Results 31 to 40 of about 10,730,044 (261)

Implementing electronic patient reported outcomes in inflammatory bowel disease: patient participation, score reliability and validity

Health and Quality of Life Outcomes, 2023
Background Patient-reported outcome measures (PROMs) are recommended for assessing patient-centered outcomes in inflammatory bowel disease (IBD). The main aims were to assess the level of participation in an electronic PROM (ePROM) data collection system
Daniel Deutscher, Clara Weil, Gabriel Chodick, Sveta Tsukinovsky, Keith Bodger, Matti Waterman, Revital Kariv   +6 more
doaj   +1 more source

Using patient-reported outcomes (PROs) to compare the providers of surgery: does the choice of measure matter?

, 2013
BACKGROUND: Patient-reported outcomes (PROs) are being used to compare health care providers with little knowledge of how the choice of measure affects such comparisons.
Hutchings, Andrew, van der Meulen, Jan, Neuburger, Jenny, Black, Nick   +3 more
core   +1 more source

The Genetic Counseling Outcome Scale: A new patient-reported outcome measure for clinical genetics services [PDF]

, 2011
The aim of this study was to develop a patient-reported outcome measure (PROM) for clinical genetics services. Previous research was used to develop a draft 84-item questionnaire, which was completed by 527 members of patient support groups.
Dunn, Graham, G Dunn, McAllister, Marion, Mcallister, M., AM Wood, C Todd, Shiloh, Shoshana, Todd, C.; id_orcid, S Shiloh, Todd, Chris, Todd, C., Dunn, G., Wood, Alex M, Shiloh, S., M McAllister, Wood, A., Wood, A. M.   +16 more
core   +1 more source

Beyond FEV1 in COPD: a review of patient-reported outcomes and their measurement [PDF]

, 2012
: Patients with chronic obstructive pulmonary disease (COPD) present with a variety of symptoms and pathological consequences. Although primarily viewed as a respiratory disease, COPD has both pulmonary and extrapulmonary effects, which have an impact on
van der Molen, T, Kulich, Karoly, Jones, P, van der Molen, Thys, Miravitlles, Marc, Kulich, K, Miravitlles, M, Jones, Paul   +7 more
core   +1 more source

The role of PANSS-G12-rated clinical insight in self-reporting the impact of symptoms in patients with schizophrenia living in the community

Schizophrenia Research: Cognition
Background: Impaired insight is common in schizophrenia and may influence the interpretation of patient-reported outcome measures, which are increasingly used in patient-centred care and research.
Eva Frigola-Capell, Juan Luis González-Caballero, Jordi Cid, Cristina Romero-López-Alberca, Susana Ochoa, Regina Vila-Badia, Luis Salvador-Carulla, Berta Moreno-Küstnerh   +7 more
doaj   +1 more source

Measuring Overall Severity of Myasthenia Gravis (MG): Evidence for the Added Value of the MG Symptoms PRO

Neurology and Therapy, 2023
Introduction Accurate measurement of myasthenia gravis (MG) severity is required for appropriate clinical monitoring of patients with MG and assessment of the benefit of new treatments in clinical trials.
Antoine Regnault, Thomas Morel, Christine de la Loge, Flora Mazerolle, Henry J. Kaminski, Ali A. Habib   +5 more
doaj   +1 more source

The cross-cultural adaptation process of a patient-reported outcome measure

Journal of the Scientific Society, 2023
Patient-reported outcome measures (PROMs) are increasingly being used in the field of physiotherapy. In India, they are primarily used to determine clinical improvement in patients following intervention or for clinical audit purposes. However, clinical,
Thangamani Ramalingam Alagappan
doaj   +1 more source

Optimal functional outcome measures for assessing treatment for Dupuytren's disease: A systematic review and recommendations for future practice [PDF]

, 2013
This article is available through the Brunel Open Access Publishing Fund. Copyright © 2013 Ball et al.; licensee BioMed Central Ltd.Background: Dupuytren's disease of the hand is a common condition affecting the palmar fascia, resulting in progressive ...
Pratt, AL, Nanchahal, J, Jagdeep Nanchahal, Ball, C, Anna L Pratt, Catherine Ball   +5 more
core   +2 more sources

Solid Pseudopapillary Neoplasm of the Pancreas in Children and Adolescents: Expert Recommendations

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Solid pseudopapillary neoplasm of the pancreas (SPN) is a rare low‐grade malignant exocrine pancreatic tumor, mostly discovered during the second decade of life in females, with a very good prognosis, provided microscopically complete surgical excision is achieved.
Sabine Irtan, Michael Abele, Calogero Virgone, Michaela Kuhlen, Ricardo Lopez‐Almarez, Tal Ben‐Ami, Ewa Bien, Maja Cesen, Malgorzata A. Krawczyk, Andrea Ferrari, Gianni Bisogno, Yves Reguerre, Dominik T. Schneider, Louise Galmiche, Jorg Fuchs, Sarah Braungart, Bilgehan Yalcin, Ines B. Brecht, Daniel Orbach   +18 more
wiley   +1 more source

Relationship Between Objective Performance and Patient‐Reported Outcomes Measurement Information System Physical Function in Patients With Stroke

Journal of the American Heart Association: Cardiovascular and Cerebrovascular Disease
Background The relationship between self‐reported physical function (PF) and objective performance in patients with stroke remains unclear. This study explored how various self‐reported health domains influence the correlation between Patient‐Reported ...
Irene L. Katzan, Yadi Li, Maximos McCune, Brittany Lapin   +3 more
doaj   +1 more source