ABSTRACT Objective Super‐Refractory Status Epilepticus (SRSE) is a rare, life‐threatening neurological emergency with unclear etiology in many cases. Mitochondrial dysfunction, often due to disease‐causing genetic variants, is increasingly recognized as a cause, with each gene producing distinct pathophysiological mechanisms.
Pouria Mohammadi +2 more
wiley +1 more source
Turning the Page on Hardcopy Risk Management Plan Educational Materials: Digitalization Made Possible. [PDF]
Ng A, Celo AN, Fernandes B.
europepmc +1 more source
Management and training aspects of an emergency plan [PDF]
Hedemann Jensen, P., Lakey, J.R.A.
core +1 more source
Project Management Plan and data management plan
Project Management Plan and data management ...
openaire +1 more source
Remote Monitoring in Myasthenia Gravis: Exploring Symptom Variability
ABSTRACT Background Myasthenia gravis (MG) is a rare, autoimmune disorder characterized by fluctuating muscle weakness and potential life‐threatening crises. While continuous specialized care is essential, access barriers often delay timely interventions. To address this, we developed MyaLink, a telemedical platform for MG patients.
Maike Stein +13 more
wiley +1 more source
Efficacy of a problem, intervention, control, and outcomes (PICO)-based perioperative blood management plan developed for patients undergoing long-segment lumbar spine posterior surgery. [PDF]
Gao H, Wang TT, Xuan Q, Xu GH, Gu HY.
europepmc +1 more source
Predicting Loss of Ambulation in Limb Girdle Muscular Dystrophy R9
ABSTRACT Background Limb girdle muscular dystrophy type R9 (LGMDR9) results from biallelic variants in FKRP. There is limited data to predict loss of ambulation (LOA) among those with LGMDR9. Methods Participants in an ongoing dystroglycanopathy natural history study (NCT00313677) with FKRP variants who had achieved ambulation and were more than 3 ...
Chandra L. Miller +6 more
wiley +1 more source
Solid Waste Generation Rate, Composition Analysis, and Proposed Management Plan: A Case Study of Main Market Centers of Bahir Dar City. [PDF]
Kassawe A, Getahun E.
europepmc +1 more source
Sperm Repository for a Breeding Program of the Eastern Oyster Crassostrea virginica: Sample Collection, Processing, Cryopreservation, and Data Management Plan. [PDF]
Yang H +5 more
europepmc +1 more source

