Results 251 to 260 of about 74,562 (313)

Deliberation as a condition for meaningful participation in health and healthcare research. [PDF]

Front Public Health
Marinus JD.
europepmc   +1 more source

Five‐Year Disease Progression in Synuclein Seeding Positive Sporadic Parkinson's Disease

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objective To provide a comprehensive description of disease progression in synuclein seeding assay (SAA) positive sporadic Parkinson Disease participants, using Neuronal Synuclein Disease integrated biological and functional impairment staging framework.
Paulina Gonzalez‐Latapi, Caroline Gochanour, Seung Ho Choi, Hyunkeun Cho, Chelsea Caspell‐Garcia, Christopher Coffey, Michael Brumm, David‐Erick Lafontant, Yuge Xiao, Thomas Tropea, John Seibyl, Caroline Tanner, Charles S. Venuto, Karl Kieburtz, Lana M. Chahine, Kathleen L. Poston, Andrew Siderowf, Kenneth Marek, Tanya Simuni, The Parkinson's Progression Markers Initiative   +19 more
wiley   +1 more source

Project SCORE (Student-Centered Outcomes Research Experience). [PDF]

Educ Sci (Basel)
Barnard M, Johnson T, Ford-Wade A, Wade B, Whalen Q, Dehon E, Godfrey M, Scott R, Mason SK, Compretta CE.   +9 more
europepmc   +1 more source

Value of MRI Outcomes for Preventive and Early‐Stage Trials in Spinocerebellar Ataxias 1 and 3

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objective To examine the value of MRI outcomes as endpoints for preventive and early‐stage trials of two polyglutamine spinocerebellar ataxias (SCAs). Methods A cohort of 100 participants (23 SCA1, 63 SCA3, median Scale for the Assessment and Rating of Ataxia (SARA) score = 5, 42% preataxic, and 14 gene‐negative controls) was scanned at 3T up ...
Thiago J. R. Rezende, Emilien Petit, Young Woo Park, Sophie Tezenas du Montcel, James M. Joers, Jonathan M. DuBois, H. Moore Arnold, Michal Povazan, Ipek Özdemir, Guita Banan, Romain Valabregue, Philipp Ehses, Jennifer Faber, Chiadi U. Onyike, Peter B. Barker, Jeremy D. Schmahmann, Eva‐Maria Ratai, Sub H. Subramony, Thomas H. Mareci, Khalaf O. Bushara, Henry Paulson, Thomas Klockgether, Alexandra Durr, Tetsuo Ashizawa, Christophe Lenglet, Gülin Öz, READISCA Investigators   +26 more
wiley   +1 more source

Participatory systems modeling in implementation research: Exploring benefits, facilitators, and future needs. [PDF]

J Clin Transl Sci
Smith NR, Cruz JL, Gannon J, Mazzucca-Ragan S.   +3 more
europepmc   +1 more source

Enhancing patient safety in the emergency care of poisoned patients: a participatory systems approach. [PDF]

Int J Qual Health Care
Simsekler MCE, Rahmadani F, AlRaeesi NA, Alsereidi MM.   +3 more
europepmc   +1 more source

The CIRCULAR model: advancing public health through citizen science initiated clinical and mechanistic research in atrial fibrillation. [PDF]

Front Public Health
Kuipers MF, Remy ML, Collinet ACT, Silva Ramos K, Pittens CACM, van Oudheusden M, Laurila R, van der Werke J, van Deel ED, Konus U, de Groot NMS, Brundel BJJM.   +11 more
europepmc   +1 more source

Community participation and consultation in palliative and end-of-life care: Building death literacy through a participatory theory of change. [PDF]

Palliat Care Soc Pract
Salifu Y, Davies J, Eccles K, Adu Gyamfi K, Caswell G.   +4 more
europepmc   +1 more source

Cataloguing and theorising open research practices in the arts, humanities and social sciences: Problematising and diversifying 'Open Science'. [PDF]

F1000Res
Adams J, Barnes M, Moore S, Pinfield S.
europepmc   +1 more source

Research Partnerships in Rural and Remote Virtual Health Innovation Projects: A Scoping Review. [PDF]

Aust J Rural Health
Tjandra V, Yi J, Thomson E, Benbaruj J, Canfield C, Singh A, Jun J, Hoekstra F.   +7 more
europepmc   +1 more source