ...
Maria Makrygianni, Cecile Pagan, Antony Citterio‐Quentin, Isabelle Rouvet, Giulia Dingeo, Cyril Hanin, Claudine Laurent‐Levinson, Samia Pichard, Bénédicte Héron, Clément Gourguechon, Daniele Mandia, Jerome Guitton, Carole Lacout, Nicolas Schleinitz, Florient Potier, Olivier Flabeau, Elsa Besse‐Pinot, Foudil Lamari, Magali Pettazzoni, Yann Nadjar   +19 more
wiley   +1 more source

Comparative Effectiveness and Safety of Inebilizumab Versus Rituximab in AQP4‐IgG‐Positive NMOSD

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objective Rituximab (anti‐CD20, RTX) and inebilizumab (anti‐CD19, INE) represent B‐cell‐depleting therapies used for aquaporin‐4 antibody‐positive (AQP4‐IgG+) neuromyelitis optica spectrum disorder (NMOSD); however, direct comparative evidence remains limited.
Jie Lin, Binbin Xue, Dewei Xie, Jia Li, Juyuan Pan, Lanbing Zhu, Qiaowen Tong, Jing Lin, Ruofan Zhu, Xu Zhang, Junhui Xia, Xiang Li   +11 more
wiley   +1 more source

Office of the Child Advocate

, 2016
Updated irregularly; Began in 2002?; Title from home page (publisher's Web site, viewed Nov. 7, 2011).; At head of title: State of Connecticut.; Official web site of the Connecticut Office of the Child Advocate.

core  

MOGAD Is the Most Common Cause of Isolated Optic Neuritis in Children

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objectives The study aimed to characterize the clinical features, etiologies, and outcomes of isolated, first‐time pediatric ON in the post‐MOG‐IgG era. Methods This was a single‐center retrospective cohort study at Texas Children's Hospital of patients diagnosed with first‐time ON between 2018–2024, with follow‐up data collected through 2025.
Chaitanya Aduru, Akansha Chandrasekar, Kyla Blasingame, Jonathan Rosen, Jesse M. Levine, Karla Salazar, Madhuri Chilakapati, Rod Foroozan, Victoria Hardwick, Jonathan M. Yarimi, Nikita Shukla, Timothy E. Lotze, Kristen S. Fisher, Alexander J. Sandweiss   +13 more
wiley   +1 more source

Office of the Child Advocate

, 2014
Updated irregularly; Began in 2002?; Title from home page (publisher's Web site, viewed Nov. 7, 2011).; At head of title: State of Connecticut.; Official web site of the Connecticut Office of the Child Advocate.

core  

Factors Influencing the Willingness of Hospitalized Children’s Parents to Engage in Patient Safety: A Cross-Sectional Study

Risk Management and Healthcare Policy
Yujeong Kim,1,* Mingi Chang2,* 1College of Nursing, Research Institute of Nursing Innovation, Kyungpook National University, Daegu, Republic of Korea; 2College of Nursing, Kyungpook National University, Daegu, Republic of Korea*These authors ...
Kim Y, Chang M
doaj  

Plasma EV Proteomics Identifies ECM Remodeling and Inflammatory Proteins LUM and C7 as Candidate Biomarkers in FSHD

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objective Facioscapulohumeral muscular dystrophy (FSHD) is one of the most debilitating and common muscular dystrophies. Despite its severity, no approved therapy exists for FSHD patients. However, several therapeutic candidates are currently under development, and some have recently entered clinical trials, marking the need for reliable ...
Mustafa Bilal Bayazit, Chiranth K. Nagaraj, Jackson S. Newell, Kim Truc Nguyen, Xilal Y. Rima, Jacob Doon‐Ralls, Eduardo Reátegui, Jeffrey M. Statland, Rabi Tawil, Kevin M. Flanigan, Scott Q. Harper, Nizar Y. Saad   +11 more
wiley   +1 more source

The child and the hospitalization

, 2010
Objetivo: identificar a atuação do enfermeiro no processo de hospitalização da criança e tendo como base as dificuldades emocionais por ela vivenciadas. Métodos: pesquisa exploratória, descritiva, bibliográfica com abordagem qualitativa, realizada na Biblioteca Virtual de Saúde (LILACS e BDENF).
Gonçalves, Thiago Jorge Pacheco, Gomes, Nathália Lerípio, André, Keila Magalhães, Lopes, Valerita Moreira   +3 more
openaire   +1 more source