Results 51 to 60 of about 714,363 (265)
Pediatric Blood &Cancer, EarlyView.ABSTRACT The medical burdens of sickle cell disease (SCD) and transfusion‐dependent β‐thalassemia (TDT) are chronic and cumulative, even in children. Yet the effects expand beyond medications and healthcare visits due to their impacts on school attendance, academic performance, and peer engagement.
Mary Ann Etling +2 more
wiley +1 more source
Stress Variances Among Informal Hospice Caregivers [PDF]
, 2012 Article on stress variances among informal hospice ...
Oliver, Debra Parker +5 more
core +1 more source
Arthritis Care &Research, EarlyView.Objective To evaluate utility of an artificial intelligence (AI) health coach for systemic sclerosis (SSc) self‐management and identify patterns associated with participant engagement. Methods We conducted a mixed methods study in which an AI health coach, powered by a large language model (LLM), was used to support self‐management for SSc.
Nirali Shah +4 more
wiley +1 more source
Caregiver Perspectives on the Burden of Disease and Treatment in Uncontrolled Gout
Arthritis Care &Research, EarlyView.Objective Uncontrolled gout (UG) refers to persistently elevated serum urate (SU) levels >6 mg/dL and ongoing gout symptoms despite use of urate‐lowering therapy (ULT). The objective of this study was to evaluate the burden associated with informal caregiving for individuals with UG.
Angelo Gaffo +6 more
wiley +1 more source
BMC NursingBackground The informal caregivers of adult patients with β-thalassemia major (β-TM) bear not only physical but also emotional and economic pressures of providing care.
Runqi Zhang +8 more
doaj +1 more source
Informal care, labour force participation and unmet needs for formal care in the EU-27, Croatia and Turkey. ENEPRI Research Report No. 97, November 2011 [PDF]
, 2011 This study seeks to estimate the effects of problems in labour force participation and unmet needs for formal care on informal caregiving. Using information for 2007 from Eurobarometer 283/Wave 67.3 for the EU-27 and the two candidate countries, Turkey ...
Prieto, Cristina Vilaplana
core
Report to the Governor from the Maryland Caregivers Support Coordinating Council
, 2002 Established by the Maryland General Assembly and the Governor, the Maryland Caregivers Support Coordinating Council listens to the concerns of caregivers and facilitates the development of new resources and programs that address caregiver needs.
Maryland Caregivers Support Coordinating Council
core +1 more source
Arthritis Care &Research, EarlyView.Objective Hospitalization, particularly for surgery, represents a period of heightened stress. We evaluated how frailty attenuates the association of rheumatoid arthritis (RA) with negative health outcomes after elective noncardiac surgery. Methods We conducted a cross‐sectional study using the National Inpatient Sample (2018 to 2020), including adults
Ali Yazdanyar +5 more
wiley +1 more source
The potential of transformative video design for improving caregiver’s wellbeing
Health Psychology Open, 2021 The existing interventions for informal caregivers assist with managing health outcomes of the role burden. However, the deeper meaning-making needs of informal caregivers have been generally neglected.
Milica Petrovic, Andrea Gaggioli
doaj +1 more source
Revista de Enfermagem da UFPI, 2023 Objective: To reveal the quality of life of informal caregivers of aged people with Alzheimer's disease in times of the COVID-19 pandemic. Method: A descriptive and qualitative study conducted through semi-structured interviews with 12 informal ...
Monique Teresa Amoras Nascimento +6 more
doaj +1 more source