Results 91 to 100 of about 2,472,059 (311)

A Qualitative Analysis of Patient Perspectives and Preferences in Lupus Management to Guide Lupus Guidelines Development

Arthritis Care &Research, EarlyView.
Objective A patient‐centered approach for chronic disease management, including systemic lupus erythematosus (SLE), aligns treatment with patients’ values and preferences, leading to improved outcomes. This paper summarizes how patient experiences, perspectives, and priorities informed the American College of Rheumatology (ACR) 2024 Lupus Nephritis (LN)
Shivani Garg, Izzy Hartel, Lisa R. Sammaritano, Anca Askanase, Bonnie L. Bermas, Maria Dall'Era, Alí Duarte‐García, Victoria P. Werth, Brad Rovin, Reem A. Mustafa, Amy S. Turner, Bené Williams, Brian L. Ung, Hiya Bhavsar, Monique C. Gore‐Massy, Nahirannette Pulido, Natacha Guerrero, Natalie M. Smith, Wambui Machua, Linda T. Hiraki, Mary Beth Son   +20 more
wiley   +1 more source

Educating Seth: An Ecosophical Conversation [PDF]

, 2010
Most accounts of human activity have a particular structure that supports the accounting. Education as a human activity has over centuries, and particularly in the past century, developed a narrative structure that, while seemingly "neutral", privileges ...
Kentel, J, Sawada, D
core   +1 more source

Pattern recognition in narrative: Tracking emotional expression in context [PDF]

, 2015
Using geometric data analysis, our objective is the analysis of narrative, with narrative of emotion being the focus in this work. The following two principles for analysis of emotion inform our work.
Ganz, Adam, Murtagh, Fionn
core   +4 more sources

Clinical Significance of Therapeutic Drug Level Monitoring for Mycophenolate in Patients With Extrarenal Systemic Lupus Erythematosus—A Systematic Review and Meta‐Analysis

Arthritis Care &Research, EarlyView.
Objective Clinical response to mycophenolic acid (MPA) is highly heterogeneous; thus, therapeutic drug level monitoring (TDM) may help improve treatment efficacy. This systematic review and meta‐analysis examined therapeutic ranges for MPA levels associated with better outcomes and safety in patients with systemic lupus erythematosus (SLE ...
Zahraa Qamhieh, Dalia Sriwi, Callie Saric, Tripti Singh, Christie M. Bartels, Shivani Garg   +5 more
wiley   +1 more source

A Phenomenological Approach to Understanding Different Perceptual Interests: Interactions Between Endometriosis Patients and Their Physicians

Journal of Integrative and Innovative Humanities
Understanding patients’ experiences of illness is critical to successful and holistic treatment. It is especially important in illnesses associated with diagnosis delays and mismanagement, like endometriosis.
Shirley Huang, Sarah Caston
doaj  

Narrative in adolescent specific language impairment (SLI): a comparison with peers across two different narrative genres [PDF]

, 2007
Background: Narrative may provide a useful way in which to assess the language ability of adolescents with specific language impairment and may be more ecologically valid than standardized tests.
Botting, N., Conti-Ramsden, G., Wetherell, D.   +2 more
core   +1 more source

Integrating Patient‐Reported Quality Measures in Systemic Lupus Erythematosus: Development of the American College of Rheumatology Implementation Guide

Arthritis Care &Research, EarlyView.
Objective To support high‐quality, patient‐centered care for systemic lupus erythematosus (SLE), the American College of Rheumatology (ACR) developed evidence‐based measures incorporating clinical and patient‐reported outcome measures (PROMs). Using the Consolidated Framework for Implementation Research (CFIR), we conducted semistructured interviews ...
Catherine Nasrallah, Cherish Wilson, Christine Hariz, Christie M. Bartels, Shanthini Kasturi, Wambui Machua, Amy Bennett, Kate Chiseri, Allison Plitman, Starla Hairston Blanks, April Jorge, Patti Katz, Jinoos Yazdany, Shivani Garg   +13 more
wiley   +1 more source

Narrative environments: how do they matter? [PDF]

, 2009
The significance and possible senses of the phrase 'narrative environment' are explored. It is argued that 'narrative environment' is not only polysemous but also paradoxical; not only representational but also performative; and not just performatively ...
Parsons, Allan
core  

Which game narratives do adolescents of different gameplay and sociodemographic backgrounds prefer? a mixed-methods analysis [PDF]

, 2019
OBJECTIVE: The aim of this study was to investigate which narrative elements of digital game narratives are preferred by the general adolescent population, and to examine associations with gender, socioeconomic status (SES), and gameplay frequency ...
Bernaards C, Bijvank MN, Boaventura FMB, Ellis S, Field A., Frambach JM, Göbel S., Hieftje K, Huang O., Inchley J, Jenkins H., Juul J., Kafai YB., Kari T., Lu AS, McCutchen D., Molnar A, Shaw A, Susi T, Thue D, Yee N.   +20 more
core   +1 more source

Trajectories of Physical Function in Canadian Children with Juvenile Idiopathic Arthritis

Arthritis Care &Research, Accepted Article.
Objectives We describe trajectories of physical function in children newly diagnosed with juvenile idiopathic arthritis (JIA) and identify trajectories with persisting functional impairments and associated baseline characteristics. Methods We included patients enrolled in the Canadian Alliance of Pediatric Rheumatology Investigators (CAPRI) Registry ...
Clare Cunningham, Meghan McPherson, Lillian Lim, Roberta A. Berard, Matthew Berkowitz, Jean‐Philippe Proulx‐Gauthier, Brian M. Feldman, Nicole Johnson, Dax G. Rumsey, Heinrike Schmeling, Lori B. Tucker, Thomas Loughin, Kristin M. Houghton, Jaime Guzman, The CAPRI Registry Investigators   +14 more
wiley   +1 more source