The cross-border use of health data is still limited by fragmented data models, weak guarantees around who is requesting access, and inconsistent mechanisms for obtaining and revoking patient consent.
Sudip Phuyal +3 more
doaj +1 more source
An interoperable and reusable research environment for digital medicine
Clinical research infrastructures remain fragmented and project-specific, with semantic inconsistency accumulating across studies and constantly increasing “interoperability debt”.
Severin Kohler +16 more
doaj +1 more source
Background: Insight into clinically relevant outcomes for children with cancer is crucial for improving treatment and follow-up strategies. The International Childhood Cancer Core Outcome Project developed a harmonized core outcome set, involving ...
R.J. van Kalsbeek +43 more
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ORGANIZATIONAL, LEGAL AND TECHNOLOGICAL ASPECTS OF HEALTH INFORMATION EXCHANGE
The article discusses organizational and legal aspects of electronic health information exchange in developed countries, particularly, introduction of electronic medical records in the United States and Europe, as well as topical issues related to ...
N. A. Karasev +3 more
doaj +1 more source
This study presents a novel approach to metadata management, while focusing on the development of an automated, microservice-based infrastructure at the University Medical Center Göttingen’s Medical Data Integration Center (UMG-MeDIC). Given the critical
Bönisch, Caroline
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Can OpenEHR, ISO 13606, and HL7 FHIR Work Together? An Agnostic Approach for the Selection and Application of Electronic Health Record Standards to the Next-Generation Health Data Spaces. [PDF]
Pedrera-Jiménez M +9 more
europepmc +1 more source
Pathways to interoperable electronic patient records in health and social care, Part 2: introduction for commissioners, chief clinical information officers and senior medical and social care leaders involved in health IT commissioning and strategy. [PDF]
Hoghton M +3 more
europepmc +1 more source
Development and validation of an open data model for pharmacogenetics to enable semantic interoperability in clinical practice. [PDF]
Sharma V +6 more
europepmc +1 more source
A Data-Centric Approach for Health Care and Research in a Health Knowledge Management Platform: Implementation and Requirement-Based Evaluation Study. [PDF]
Schreiweis B +5 more
europepmc +1 more source
Structure of Health Information With Different Information Models: Evaluation Study With Competency Questions. [PDF]
Rossander A, Karlsson D.
europepmc +1 more source

