Results 1 to 10 of about 154 (77)
Parenting roles for young people with attention-deficit/hyperactivity disorder transitioning to adult services. [PDF]
What this paper adds Parents move from a ‘manager’ to ‘roadie’ role as young people mature. A ‘superfan’ role supports positive self‐image and directed health care work. Continued involvement reflects parental responsibility to juggle wider family needs and resources. Parents differ in capacity to fulfil and move between these roles.
Janssens A +4 more
europepmc +2 more sources
Translation and Cultural Adaption of the Revised ICU Family Satisfaction Questionnaire (FS-ICU-24R) Into Danish. [PDF]
ABSTRACT Background Systematic assessment of family satisfaction is essential for improving the quality of care in intensive care units (ICUs). The Family Satisfaction with Care in the Intensive Care Unit questionnaire (FS‐ICU‐24R) is internationally used but has not previously been available in Danish.
Ågård AS +6 more
europepmc +2 more sources
Experiences of Loss, Grief and Support Needs of Adults on Haemodialysis and Families: A Qualitative Explorative Study. [PDF]
ABSTRACT Background The burdensome life of haemodialysis impacts both patients and their families. It often leads to a stressful life marked by experiences of loss and grief. Nurses report a lack of knowledge and skills in providing grief support, as well as insufficient time for existential conversations with patients and families.
Marcussen J +4 more
europepmc +2 more sources
A pain research strategy for Europe: A European survey and position paper of the European Pain Federation EFIC. [PDF]
Abstract Background Pain is the leading cause of disability and reduced quality of life worldwide. Despite the increasing burden for patients and healthcare systems, pain research remains underfunded and under focused. Having stakeholders identify and prioritize areas that need urgent attention in the field will help focus funding topics, reduce ...
Pickering G +28 more
europepmc +2 more sources
Bakgrunn: Det er sjelden at pårørende og pasienter inviteres til å drøfte etisk vanskelige situasjoner i kommunale etikkomiteer. I vår studie deltok pårørende i 10 av 54 drøftinger, mens pasienter ikke deltok i noen.
Heidi Karlsen +2 more
doaj +1 more source
Abstract Young carers often face a great amount of emotional burden and have high practical and social responsibilities. The role of being a young carer is associated with behavioural, developmental, physical and psychosocial problems that may not only affect the individual in childhood but also in adulthood.
Sisse Heiden Laursen +3 more
wiley +1 more source
Oplevelser af othering blandt pårørende til minoritetspatienter med palliative behov
Baggrund: Kompleksiteten i den palliative indsats kan reducere lige adgang til sundhed for patienter og pårørende med anden etnisk baggrund.
Hanne Bess Boelsbjerg, Kenni Hede
doaj +1 more source
Omsorgsbelastning for pårørende til hjemmeboende personer med demens
Hensikten med studien er å analysere faktorer som forklarer omsorgsbelastning blant pårørende til hjemmeboende personer med demens. Studien bidrar med ny kunnskap ved å analysere en rekke forklaringsfaktorer samlet – i motsetning til tidligere studier ...
Per Ivar Hagen, Arne H. Eide
doaj +1 more source
Bakgrunn: Hensikten var å utforske hvordan pårørende til pasienter på sykehjem erfarte samarbeidet med sykehjemstjenesten etter at de hadde opplevd at nær familie hadde blitt utsatt for vold, overgrep eller forsømmelser.
Lene Elisabeth Blekken +3 more
doaj +1 more source
Målet med studien er å undersøke variasjon i bruk av kommunale helse- og omsorgstjenester til hjemmeboende personer med demens og deres pårørende, spesielt med tanke på betydningen av pårørendes omsorgskompetanse.
Per Ivar Hagen, Arne H. Eide
doaj +1 more source

