Results 11 to 20 of about 1,925 (197)

Co-Producing a Patient Reported Experience Measure (PREM) With and for People With Intellectual Disability. [PDF]

Health Expect
ABSTRACT Background Patient reported experience measures (PREMs) are widely used as key indicators of value in healthcare towards improved services but are rarely applied among people with intellectual disability. Incorporating the experiences of people with intellectual disability in PREMs data is vital as this group often encounter poor healthcare ...
Newman B, Wu L, Mimmo L, Catlett B, Van Hoeke M, Tokutake M, Phillips K, Van Hoeke D, Bowen K, Baumgarter DD, Patterson P, Manias E, Szanto T, Hackl NA, Basur D, Li M, Adams C, Olivier P, Strnadová I, Trollor JN, Harrison R.   +20 more
europepmc   +4 more sources

Identification of patient-reported outcomes measures (PROMs) and patient-reported experiences measures (PREMs) in Gaucher disease in Spain

Medicina Clínica
Patient-reported outcome measures (PROMs) and patient-reported experiences measures (PREMs) are crucial for understanding the impact of GD on quality of life and patient's perceptions on care, but also to guide decision-making processes. Nevertheless, no specific PREMs in GD have been published, neither PROMs for Spanish GD patients have been developed.
Pilar Giraldo, María Camprodón, Paloma Cerro Alcolea, Elena Gras‐Colomer, Daiana Ibarretxe, Sunil Lakhwani, Elvira Mora, María Purificación Velasco Calderón, Montserrat Morales‐Conejo   +8 more
openalex   +4 more sources

Protocol for the development and validation of a patient-reported experience measure (PREM) for people with hearing loss: the PREM-HeLP [PDF]

BMJ Open, 2023
IntroductionHearing loss is a common chronic health condition and adversely affects communication and social function resulting in loneliness, social isolation and depression. We know little about the patient experience of living with hearing loss and their views on the quality of the audiology service.
Helen Pryce, Sian K. Smith, Georgina Burns-O’Connell, Rebecca Knibb, Rosemary Greenwood, Rachel Shaw, Saira Hussain, Jonathan Banks, Amanda Hall, Jean Straus, Sian Noble   +10 more
openalex   +5 more sources

Validation of novel patient-centred juvenile idiopathic arthritis-specific patient-reported outcome and experience measures (PROMs/PREMs) [PDF]

Pediatric Rheumatology Online Journal, 2020
Background Measuring the outcomes that matter to children and young people (CYP) with juvenile idiopathic arthritis (JIA), is a necessary precursor to patient-centred improvements in quality of clinical care.
Laura E. Lunt, Stephanie Shoop-Worrall, Nicola Smith, Gavin Cleary, Janet McDonagh, Andrew D. Smith, Wendy Thomson, Flora McErlane   +7 more
doaj   +2 more sources

The NAVETA obesity consensus tool: a multidimensional framework for clinical and patient-reported outcome assessment [PDF]

Frontiers in Endocrinology
BackgroundObesity is a chronic, multifactorial, and relapsing disease that profoundly impairs physical, psychological, and social functioning, leading to substantial deterioration in health-related quality of life (HRQoL). Despite growing evidence on the
Gabriel Mercadal-Orfila, Gabriel Mercadal-Orfila, Josep Lluch-Taltavull, Guillem Cuatrecasas, Guillem Cuatrecasas, Guillem Cuatrecasas, José María García, María Antonia Maestre-Fullana, Salvador Herrera-Pérez   +8 more
doaj   +2 more sources

Development of validated, context-specific patient-reported experience measures (PREMs) tools to enhance quality and patient safety in India [PDF]

BMJ Open Quality
Objectives Patient-reported experience measures (PREMs) offer unique insights into patient perceptions of care. However, their implementation at the micro level with regards to patient safety remains limited.
Malathi Murugesan, Reka Karuppusami, Lallu Joseph, Rahul Deshmukh, Neesha Ajit Nair, Ebinesh Antony, Premkumar Ramasubramani, Pratheesh Ravindran   +7 more
doaj   +2 more sources

Stage 1 development of a patient-reported experience measure (PREM) for chronic obstructive pulmonary disease (COPD) [PDF]

npj Primary Care Respiratory Medicine, 2017
AbstractThe study aimed to explore patients’ experience of living with chronic obstructive pulmonary disease and their perspective of their community healthcare for chronic obstructive pulmonary disease to extract affective responses in order to develop potential items for a patient-reported experience measure for chronic obstructive pulmonary disease.
Susan Walker, Sharon Andrew, Matthew Hodson, C Michael Roberts   +3 more
openalex   +6 more sources

Concurrent use and association of patient-reported experience and outcome measures in psychiatric and substance use disorder care: a scoping review [PDF]

Frontiers in Health Services
BackgroundPatient reported experience measures (PREMs) provide patients` perspectives on health care services received, while generic Patient reported outcome measures (PROMs) reflect their subjective well-being or quality of life.
Marte Karoline Råberg Kjøllesdal, Marte Karoline Råberg Kjøllesdal, Hilde Hestad Iversen, Lina Harvold Ellingsen-Dalskau   +3 more
doaj   +2 more sources

Perception of quality of care using patient reported experience measures (PREMs) in a cohort of adults with HIV: A cross-sectional study. [PDF]

Medicine (Baltimore), 2023
de Lazzari E, Berrocal L, Fernández E, Laguno M, Chivite I, Torres B, González-Cordón A, de la Mora L, Ambrosioni J, Iniciarte A, Blanco JL, Miró JM, Martínez E, Martínez-Rebollar M, Mallolas J.   +14 more
europepmc   +2 more sources

Protocol for a patient-reported experience measures (PREMs) survey of patients discharged during the COVID-19 pandemic and their family caregivers. [PDF]

BMJ Open, 2021
Bonvin E, Tacchini-Jacquier N, Monnay S, Verloo H.   +3 more
europepmc   +3 more sources