Results 121 to 130 of about 44,186 (267)

Experience of Burden of Care and Support Needs of Informal Caregivers of Persons With Severe Mental Disorders in Rural South Africa: A Qualitative Study

open access: yesMental Illness
Severe mental disorders are chronic and disabling conditions marked by serious functional impairments. As a result, persons with severe mental disorders require long-term care from their family, relatives, or friends.
Olindah Silaule   +2 more
doaj   +1 more source

Voice of Asia: Provision of Patient‐Centered Care in Oral Cavity Cancer: A Qualitative Study With Patients, Caregivers, and Healthcare Professionals in Five Asia‐Pacific Regions

open access: yesAsia-Pacific Journal of Clinical Oncology, EarlyView.
The study identified key barriers to optimal patient‐centered care, including delayed diagnosis due to awareness and stigma‐related barriers among patients and caregivers, and opportunities to enhance multidisciplinary coordination. Resource limitations impacted nursing and psychosocial support, while access to support care varied across regions.
Edwin Pun Hui   +10 more
wiley   +1 more source

When Urgency Drops: Temporal Consciousness and the Choreography of Dying

open access: yesAnthropology of Consciousness, EarlyView.
ABSTRACT In the hospital, the transition from fighting for life to preparing for death involves not only a shift in medical repertoires but also a profound transformation in temporal experience. Drawing on ethnographic fieldwork in a Canadian intensive care unit, this article examines how the tempo of care, its rhythms, urgencies, and pauses shapes ...
Louise Chartrand
wiley   +1 more source

Developing an Intervention Framework to Prevent Surgical Complications in Patients With Metabolic Syndrome: A Qualitative Study of Health Professional Perspectives on Barriers and Enablers

open access: yesANZ Journal of Surgery, EarlyView.
ABSTRACT Background Metabolic syndrome (MetS) is a cluster of risk factors, including cardiovascular disease, diabetes, chronic hypertension, obesity, and hypercholesterolemia, which collectively increase the risk of chronic diseases and adverse health outcomes.
Philip Norris   +7 more
wiley   +1 more source

Ethical Considerations Regarding the Vaccination of Children—The Power Dynamics Between Doctors and Parents

open access: yesActa Paediatrica, EarlyView.
ABSTRACT While childhood vaccination programmes provide outstanding contributions to improving health, they can also pose challenges through the interactions between parents and healthcare. This paper focuses on the ethical dimensions of interactions between healthcare professionals and parents. Since the knowledge that professionals possess creates an
Mikael Sandlund   +2 more
wiley   +1 more source

Long‐Term Societal Costs After Births Before 24 Weeks of Gestation in Sweden

open access: yesActa Paediatrica, EarlyView.
ABSTRACT Aim Extremely preterm birth is associated with high morbidity and long‐term support needs. This study estimated long‐term medical and non‐medical costs throughout childhood among children born before 24 weeks of gestation in Sweden. Methods This nationwide register‐based study included 344 infants born before 24 weeks of gestation in Sweden ...
Chatarina Löfqvist   +8 more
wiley   +1 more source

‘Out of My Hands’: Palestinian Referral Care in East Jerusalem After October 7, 2023

open access: yesBioethics, EarlyView.
ABSTRACT This paper examines the moral experiences of Palestinian healthcare professionals working at a specialised referral hospital in East Jerusalem during the early months of the Gaza War. Drawing on semi‐structured interviews with hospital staff providing oncology care, it analyses how understandings of what constitutes “good” care in a context of
Pieter Dronkers, Zeina Amro
wiley   +1 more source

Physical Activity, Sleep and Sedentary Behaviour of Adults With Intellectual Disabilities, Family Caregivers and Service Providers During COVID‐19 Pandemic Recovery

open access: yesBritish Journal of Learning Disabilities, EarlyView.
ABSTRACT Background Guidelines outline recommended amounts of physical activity (PA), sleep and sedentary time for optimal health. Research suggests that adults with intellectual disabilities (ID) often do not meet recommendations and that engagement in healthy behaviours is impacted by those around them. The COVID‐19 pandemic amplified these concerns.
Laura C. Koch   +6 more
wiley   +1 more source

A Scoping Review of Teacher–Parent Collaboration for Communicative Development in Students With Intellectual Disabilities

open access: yesBritish Journal of Learning Disabilities, EarlyView.
ABSTRACT Background Children with intellectual disabilities have the right to express themselves and to receive appropriate communicative support. Parents' knowledge, shaped through daily interactions and long‐term observation, is essential for understanding and supporting communicative development. Yet, such knowledge is seldom systematically embedded
Kamilla Klefbeck
wiley   +1 more source

EarlyMind‐ID: Co‐designing an Early‐Signs Informant‐Based Checklist and Tracking Framework for Dementia in Adults With Intellectual Disabilities

open access: yesBritish Journal of Learning Disabilities, EarlyView.
ABSTRACT Background Adults with intellectual disabilities, particularly those with Down's syndrome, are at increased risk of developing dementia, yet early changes are often subtle and first noticed by family members or paid support staff rather than clinicians.
Acton Daniel   +4 more
wiley   +1 more source

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