One Herd: A Community Storytelling Campaign for Equity in Adolescent and Young Adult Cancer Survivorship. [PDF]
Ghazal LV +4 more
europepmc +1 more source
Environmental and socio‐economic factors behind data provision in 17 citizen science projects
Abstract Citizen science approaches in ecology have recently become increasingly popular. Although many advantages, such as the cost‐effective collection of vast amounts of data, outweigh the disadvantages, most projects face difficulties, such as non‐random sampling, pseudo‐absences or various biases, such as detection/reporting biases or participant ...
Zsóka Vásárhelyi +21 more
wiley +1 more source
TikTok as a Platform for Patient Education and Health Information in Rare Genetic Diseases: Cross-Sectional Study. [PDF]
Wahman JM, Hijazi RM, Abdelhady HG.
europepmc +1 more source
Attitudes Toward Prenatal Interventions in the Fanconi Anemia Community
ABSTRACT Objective In‐utero cell and gene therapies may offer prenatal treatment options for inherited diseases. Preclinical data suggests in‐utero (IU) hematopoietic stem cell transplantation (HSCT) could prevent Fanconi anemia (FA) related bone marrow failure without genotoxic conditioning or immune suppression.
Tony Lum +4 more
wiley +1 more source
Community engagement in health guidelines and other normative products: a methodological review. [PDF]
Bohren MA +7 more
europepmc +1 more source
Advancing a National Dialogue on Disability in Catholic Education
ABSTRACT This qualitative descriptive study examined perspectives from 85 participants at the National Convening on Disability and Catholic Education, a 3‐day gathering of Catholic school leaders, educators, and advocates. Using reflexive thematic analysis of structured roundtable dialogues, the study identified psychological and organizational factors
Michael J. Boyle
wiley +1 more source
Evaluating the use of participatory system dynamics group model building for expanding systems thinking capacity among community-based stakeholders. [PDF]
Lemke MK +8 more
europepmc +1 more source
Development and adoption of Kernza—A perennial grain crop for sustainable agriculture
Annual cereal grains account for ~50% of human food calories, but cultivation of these crops has resulted in major environmental and social issues worldwide. For nearly three decades, researchers have been breeding intermediate wheatgrass—a perennial cool‐season grass—to serve as the world's first commercial‐scale perennial grain crop to improve ...
Jessica L. Gutknecht +15 more
wiley +1 more source
Association Between Comprehensiveness of Nonprofit Hospitals' Health Equity Strategies and Their Community Benefit Spending. [PDF]
Singh SR, Santos T, Puro N, Cronin CE.
europepmc +1 more source
Reconsidering how to dry orthodox seeds for improved ex situ conservation outcomes
Ex situ seed conservation is an essential tool in our efforts to conserve wild and cultivated plant diversity, as mentioned in the Global Strategy for Plant Conservation and the Sustainable Development Goals. While there are established standards which seed banks follow, it is important that we continue to evaluate protocols and optimize processes ...
Fiona R. Hay +7 more
wiley +1 more source

