Results 41 to 50 of about 765,758 (302)

Adolescent and parental proxy online record access: analysis of the empirical evidence based on four bioethical principles

open access: yesBMC Medical Ethics
Background During recent decades, providing patients with access to their electronic health records (EHRs) has advanced in healthcare. In the European Union (EU), the General Data Protection Regulation provides individuals with the right to check their ...
Josefin Hagström   +2 more
doaj   +1 more source

Ethically Researching Local Impacts of Environmental Change without Travel

open access: yesGeosciences, 2021
Responses to the COVID-19 pandemic, which began in 2020, included local and international travel restrictions alongside limits on face-to-face gatherings.
Ilan Kelman
doaj   +1 more source

Cognitive Functioning in Vorinostat‐Treated Pediatric and Young Adult Patients Over the First 180 Days After Hematopoietic Stem Cell Transplant

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Purpose Cognitive and psychological difficulties could negatively interfere with treatment adherence and quality of life before and after hematopoietic stem cell transplant (HSCT). Methods to mitigate these changes may have positive effects on treatment success.
Kristen L. Votruba   +11 more
wiley   +1 more source

Women, Equity and Participatory Water Management in Brazil [PDF]

open access: yes, 2007
Public participation in resource management is regarded as a central pillar of sustain- able development. Water management is a foremost example, and women globally are prime users and protectors of water. Yet the effectiveness of participatory water
Moraes, A., Perkins, Patricia E. (Ellie)
core   +1 more source

Incidence and Risk Factors of Serious Osteonecrosis in Pediatric Acute Lymphoblastic Leukemia: A CYP‐C Population‐Based Study

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Background Osteonecrosis (ON) is a debilitating complication of acute lymphoblastic leukemia (ALL) therapy. While numerous studies have explored its incidence and associated risk factors, investigations using large‐scale cohorts remain important to characterize ON across heterogeneous populations.
Noémie de Villiers   +5 more
wiley   +1 more source

The piloting of a culturally centered American Indian family prevention program: a CBPR partnership between Mescalero Apache and the University of New Mexico

open access: yesPublic Health Reviews, 2017
The Mescalero Apache Family Listening Program (MAFLP) is a culturally centered family prevention program with third, fourth, and fifth graders; a parent/caregiver; and a family elder.
Lorenda Belone   +8 more
doaj   +1 more source

The Undisciplined Nature of Ecological Design [PDF]

open access: yes, 2009
The author evaluates the results of a participatory action research that takes place amidst a private design school located in Rio de Janeiro, Brazil.
Barbosa, Joao Carlos Lutz
core  

Improving the Evaluation and Management of Transfusion‐Related Iron Overload in Children, Adolescents, and Young Adults Following Cancer Treatment or Hematopoietic Stem Cell Transplantation

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Background Transfusion‐related iron overload (TRIO) is a late effect of therapy impacting survivors of childhood cancer and hematopoietic stem cell transplantation (HSCT) who receive frequent packed red blood cell (pRBC) transfusions. Surprisingly, there are no accepted guidelines to assist providers in identifying and treating at‐risk ...
Luke Gingell   +3 more
wiley   +1 more source

What can a participatory approach to evaluation contribute to the field of integrated care? [PDF]

open access: yes, 2016
© 2017 BMJ Publishing Group. All rights reserved. Better integration of care within the health sector and between health and social care is seen in many countries as an essential way of addressing the enduring problems of dwindling resources, changing ...
Eyre, Laura   +2 more
core   +1 more source

Novel Genetic Risk Factor Identified for L‐Asparaginase‐Induced Pancreatitis in Pediatric Patients With Cancer

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Background L‐asparaginase is a critical component in treatment protocols for pediatric acute lymphoblastic leukemia. Acute pancreatitis reactions can necessitate delays and, in some cases, discontinuation of L‐asparaginase, which compromises outcomes.
Edward J. Raack   +39 more
wiley   +1 more source

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