Defining Quality of Life: The Perspective of People Living with Parkinson's Disease
Abstract Background Little is known about how people with Parkinson's conceptualize “quality of life.” Objective To describe the meaning of “quality of life” from the perspective of people with Parkinson's. Methods Participants (N = 42) were asked “What does the term ‘quality of life’ mean to you?” Definitions were analyzed using inductive qualitative ...
Samantha Dorrance +13 more
wiley +1 more source
Оценка качества жизни, связанного со здоровьем
Исследование качества жизни, связанного со здоровьем, является новой современной методологией здравоохранения, позволяющей оценить результаты лечения больных, дополняя традиционные методики.
doaj
Use of HRQOL questionnaires to facilitate patient–physician communication [PDF]
(2003). Use of HRQOL questionnaires to facilitate patient–physician communication. Expert Review of Pharmacoeconomics & Outcomes Research: Vol. 3, No. 3, pp. 215-217.
openaire +3 more sources
Physiological barriers to oral intake in survivors of critical illness: A scoping review
Abstract Oral nutrition is the predominant mode of nutrition delivery on the post–Intensive Care Unit (ICU) ward; yet, it is associated with lower intake than via enteral or parenteral nutrition. There are limited data on barriers that influence oral intake in ICU survivors.
Breanna J. Teleki +4 more
wiley +1 more source
Impact of Isovolemic Hemodilution-Red Cell Exchange on Health-Related Quality of Life in Patients With Sickle Cell Disease: A Pilot Study. [PDF]
ABSTRACT Sickle cell disease (SCD) negatively affects health‐related quality of life (HRQoL). Isovolemic hemodilution (IHD) red‐cell exchange (RCE) is being increasingly used to treat SCD‐related complications, but its impact on HRQoL has not been characterized.
Murray A +4 more
europepmc +2 more sources
More than meets the eye: The hidden burden of temporary feeding tubes on children and their families
Abstract Background Although pediatric temporary (e.g., nasogastric) feeding tubes are widely used for short‐term nutrition support, family impacts remain poorly defined. Research from long‐term (e.g., gastrostomy) feeding tubes does not generalize because management and burdens differ. This study aimed to explore the financial, time and family burdens
Claire Reilly +5 more
wiley +1 more source
Background: Health related quality of life (HRQOL) is an important measure of the health status of preschool children. The TAPQOL questionnaire was designed to measure HRQOL in preschool children aged 2 to 48 months and contains 43 questions distributed ...
Mariam F. Eskander +3 more
doaj +1 more source
Normally distributed Health Related Quality of Life Measures
Background: Non-normal distributions of Health Related Quality of Life (HRQoL) measures violate basic assumption of parametric statistical analysis.
Satyendra Chakrabartty
doaj +1 more source
Effects of neratinib (N) on health-related quality of life (HRQoL) in early-stage HER2+ breast cancer (BC): longitudinal analyses from the phase III ExteNET trial [PDF]
Suzette Delaloge +19 more
openalex +1 more source
Abstract Background In individuals with cystic fibrosis (CF), lean mass and muscle strength are important predictors of clinical outcomes. This study evaluated associations among body composition, handgrip strength, muscle quality, physical activity, and health‐related quality of life in CF. Methods This observational, cross‐sectional study included 27
Benjamin H. Crain +9 more
wiley +1 more source

