Results 41 to 50 of about 320,599 (247)

Early Clinical, Imaging, and Pathological Characteristics of SRPK3/TTN‐Digenic Myopathy

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objective SRPK3/TTN‐digenic myopathy was recently established as a skeletal muscle myopathy caused by digenic inheritance. This study characterizes the early clinical presentation of SRPK3/TTN‐digenic myopathy in one previously reported and seven newly identified pediatric patients.
Rotem Orbach, Sandra Donkervoort, Carola Hedberg‐Oldfors, Giovanni Baranello, Dimah Saade, Precilla D'Souza, Ruchee Patel, Eva Michael, A. Reghan Foley, Diana Bharucha‐Goebel, S. Jin Haugland, Meghan McAnally, Omer Abdul Hamid, Katherine Chao, Ellen F. Macnamara, Alan H. Beggs, Anna Sarkozy, Juliane Mueller, Steven A. Moore, Richard S. Finkel, Cynthia J. Tifft, Francesco Muntoni, Anders Oldfors, Carsten G. Bönnemann   +23 more
wiley   +1 more source

Making Sense, Making Do: Local District Implementation of a New State Induction Policy

International Journal of Education Policy and Leadership, 2016
Connecticut’s Teacher Education and Mentoring (TEAM) program is in its early stages of implementation. This study examined how local school districts implemented TEAM and identified factors that affected implementation.
Chad D. Ellis
doaj  

Making Policy Without Parameters: Obtaining Data on the Nonprofit Sector in a Local Community

Nonprofit Policy Forum, 2012
This study began with an effort to obtain data on the economic contribution of the nonprofit sector in a large, metropolitan community to inform policy-makers.
Roudebush Margaret M., Brudney Jeffrey L.   +1 more
doaj   +1 more source

Territorial Governance and Area Image

Symphonya, 2004
The image of a region or a city is an emerging topic in most debates about economic development strategies at the local and national level. Local and national policies of innovation which form an essential part of modern policies of local development are
Nicola Bellini
doaj   +1 more source

Spatial and Volumetric Characteristics of Glioblastoma: Associations With Clinical Presentation and Survival

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objective We aim to comprehensively analyze how regional tumor and edema characteristics are associated with clinical presentations and survival outcomes in a large cohort of glioblastoma patients. Methods Patients with IDH‐wildtype glioblastoma who received brain MRI from 2010 to 2023 were included.
Daniel J. Zhou, Marc Jaskir, Julian Gal, Yombe Fonkeu, Christos Davatzikos, MacLean P. Nasrallah, Jose Garcia, Rubo Xing, Stephen J. Bagley, Arati Desai, Richard E. Phillips, Steven Tobochnik, Colin A. Ellis, James J. Gugger, Nishant Sinha, Joel M. Stein, Kathryn A. Davis   +16 more
wiley   +1 more source

When Asylum Policies Go Local: the Case of Socially Useful Works for Asylum-Seekers.

Italian Political Science, 2019
The local sphere of migration policy has become a key area of intervention for local governments, during the recent refugee crisis. The scant existing literature on the topic has distinguished different approaches through which local governments manage ...
Andrea Pettrachin
doaj  

Evaluation of Digital Technologies for Home‐Based Assessment in People With Amyotrophic Lateral Sclerosis

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objective Digital technologies hold promise for transforming healthcare by enhancing personalized treatments and offer valuable opportunities to improve patient care. Here, we evaluated several novel, self‐administered, home‐based, digital endpoints for their association with corresponding conventional standard clinical measures (primary) in ...
Arne Mueller, Vanessa Vallejo, Mónica Povedano Panadés, Orla Hardiman, Véronique Danel‐Brunaud, Senda Ajroud‐Driss, Philippe Couratier, Jeremy Shefner, Anna Gokey, Mike DiCesare, Erin Lennox, Jens Praestgaard, Lucie Brujin, Peggy Allred, Ram Miller   +14 more
wiley   +1 more source

Early Recognition of Treatment‐Responsive Rapidly Progressive Dementia: The Modified STAM3mP Score

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Early identification of patients with treatment‐responsive rapidly progressive dementia (RPD) is important as early treatment improves outcomes. The STAM3P score identifies treatment‐responsive RPD using “high risk” presenting features. We optimized performance by adding a time component (i.e., dementia within 3 months) and validated the ...
R. W. van Steenhoven, N. Satyadev, A. E. M. Bastiaansen, Y. D. Piura, J. Kerstens, Y. S. Crijnen, J. Brenner, T. Brand, T. M. Bienfait, S. Veenbergen, J. M. de Vries, F. J. de Jong, E. G. P. Dopper, P. A. E. Sillevis Smitt, H. Seelaar, G. S. Day, M. J. Titulaer   +16 more
wiley   +1 more source

Who Decides? Toward a Typology of Transit Governance

Urban Science, 2020
This article describes a typology for formal governance structures of public transit in the United States to support inquiry into how organizational structures influence policy making processes, organizational capacity and policy outcomes. Scholarship of
Lauren Ames Fischer, Rosalie Singerman Ray, David A. King   +2 more
doaj   +1 more source

Reflections on Public Policy Making in Local Governance Partnerships [PDF]

Public Policy and Administration, 2008
This special themed edition of Public Policy and Administration rehearses a number of current and important debates within public policy – not least is recognition of the apparent absence of reflection which is a part of the process of learning. We have brought together five articles, which are each rooted in empirical studies undertaken by the ...
Diamond, J., Liddle, J.
openaire   +2 more sources