Acute Neurological Events in Children With Hemoglobin SC Disease: A Multicenter Retrospective Study
ABSTRACT Introduction Neurological manifestations in children with hemoglobin SC (HbSC) disease remain insufficiently characterized, particularly regarding acute events. The aim of this study was to describe the spectrum and frequency of acute neurological events in a multicenter cohort of children with HbSC disease.
Célia Paulmin +11 more
wiley +1 more source
Parfitian Priority, Gene Therapy, and Disability. [PDF]
Wilkinson D.
europepmc +1 more source
ABSTRACT Background Sickle cell disease (SCD) has undergone major changes in the last decades. Its prevalence has been steadily increasing and numerous advances have been made in the management of the disease. However, the effect in real‐life setting of these major changes is unknown, particularly in a Canadian environment. Procedure We aimed to assess
Maude Cigna +16 more
wiley +1 more source
The Empirical Bayes Variational Autoencoder-A Neural ODE Approach for Population Modeling in Pharmacology. [PDF]
Baaz M, Sjöberg A, Jirstrand M.
europepmc +1 more source
ABSTRACT Background Timely cancer diagnosis in children and adolescents is important to improving outcomes. We aimed to quantify time to diagnosis and assess variations by patient, demographic and system‐level factors. Procedure We conducted a population‐based study of individuals aged 0–19 years diagnosed with one of 12 cancers from 2010 to 2022 in ...
Callum Mullen +5 more
wiley +1 more source
The effect of source expertise on the persuasiveness and sharing of health information on social media: A systematic review. [PDF]
Simmonds BP +3 more
europepmc +1 more source
ABSTRACT Background Person‐centred follow‐up care based on evidence‐based clinical practice guidelines and providing individualised information should help to inform and reassure survivors about their medical and psychosocial situation and provide treatment and support where needed.
Gisela Michel +36 more
wiley +1 more source
From exception to insight: a phenomenological study of quality managers' perspectives on the individual appeals in the National Healthcare Quality Program. [PDF]
Awawdi K +3 more
europepmc +1 more source
ABSTRACT Background Secretory phospholipase A2 (sPLA2) is an inflammatory mediator linked to acute chest syndrome (ACS) in sickle cell disease (SCD), a serious complication that can develop during an acute vaso‐occlusive pain episode (VOE). Plasma sPLA2 levels have been proposed as a potential biomarker for predicting ACS onset.
Rawan Korman +10 more
wiley +1 more source
An evaluation of the effectiveness of P.L. 2001, c. 368: the Basic and Essential Health Care Services Plan / New Jersey Individual Health Coverage Program Board and New Jersey Small Employer Health Benefits Program Board: March 9, 2004 [PDF]
New Jersey Individual Health Coverage Program Board
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