Results 101 to 110 of about 2,060,078 (325)

Routine use of patient-reported experience and outcome measures for children and young people: a scoping review

open access: yesSystematic Reviews
Background Patient-reported outcome measures (PROMs) measure people’s views of their health status whereas patient-reported experience measures (PREMs) are questionnaires measuring perceptions of their experience whilst receiving healthcare.
Anne Alarilla   +8 more
doaj   +1 more source

Patient expectation and experience of MR-guided radiotherapy using a 1.5T MR-Linac

open access: yesTechnical Innovations & Patient Support in Radiation Oncology
Background and Purpose: Online adaptive MR-guided radiotherapy (MRgRT) is a relatively new form of radiotherapy treatment, delivered using a MR-Linac. It is unknown what patients expect from this treatment and whether these expectations are met.
S.R. de Mol van Otterloo   +7 more
doaj   +1 more source

Incorporating development of a patient-reported outcome instrument in a clinical drug development program: examples from a heart failure program. [PDF]

open access: yes, 2016
BackgroundPatient-reported outcome (PRO) measures can be used to support label claims if they adhere to US Food & Drug Administration guidance. The process of developing a new PRO measure is expensive and time-consuming.
Anatchkova, Milena   +8 more
core   +1 more source

Novel Genetic Risk Factor Identified for L‐Asparaginase‐Induced Pancreatitis in Pediatric Patients With Cancer

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Background L‐asparaginase is a critical component in treatment protocols for pediatric acute lymphoblastic leukemia. Acute pancreatitis reactions can necessitate delays and, in some cases, discontinuation of L‐asparaginase, which compromises outcomes.
Edward J. Raack   +39 more
wiley   +1 more source

Shared-decision-making, trust in the healthcare system and health literacy are associated with self-reported pain levels: a population-based cross-sectional study in individuals living with a chronic health condition in Wales

open access: yesBMC Health Services Research
Background Pain is an invisible condition which has significant morbidity, mortality and healthcare system burden, and is a leading cause of disability worldwide.
Katherine E. Woolley   +6 more
doaj   +1 more source

Patient-Reported Outcomes in Integrated Care: A Frontier of Opportunities and Challenges

open access: yesInternational Journal of Integrated Care
Effective care integration requires the right information, at the right time, with care and support delivered in the right environment. Patient-reported outcome measures [PROMs] offer a mechanism to support collaborative integrated care to help people ...
Nicola Anderson   +5 more
doaj   +1 more source

Reliability and validity of an Ambulance Patient Reported Experience Measure (A-PREM): pilot study [PDF]

open access: yes, 2017
Background There are no prehospital ambulance Patient Reported Experience Measures (A-PREMs) routinely used to support service comparisons and improvement.
Akanuwe, Joseph   +3 more
core   +1 more source

Outcomes and Surgical Management of Malignant Rhabdoid Tumor of the Kidney: A Report From the Pediatric Surgical Oncology Research Collaborative

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Purpose Malignant rhabdoid tumor of the kidney (MRTK) is a rare, aggressive tumor seen in young children. The optimal timing of resection for locally advanced tumors is not well‐defined. The purpose of this study is to evaluate modern oncologic outcomes and the impact of surgical timing. Methods A multicenter retrospective review was performed
Hannah N. Rinehardt   +76 more
wiley   +1 more source

Patient‐reported experience measures are essential to improving quality of care for chronic wounds: An international qualitative study

open access: yesInternational Wound Journal, 2020
Traditional quality measures for chronic wounds have focused on objective outcomes that are challenging to risk adjust, lack patient input, and have limited ability to inform quality improvement interventions. Patient‐reported experience measures (PREMs)
L. Squitieri   +10 more
semanticscholar   +1 more source

Adjunctive Therapeutic Plasma Exchange in Refractory Adult‐Onset Still's Disease Complicated by Secondary Macrophage Activation Syndrome: A Single‐Center Experience

open access: yesTherapeutic Apheresis and Dialysis, EarlyView.
ABSTRACT Introduction Adult‐onset Still's disease (AOSD) complicated by macrophage activation syndrome (MAS) carries substantial mortality. The role of therapeutic plasma exchange (TPE) remains uncertain. Methods We retrospectively analyzed patients with AOSD‐MAS treated with TPE at a single‐center.
Masataka Ueda   +15 more
wiley   +1 more source

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