Results 251 to 260 of about 135,323 (303)

A core outcome set to assess chronic pain interference and impact on emotional functioning for children and young people with cerebral palsy

open access: yesDevelopmental Medicine &Child Neurology, EarlyView.
A core outcome set to assess chronic pain interference and impact on emotional functioning for children and young people with cerebral palsy. Plain language summary: https://onlinelibrary.wiley.com/doi/10.1111/dmcn.16377 Abstract Aim To: (1) develop a core outcome set (COS) to assess chronic pain interference and impact on emotional functioning for ...
Nadine L. Smith   +4 more
wiley   +1 more source

Autonomy in children and adolescents with visual impairment: Validation of the Visual Impairment Developmental Autonomy scale

open access: yesDevelopmental Medicine &Child Neurology, EarlyView.
Abstract Aim To validate the Visual Impairment Developmental Autonomy (VIDA) scale, a questionnaire to assess the autonomy level of children with visual impairment. Method The primary outcome measures included internal consistency, convergent validity, cross‐informant concordance, and descriptive statistics of autonomy profiles across three age groups (
Federica Morelli   +19 more
wiley   +1 more source

Bridging the conversational gap in epilepsy: Using large language models to reveal insights into patient behavior and concerns from online discussions

open access: yesEpilepsia, Volume 66, Issue 3, Page 686-699, March 2025.
Abstract Objective This study was undertaken to explore the experiences and concerns of people living with epilepsy by analyzing discussions in an online epilepsy community, using large language models (LLMs) to identify themes, demographic patterns, and associations with emotional distress, substance use, and suicidal ideation.
Uriel Fennig   +9 more
wiley   +1 more source

Do you have epilepsy, a seizure disorder, or neither? Patients' perception of their diagnosis in an epilepsy clinic

open access: yesEpilepsia, EarlyView.
Abstract Objective To explore how people with epilepsy self‐characterize their diagnosis as being epilepsy, a seizure disorder, or neither. Methods People diagnosed with epilepsy by epileptologists, responded to two questions: “do you have epilepsy?” and “do you have a seizure disorder?”. Demographic, clinical and patient‐reported outcome measures were
Farnaz Sinaei   +9 more
wiley   +1 more source

Measuring Physical Function Capacity in Persons With Haemophilia: A Systematic Review of Performance‐Based Methods

open access: yesHaemophilia, EarlyView.
ABSTRACT Introduction Currently, physical health assessments in persons with haemophilia focus on bleed‐related events and after‐effects. The aim of the systematic review was to review and apply standardised criteria to evaluate reliability, responsiveness and construct validity of performance‐based instruments evaluating physical capability in persons
Catherine Holdsworth   +9 more
wiley   +1 more source

Implementation contexts and strategies for alternative peripherally inserted central catheter material and design selection: A qualitative exploration using CFIR/ERIC approach

open access: yesJournal of Advanced Nursing, EarlyView.
Abstract Aim To explore the implementation contexts and strategies that influence the uptake and selection of alternative peripherally inserted central catheter (PICC) materials and design. Design Qualitative evaluation of end user perspectives within a randomized control trial of different PICC materials and design.
Deanne August   +8 more
wiley   +1 more source

Patient Reported Outcomes Measures (PROMs) in atopic dermatitis: perceptions and level of satisfaction. [PDF]

open access: bronze
Monika Fida   +16 more
openalex   +1 more source

Validation of the Hospital Survey on Patient Safety Culture 2.0 in Italian Hospitals: A Cross‐Sectional Study of Healthcare Personnel Perceptions

open access: yesJournal of Advanced Nursing, EarlyView.
ABSTRACT Aim(s) To adapt and validate the HSOPS 2 instrument for the Italian context and to describe the current patient safety culture amongst healthcare personnel working in Italian hospitals. Design Cross‐sectional study. Methods We adapted and validated the HSOPS 2 instrument following the COSMIN guidelines: we performed a forward‐backward ...
Annamaria Bagnasco   +15 more
wiley   +1 more source

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