The study identified key barriers to optimal patient‐centered care, including delayed diagnosis due to awareness and stigma‐related barriers among patients and caregivers, and opportunities to enhance multidisciplinary coordination. Resource limitations impacted nursing and psychosocial support, while access to support care varied across regions.
Edwin Pun Hui +10 more
wiley +1 more source
Difficulty in continuing home care after informal caregiver was exposed to the COVID-19: A case report. [PDF]
Sakamoto R +7 more
europepmc +1 more source
When Urgency Drops: Temporal Consciousness and the Choreography of Dying
ABSTRACT In the hospital, the transition from fighting for life to preparing for death involves not only a shift in medical repertoires but also a profound transformation in temporal experience. Drawing on ethnographic fieldwork in a Canadian intensive care unit, this article examines how the tempo of care, its rhythms, urgencies, and pauses shapes ...
Louise Chartrand
wiley +1 more source
Informal caregiver training for people with chronic pain in musculoskeletal services (JOINT SUPPORT): protocol for a feasibility randomised controlled trial. [PDF]
Smith T +7 more
europepmc +1 more source
ABSTRACT While childhood vaccination programmes provide outstanding contributions to improving health, they can also pose challenges through the interactions between parents and healthcare. This paper focuses on the ethical dimensions of interactions between healthcare professionals and parents. Since the knowledge that professionals possess creates an
Mikael Sandlund +2 more
wiley +1 more source
The prevalence of mental frailty in ICU survivors and informal caregiver strain: A 1-year retrospective study of the Frisian aftercare cohort. [PDF]
Beumeler LFE +6 more
europepmc +1 more source
Long‐Term Societal Costs After Births Before 24 Weeks of Gestation in Sweden
ABSTRACT Aim Extremely preterm birth is associated with high morbidity and long‐term support needs. This study estimated long‐term medical and non‐medical costs throughout childhood among children born before 24 weeks of gestation in Sweden. Methods This nationwide register‐based study included 344 infants born before 24 weeks of gestation in Sweden ...
Chatarina Löfqvist +8 more
wiley +1 more source
Families as Care-Providers versus Care-Managers? Gender and Type of Care in a Sample of Employed Canadians [PDF]
This article extends previous research by examining care management as a distinct type of informal care. Using data drawn from a large Canadian study of work and family, the research is based on a study of a sub-sample of women (1068) and men (805) who ...
Anne Martin-Mathews +1 more
core
How Can Female Directors' Influence on Responsible Production Become More Consequential?
ABSTRACT Sustainable Development Goal (SDG) 12, despite having the greatest linkage to other goals, remains underexplored. We examine the impact of female directors on SDG 12 (responsible production) by addressing two debates: whether their presence reflects genuine board diversity and whether they serve merely as token leaders.
Muhammad Taufik, Fiona Vinelia
wiley +1 more source
Management of Informal Caregiver Burden in a Case of Primary Cerebral Ewing's Sarcoma: A Case Report. [PDF]
Gambarin M +7 more
europepmc +1 more source

