Results 1 to 10 of about 320 (70)

A Comprehensive Systematic Review of Data Linkage Publications on Diabetes in Australia

Frontiers in Public Health, 2022
AimsOur study aimed to identify the common themes, knowledge gaps and to evaluate the quality of data linkage research on diabetes in Australia.MethodsThis systematic review was developed in accordance with the Preferred Reporting Items for Systematic ...
Ngan T. T. Dinh, Ngan T. T. Dinh, Ingrid A. Cox, Barbara de Graaff, Julie A. Campbell, Brian Stokes, Andrew J. Palmer, Andrew J. Palmer   +7 more
doaj   +1 more source

Risk of early recurrence and mortality in high-risk myocardial infarction patients: A population-based linked data study

International Journal of Cardiology. Cardiovascular Risk and Prevention, 2023
Background: Survival during the early period following myocardial infarction (MI) has significantly improved although there are limited data on cardiovascular recurrence during this period.
Lee Nedkoff, Tom Briffa, Kevin Murray, James Gaw, Andrea Yates, Frank M. Sanfilippo, Stephen J. Nicholls   +6 more
doaj   +1 more source

The changing face of Australian data reforms: Impact on pharmacoepidemiology research

International Journal of Population Data Science, 2021
Objective A wealth of data is generated through Australia’s universal health care arrangements. However, use of these data has been hampered by different federal and state legislation, privacy concerns and challenges in linking data across jurisdictions.
Juliana de Oliveira Costa, Claudia Bruno, Andrea L Schaffer, Smriti Raichand, Emily A Karanges , Sallie-Anne Pearson   +5 more
doaj   +1 more source

Record linkage under suboptimal conditions for data-intensive evaluation of primary care in Rio de Janeiro, Brazil

BMC Medical Informatics and Decision Making, 2021
Background Linking Brazilian databases demands the development of algorithms and processes to deal with various challenges including the large size of the databases, the low number and poor quality of personal identifiers available to be compared ...
Claudia Medina Coeli, Valeria Saraceni, Paulo Mota Medeiros, Helena Pereira da Silva Santos, Luis Carlos Torres Guillen, Luís Guilherme Santos Buteri Alves, Thomas Hone, Christopher Millett, Anete Trajman, Betina Durovni   +9 more
doaj   +1 more source

Evaluating privacy-preserving record linkage using cryptographic long-term keys and multibit trees on large medical datasets

BMC Medical Informatics and Decision Making, 2017
Background Integrating medical data using databases from different sources by record linkage is a powerful technique increasingly used in medical research.
Adrian P. Brown, Christian Borgs, Sean M. Randall, Rainer Schnell   +3 more
doaj   +1 more source

Privacy-Preserving Record Linkage of Deidentified Records Within a Public Health Surveillance System: Evaluation Study

Journal of Medical Internet Research, 2020
BackgroundThe Australian Collaboration for Coordinated Enhanced Sentinel Surveillance (ACCESS) was established to monitor national testing and test outcomes for blood-borne viruses (BBVs) and sexually transmissible infections (STIs) in key populations ...
Nguyen, Long, Stoové, Mark, Boyle, Douglas, Callander, Denton, McManus, Hamish, Asselin, Jason, Guy, Rebecca, Donovan, Basil, Hellard, Margaret, El-Hayek, Carol   +9 more
doaj   +1 more source

Demystifying probabilistic linkage

International Journal of Population Data Science, 2018
Many of the distinctions made between probabilistic and deterministic linkage are misleading. While these two approaches to record linkage operate in different ways and can produce different outputs, the distinctions between them are more a result of how
James C Doidge, Katie Harron
doaj   +1 more source

Establishing a framework for privacy-preserving record linkage among electronic health record and administrative claims databases within PCORnet®, the National Patient-Centered Clinical Research Network

BMC Research Notes, 2022
Objective The aim of this study was to determine whether a secure, privacy-preserving record linkage (PPRL) methodology can be implemented in a scalable manner for use in a large national clinical research network.
Daniel Kiernan, Thomas Carton, Sengwee Toh, Jasmin Phua, Maryan Zirkle, Darcy Louzao, Kevin Haynes, Mark Weiner, Francisco Angulo, Charles Bailey, Jiang Bian, Daniel Fort, Shaun Grannis, Ashok Kumar Krishnamurthy, Vinit Nair, Pedro Rivera, Jonathan Silverstein, Keith Marsolo   +17 more
doaj   +1 more source

The Data-Adaptive Fellegi-Sunter Model for Probabilistic Record Linkage: Algorithm Development and Validation for Incorporating Missing Data and Field Selection

Journal of Medical Internet Research, 2022
BackgroundQuality patient care requires comprehensive health care data from a broad set of sources. However, missing data in medical records and matching field selection are 2 real-world challenges in patient-record linkage.
Xiaochun Li, Huiping Xu, Shaun Grannis
doaj   +1 more source

Development of a trauma and emergency database in Kigali, Rwanda

African Journal of Emergency Medicine, 2016
Introduction: Injuries account for 10% of the global burden of disease, resulting in approximately 5.8 million deaths annually. Trauma registries are an important tool in the development of a trauma system; however, limited resources in low- and middle ...
Alexis S. Kearney, Lise M. Kabeja, Naomi George, Naz Karim, Adam R. Aluisio, Zeta Mutabazi, Jean Eric Uwitonze, Jeanne D’Arc Nyinawankusi, Jean Claude Byiringiro, Adam C. Levine   +9 more
doaj   +1 more source