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Cognitive and behavioral clinical outcome assessments in children with developmental and epileptic encephalopathies: Issues and instruments
Epilepsia, EarlyView.Abstract
Children with developmental and epileptic encephalopathies (DEEs) face cognitive and behavioral challenges that may have a greater impact than seizures on their quality of life (QoL). The need to assess these nonseizure outcomes for evaluating treatments is increasingly recognized.Cinzia Correale, Nicola Specchio, Jenny Downs, J. Helen Cross, Simona Cappelletti, Andrea Palacio‐Navarro, Sam Geuens, Kette Valente, Andreas Brunklaus, Colin Reilly +9 morewiley +1 more sourcePediatric epilepsy surgery: Global survey of referral and presurgical evaluation practices
Epilepsia, EarlyView.Abstract Objective
Pediatric epilepsy surgery is well established, but contemporary global data on referral and presurgical evaluation practices are lacking. This International League Against Epilepsy (ILAE) Pediatric Epilepsy Surgery Task Force study provides an updated overview of current trends and regional differences. Methods
Group‐level data were Georgia Ramantani, J. Helen Cross, Dorottya Cserpan, Emtnan Ahemad, Javier Aparicio, Alexis Arzimanoglou, Carmen Barba, William Bingaman, Kees Braun, Richard J. Burman, James Butler, Lixin Cai, Dezhi Cao, Roberto Caraballo, Mathilde Chipaux‐Raffo, Thomas Cloppenborg, Arthur Cukiert, Cristine Mella Cukiert, Sameer Dal, Dario Englot, Noelle Enright, Aria Fallah, Sarah Ferrand Sorbets, Martha Feucht, Deepak Gill, Laura Guio Mahecha, Aris Hadjinicolaou, Tove Hallböök, A. Simon Harvey, Hans Holthausen, Yuwu Jiang, Lakshminarayanan Kannan, Kalman A. Katlowitz, Katarzyna Kotulska‐Jóźwiak, Martin Kudr, Matt Lallas, Ahsan Moosa Naduvil Valappil, Sandeep Bhagwan Patil, Tom Pieper, Nicola Specchio, Manjari Tripathi, Lejla Vendegh, Howard Weiner, Jo Wilmshurst, Mary Lou Smith, Elaine Wirrell, ILAE Pediatric Epilepsy Surgery Task Force and Study Group, Fabrice Bartolomei, Juan Carlos Benedetti Isaac, Poodipedi Sarat Chandra, Mary Connoly, Daniel Curry, Vicki Deli‐Peri, Luca De Palma, Nabeel Diab, Petia Dimova, Carolina Munoz Castro, Georg Dorfmüller, Jana Domínguez, Gianluca D'Onofrio, Christin Eltze, Johannes M. Nico Enslin, András Fogarasi, Siby Gopinath, Renzo Guerrini, Giulia Nobile, Masaki Iwasaki, Sita Jayalakshmi, Takayuki Kikuchi, Noritsugu Kunihiro, Paweł Kowalczyk, Niklaus Krayenbühl, Pavel Kršek, Thilo Kalbhenn, Kensuke Kawai, Cassia Maniquis, Wim Otte, María Ángeles Pérez‐Jiménez, Juan Carlos Pérez‐Poveda, Catherine Riney, Jonathan Roth, Sabine Rona, Karl Rössler, Olga Teo, Oana Tarta Arsene, Laura Tassi, Hartlieb Till, T S Dhanya, Catalina Soto Órdenes, Piradee Suwanpakdee, Steffen Syrbe, Nigel Peter Symss, Jay Shetty, Dilşad Türkdoğan, Takehiro Uda, Naotaka Usui, Vrajesh Udani, Jithangi Wanigasinghe, Yi Wang +98 morewiley +1 more sourceDiagnosis and management guidelines for infantile epileptic spasms syndrome around the world: A scoping review and comparative study of international approaches
Epilepsia, EarlyView.Abstract Objective
Infantile epileptic spasms syndrome (IESS) is an epileptic encephalopathy requiring rapid diagnosis and treatment to optimize neurodevelopmental outcomes. Although multiple national and regional guidelines exist, recommendations vary.Gozde Erdemir, Chethan K. Rao, Anne Francine Pino, Christina Briscoe, Debopam Samanta, Jo M. Wilmshurst, Sonal Bhatia, Jessica L. Carpenter, Christina Hoei‐Hansen, Puneet Jain, Tommy Stodberg, Robyn Whitney, Ryuki Matsuura, Karina Rosso Astorga, Keryma Acevedo Gallinato, Pratibha Singhi, Aristides Hadijinicolaou, Gia Melikishvili, Patricia Smeyers, Nicola Specchio, Stéphane Auvin, Pediatric Epilepsy Research Consortium Infantile Spasm Work Group and International Committee +21 morewiley +1 more sourceOn‐site exposure to clinical epilepsy practice for experimental scientists engaged in epilepsy research: A pilot study by the ILAE commission on neurobiology
Epilepsia Open, EarlyView.Abstract
Educational initiatives that address the gap between basic/preclinical and clinical practices are important to effectively translate basic science discoveries to benefit patients. The ILAE Neurobiology Commission conducted a pilot project aimed at exposing basic and preclinical scientists engaged in epilepsy research to general clinical issues Marco de Curtis, Giulia Battaglia, Gustavo Aguado‐Carrillo, Eleonora Aronica, Melody Asukile, Simona Balestrini, Carmen Barba, Tobias Baumgartner, Albert J. Becker, Francesca Bisulli, Patricia Braga, Nihan Carcak, Esper Cavalheiro, Norman Delanty, Lorenzo Ferri, Alon Friedman, Daniel Friedman, Marian Galovic, Jennifer N. Gelinas, Brenda Giagante, Rodrigo Henriquez‐Ch, Veena Kander, Silvia Kochen, David Krysl, Martin Kudr, Akio Ikeda, Mariana Legnani, Yicong Lin, Iris Martinez‐Juarez, Lorenzo Muccioli, Naluca Mwendaweli, Silvia Oddo, Çigdem Özkara, Jose Eduardo Peixoto‐Santos, Piero Perucca, Heidrun Potschka, Luisa Rocha, Helen Scharfman, Ingrid E. Scheffer, Rainer Surges, Chanez Charfi Triki, Reinaldo Uribe‐San‐Martin, Kette Valente, Erwin A. van Vliet, Yuping Wang, Benjamin Whatley, Jo M. Wilmshurst, Elza Marcia Yacubian, Alessandro De Rossi, Stefano de Curtis, Premysl Jiruska, David C. Henshall +51 morewiley +1 more sourceSmartphone videos for infantile epileptic spasms triaging and assessment (VISTA study): Impact of education and standardized clinical history on diagnostic accuracy
Epilepsia Open, EarlyView.Abstract Objective
Diagnostic and treatment delays in infantile epileptic spasms syndrome (IESS) increase the risk of poor neurodevelopmental outcomes. Early clinical recognition of IESS is essential, especially in regions lacking expedited access to electroencephalograms (EEG).Christine L. Shrock, Margaret C. Savage, Lauren Sham, Christopher Cortina, Kathryn P. Gray, I‐Hsiu Lee, Chahnez C. Triki, Jacqueline French, J. Helen Cross, Orrin Devinsky, Jo M. Wilmshurst, Archana A. Patel +11 morewiley +1 more sourceSome of the next articles are maybe not open access.Related searches:
Priorities to reduce the burden of stroke in Latin American countries.
Lancet Neurology, 2019 The large and increasing burden of stroke in Latin American countries, and the need to meet the UN and WHO requirements for reducing the burden from non-communicable disorders (including stroke), brought together stroke experts and representatives of the Sheila Ouriques Martins, C. Sacks, W. Hacke, M. Brainin, Francisco de Assis Figueiredo, Octávio Marques Pontes-Neto, Pablo M Lavados Germain, M. F. Marinho, Arnold Hoppe Wiegering, Diana Vaca McGhie, S. Cruz-Flores, S. Ameriso, Walter M Camargo Villareal, J. Durán, José E Fogolin Passos, Raul Gomes Nogueira, J. J. Freitas de Carvalho, Gisele Sampaio Silva, C. H. Cabral Moro, J. Oliveira-Filho, R. Gagliardi, Eduardo D Gomes de Sousa, Felipe Fagundes Soares, K. de Pinho Campos, Paulo F Piza Teixeira, Ivete Pillo Gonçalves, Irving Santos Carquín, Mário Muñoz Collazos, Germán E Pérez Romero, Javier I Maldonado Figueredo, M. Barboza, M. A. Celis López, F. Góngora-Rivera, C. Cantú-Brito, N. Novarro-Escudero, Miguel Á Velázquez Blanco, Carlos A Arbo Oze de Morvil, Aurora B Olmedo Bareiro, Gloria Meza Rojas, A. Flores, Jorge Hancco-Saavedra, Vivian Pérez Jiménez, Carlos Abanto Argomedo, Liliana Rodríguez Kadota, R. Crosa, D. L. Mora Cuervo, Ana De Souza, L. Carbonera, T. F. Alvarez Guzman, Nelson J Maldonado, N. Cabral, C. Anderson, P. Lindsay, A. Hennis, V. Feigin +54 moresemanticscholar +1 more source
