Results 51 to 60 of about 44,548 (267)

Design Opportunities for Supporting Informal Caregivers [PDF]

Proceedings of the 2016 CHI Conference Extended Abstracts on Human Factors in Computing Systems, 2016
This paper highlights key opportunities for technology design for informal caregivers who provide long-term in-home care. For this purpose, a study with informal caregivers was conducted, including interviews (N=4) and online questionnaires (N=34) based on holistic analysis of supportive technologies. These investigations provide a deeper understanding
Bosch, Lilian, Kanis, Marije, Kaye, Jofish, Druin, Allison   +3 more
openaire   +1 more source

Sociodemographic Factors Associated with Hours Worked by Primary Carers in Australia

Australian Journal of Social Issues, EarlyView.
ABSTRACT Primary caregivers constitute a major unpaid workforce in Australia. The aim of this study was to determine the sociodemographic factors that are associated with carer workloads. Multinomial logistic regression modelling was applied to the nation‐wide Australian Government survey.
Andrew J. Hamilton
wiley   +1 more source

A qualitative exploration of cAregiver experienCes Of conseRvatively maNaged kidney failure: the ACORN study

BMC Nephrology
Introduction Patients with kidney failure who are older, frail and have multiple conditions can choose not to receive dialysis and instead receive conservative management, which focuses on symptom management and maximising quality of life.
Claire Carswell, T. Forbes, A. Wilson, G. Laurente, M. Yaqoob, P. Gilbert, S. Bolton, A. Burns, C. Moran, S. O’Neill, J. McGarry, N. O’Hare, K. McGuigan, C. McKeaveney, C. McVeigh, J. Reid, S. Rej, I. Walsh, H. Noble   +18 more
doaj   +1 more source

Informal caregivers and persons with dementia’s everyday life coping

Health Psychology Open, 2021
This qualitative study explores informal caregivers’ experiences of supporting persons with dementia’s everyday life coping. In the future, there will be fewer health personnel, increased dementia prevalence and limited nursing home availability ...
Bente Nordtug, Wenche K Malmedal, Rigmor Einang Alnes, Kari Blindheim, Gunn Steinsheim, Aud Moe   +5 more
doaj   +1 more source

‘They Even Have the Capacity, but the Places Aren't Prepared to Receive Them’: Community Environment and Participation of Autistic Children in a Family‐Engaged Research Analysis

Autism Research, EarlyView.
ABSTRACT To examine the associations between community environmental barriers and support and the participation of autistic children, and to interpret these findings from the perspective of caregivers engaged as research partners. This cross‐sectional observational study employed a mixed‐methods design.
Léia Cordeiro de Oliveira, Cid André Fidelis de Paula Gomes, Gustavo Pietracatelli Janizello, Wallace Pereira Silva, Alice Soper, Monika Novak‐Pavlic, Olaf Kraus de Camargo, Soraia Micaela Silva   +7 more
wiley   +1 more source

Caring for the informal cancer caregiver

Current Opinion in Supportive & Palliative Care, 2019
Purpose of review Informal cancer caregivers play a vital role in the physical, functional, and emotional well being of cancer patients. However, the majority of informal caregivers are not prepared for their caregiving role.
Virginia, Sun, Dan J, Raz, Jae Y, Kim
openaire   +3 more sources

Cost‐utility analysis of nusinersen–risdiplam switch in patients with spinal muscular atrophy in Croatia: A discrete event simulation model

British Journal of Clinical Pharmacology, EarlyView.
Introduction In recent years, the treatment of spinal muscular atrophy (SMA), a rare disease, has significantly progressed, improving patients' survival and overall quality of life. However, current SMA treatments are expensive, and some (nusinersen) are very inconvenient for patients.
Andrej Belančić, Ivana Stević, Elvira Meni Maria Gkrinia, Dinko Vitezić, Slobodan Janković   +4 more
wiley   +1 more source

Online activities among elder informal caregivers: Results from a cross-sectional study

Digital Health, 2018
Objectives The internet can be used as a source to gain information or support during highly demanding circumstances, e.g. providing informal care. While internet use has been studied among older people, less is known about informal caregivers' online ...
Dominique A Reinwand, Rik Crutzen, Susanne Zank   +2 more
doaj   +1 more source

Exploring new avenues: Psychedelic‐assisted therapy for young people

British Journal of Clinical Pharmacology, EarlyView.
Rates of mental illness in young people are increasing, whereas the development of novel mental health treatments has not significantly progressed. Psychedelic‐assisted therapy, using substances such as psilocybin and 3,4‐methylenedioxymethamphetamine (MDMA), has shown potential in the treatment of mental illnesses in the adult population, including ...
Ioanna Artemis Vamvakopoulou, Dasha Nicholls, David J. Nutt, Martina Di Simplicio   +3 more
wiley   +1 more source

Informal Caregiving [PDF]

Stroke, 2016
Caregiving by family and local community has been part of every society and presumably included those affected by stroke, long before there was any knowledge of what comprised a stroke. In Western societies, changes in family structure and development of health and social services have increased caregiving by professionals, albeit still with a ...
Jeyaraj D, Pandian, Dorcas B C, Gandhi, Richard I, Lindley, Janet P, Bettger   +3 more
openaire   +2 more sources