CAV3gene sequence variations: National Genome Database and clinics
Acta Neurologica Scandinavica, 2015Caveolinopathies are a group of untreatable, degenerative muscle diseases associated with caveolin 3 (CAV3) gene mutations.The goal of this study was to characterize the role of the CAV3 gene in patients with limb-girdle muscular dystrophy, hyperCKemia, cardiomyopathies, as well as utilization of the National Genome Database in clinical applications.We
J. Stavusis +9 more
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Gastric Linitis Plastica: Clinical Characteristics and Outcomes from the National Cancer Database
Anticancer Research, 2023Gastric linitis plastica (LP) is a rare type of gastric tumor with limited data. We sought to investigate the clinical characteristics, treatment modalities, and outcomes utilizing a national database.The National Cancer Database (NCDB) was reviewed for LP of the stomach from 2004 to 2017.
Adil, Ayub +4 more
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What about a national clinical audit results database?
BMJ, 2014In their call to action about access to clinical trial results, Goldacre and Heneghan alluded to “the most basic research tool in medicine—audit.”1 Every year, thousands of audits are done across the NHS …
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Completeness and validity in a national clinical thyroid cancer database: DATHYRCA
Cancer Epidemiology, 2014Although a prospective national clinical thyroid cancer database (DATHYRCA) has been active in Denmark since January 1, 1996, no assessment of data quality has been performed. The purpose of the study was to evaluate completeness and data validity in the Danish national clinical thyroid cancer database: DATHYRCA.National prospective cohort.
Londero, Stefano Christian +11 more
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Lessons Learned Regarding Missing Clinical Stage in the National Cancer Database
Annals of Surgical Oncology, 2019The National Cancer Database (NCDB) is a valuable resource for studying national cancer treatment patterns. However, data abstraction rules from 2004 to 2007 resulted in missing clinical stage for a high percentage of cases. We investigated how this missingness can bias results in breast cancer studies including patients treated with neoadjuvant ...
Tanya L, Hoskin +3 more
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Screening Patients for Diabetes in a Large, National Clinical Database
Diabetes, 2018Objective: To characterize diabetes screening patterns among eligible patients per ADA Standards of Medical Care in Diabetes using a large, geographically diverse clinical dataset. Study Design: Retrospective descriptive analysis conducted in a clinical database containing over 25 million patient records. Population Studied: A total of 5.
NIKITA STEMPNIEWICZ +3 more
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Can national cancer registration support clinical databases and clinical cancer research?
Acta Oncologica, 2012Can national cancer registration support clinical databases and clinical cancer research? The short answer is: Yes, it can. A longer version is: Yes, it can and if it cannot substantially help now, we will have to make sure that it can in the future. In many countries and regions for decades there has been a mandatory registration of new and incident ...
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Cancer registries in Japan: National Clinical Database and site-specific cancer registries
International Journal of Clinical Oncology, 2014The cancer registry is an essential part of any rational program of evidence-based cancer control. The cancer control program is required to strategize in a systematic and impartial manner and efficiently utilize limited resources. In Japan, the National Clinical Database (NCD) was launched in 2010.
Takayuki, Anazawa +2 more
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[Analysis of quality data based on national clinical databases].
Ugeskrift for laeger, 2009There is little agreement on the philosophy of measuring clinical quality in health care. How data should be analyzed and transformed to healthcare information is an ongoing discussion. To accept a difference in quality between health departments as a real difference, one should consider to which extent the selection of patients, random variation ...
Jan, Utzon +2 more
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[Past, Present, and Future of National Clinical Database].
Kyobu geka. The Japanese journal of thoracic surgery, 2017The National Clinical Database of Japan( NCD) was established in April 2010 in the collaboration of 9 surgical subspecialty societies on the platform of the Japan Surgical Society(JSS). Registrations began in 2011, and because NCD is strongly linked to the board certification system by JSS, the ratio of registration of surgical procedures is very high,
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