Mapping Dental Care for Children and Adolescents With Rare Diseases: A Brazilian Multicentre Study
Community Dentistry and Oral Epidemiology, EarlyView.ABSTRACT Objectives To describe the landscape of dental care provided by specialised centres for children and adolescents with rare diseases (RDs) in the state of Minas Gerais, southeastern Brazil. Methods A retrospective cross‐sectional study was conducted involving individuals aged 0–18 years with a confirmed diagnosis of a RD who received care at ...
Heloisa Vieira Prado +21 more
wiley +1 more source
Child &Family Social Work, EarlyView.ABSTRACT Globally, millions of children are adopted or placed in alternative care settings (i.e., residential, foster, or kinship care). The current study explores the factors leading to separation from parents and adoption or placement in alternative care by investigating orphanhood status, perceived antecedents to placement, types of alternative care
Nicole Gilbertson Wilke +2 more
wiley +1 more source
Lifecycle management of orphan drugs approved in Japan. [PDF]
Orphanet J Rare Dis, 2022 Seki K, Suzuki H, Abe S, Saotome C.
europepmc +1 more source
Expectations and Concerns of Adoptive Families of Children With Fetal Alcohol Spectrum Disorder
Child &Family Social Work, EarlyView.ABSTRACT Fetal alcohol spectrum disorder (FASD) is considered a condition that persists throughout life in people who have been exposed to alcohol during the gestation period. During the different stages of their lives, individuals with FASD face different challenges and adversities that—without the right resources and strategies—can contribute to ...
Dídac Gómez‐Santabrígida +3 more
wiley +1 more source
Top Selling (2026) Small Molecule Orphan Drugs: A Journey into Their Chemistry. [PDF]
Int J Mol Sci, 2023 Benedetto Tiz D +5 more
europepmc +1 more source
Making Advanced Therapies Affordable and Accessible: Two Strategic Approaches
Developing World Bioethics, EarlyView.ABSTRACT This article explores two complementary strategies for addressing the affordability and access challenges facing advanced therapies. As high development costs and limited market access have led to the withdrawal of several therapies, the article examines how these barriers create ‘valleys of death’ that prevent innovation from reaching ...
Ubaka Ogbogu, Lauren Albrecht
wiley +1 more source
Societal participation in the development of orphan drugs: a systematic review. [PDF]
Front Med (Lausanne)Akodad S, De Smedt D, Stevens H.
europepmc +1 more source
How to Imagine Educational AI: The Filling of a Pail or the Lighting of a Fire?
Educational Theory, EarlyView.Abstract Recent advances in artificial intelligence (e.g., machine learning, generative AI) have led to increased interest in its application in educational settings. AI companies hope to revolutionize teaching and learning by tailoring material to the individual needs of students, automating parts of teachers' jobs, or analyzing educational data to ...
Michał Wieczorek, Alberto Romele
wiley +1 more source
Drug lag and associated factors of orphan drugs approved by the U.S. in China. [PDF]
Front PharmacolMo Q, He J, Guo Q, Yang Y.
europepmc +1 more source
Comparison of US and EU Prices for Orphan Drugs in the Perspective of the Considered US Orphan Drugs Act Modifications and Discussed Price-Regulation Mechanisms Adjustments in US and European Union. [PDF]
Int J Environ Res Public Health, 2022 Żelewski P +16 more
europepmc +1 more source