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The objectives of this paper are twofold: on the one hand to identify a participatory governance model capable of meeting the goal of the inclusion of marginalized and excluded groups; on the other hand to explain how and to what extent the participation
Francesco Marcaletti, Veronica Riniolo
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Abstract Background Sickle cell disease (SCD) is an autosomal recessive hemoglobinopathy affecting millions of individuals worldwide. The clinical expression and psychosocial burden of SCD vary widely across geographical, cultural, and healthcare system contexts, underscoring the need for setting‐specific approaches to assessment.
Desiré Fantasia +7 more
wiley +1 more source
Improving democratic governance through institutional design: civic participation and democratic ownership in Europe [PDF]
In this article we provide a conceptual and argumentative framework for studying how institutional design can enhance civic participation and ultimately increase citizens’ sense of democratic ownership of governmental processes.
Arnstein +65 more
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ABSTRACT Neuroblastoma is the most common extracranial solid tumor in early childhood. Its clinical behavior is highly variable, ranging from spontaneous regression to fatal outcome despite intensive treatment. The International Society of Pediatric Oncology Europe Neuroblastoma Group (SIOPEN) Radiology and Nuclear Medicine Specialty Committees ...
Annemieke Littooij +11 more
wiley +1 more source
Climate adaptation is a dynamic social and institutional process where the governance dimension is receiving growing attention. Adaptive governance is an approach that promises to reduce uncertainty by improving the knowledge base for decision making. As
Stefania Munaretto +2 more
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Design Matters : CBNRM and Democratic Innovation [PDF]
Community-based natural resource management (CBRNM) aims to realize sustainable management of resources and improvements in livelihood. A central focus is the empowerment of indigenous and local communities through customary or devolved rights to common ...
Smith, G., Smith, G.
core
ABSTRACT Introduction Adolescent siblings of children with cancer are at elevated risk for psychosocial problems. Unfortunately, various barriers such as limited family time and resources, conflicting schedules, and psychosocial staffing constraints at cancer centers hinder sibling access to support.
Christina M. Amaro +10 more
wiley +1 more source
Water governance in two urban African contexts: agency and action through participatory video
This paper describes and critically examines the process and outcomes of a community-based participatory video (PV) research project on issues related to water governance with residents of underserved and informal settlements in Khayelitsha, South ...
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ABSTRACT Purpose Chemoimmunotherapy with irinotecan, temozolomide, and dinutuximab (I/T/DIN) has emerged as first‐line therapy for relapsed/refractory (r/r) high‐risk neuroblastoma (HRNB) in North America. Topotecan and cyclophosphamide (T/C) are often used in combination with dinutuximab in the setting of lack of response, progression, or incomplete ...
Benjamin J. Lerman +17 more
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This paper examines how different governance models-participatory democracy, technocracy, and hybrid systems-shaped pandemic responses in Switzerland, France, and Türkiye. Using a comparative case study approach, we analyze economic performance and COVID-
Soner Kıstak
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