Results 111 to 120 of about 11,226,138 (306)

Strategies to use tablet computers for collection of electronic patient-reported outcomes [PDF]

open access: yes, 2015
Background Mobile devices are increasingly being used for data collection in research. However, many researchers do not have experience in collecting data electronically.
Schick-Makaroff, Kara, Molzahn, Anita
core   +1 more source

Lorlatinib‐Containing Therapy for MYCN‐Amplified, ALK‐Mutated Neuroblastoma With Bulky Leptomeningeal Relapse: A Case Report

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Central nervous system (CNS) relapse of neuroblastoma carries a poor prognosis, and craniospinal irradiation (CSI) poses substantial long‐term toxicity in young children. We report a toddler with MYCN‐amplified neuroblastoma harboring somatic ALK R1275Q who developed extensive leptomeningeal relapse with paraplegia.
Jinwoo Kim   +11 more
wiley   +1 more source

Patient-reported outcomes in head and neck cancer: prospective multi-institutional patient-reported toxicity

open access: yes, 2018
M Sean Peach,1 Daniel M Trifiletti,2 Carolyn Vachani,3 Karen Arnold-Korzeniowski,3 Christina Bach,3 Margaret Hampshire,3 James M Metz,3 Christine E Hill-Kayser3 1Department of Radiation Oncology, University of Virginia, Charlottesville, VA, USA ...
Trifiletti DM   +7 more
core  

Uncovering Inequities: The Role of Social Determinants of Health in Hospitalized Adolescents and Young Adults With Heavy Menstrual Bleeding

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Background Heavy menstrual bleeding (HMB) is a common condition among adolescents and young adults (AYAs) and is the leading cause of iron deficiency anemia (IDA) in this population. Growing evidence suggests that social determinants of health (SDOH) influence menstrual bleeding patterns, access to care, and treatment. However, no studies have
Maria Carter‐Febres   +6 more
wiley   +1 more source

The effectiveness of the Nurse Care Coordinator role on patient-reported and health service outcomes: A systematic review [PDF]

open access: yes, 2017
This systematic review examined the effectiveness of nurse care coordinator roles on patient-reported and health service outcomes. Multiple electronic databases (Medline, CINAHL, EMBASE) were searched and the Cochrane Risk of Bias Assessment Tool was ...
Yates, Patsy   +2 more
core  

Therapeutic Apheresis in Nigeria: A Multi‐Center Summary of Abstracts From the Inaugural Nigerian Society for Apheresis Scientific Meeting

open access: yesTherapeutic Apheresis and Dialysis, EarlyView.
ABSTRACT Background Therapeutic apheresis (TA) is an established treatment modality for hematologic, neurologic, and immunologic disorders, yet access remains severely limited in sub‐Saharan Africa. Donor apheresis, including platelet apheresis collection from healthy donors, represents an important complementary modality supporting blood product ...
Nosa Bazuaye   +33 more
wiley   +1 more source

Field observation as a method to guide patient-reported outcome measurement integration in community cancer centers

open access: yesImplementation Science Communications
Background Field observation is a valuable but underused methodological approach in patient-reported outcomes (PRO) implementation research, particularly in low-resourced settings such as community cancer centers (CCCs). Rooted in ethnographic tradition,
Manraj N. Kaur   +7 more
doaj   +1 more source

Experience With Performing Rheocarna Therapy via the Single‐Needle Method for Treatment of Chronic Limb‐Threatening Ischemia

open access: yesTherapeutic Apheresis and Dialysis, EarlyView.
ABSTRACT Introduction This study investigated the safety and efficacy of single‐needle Rheocarna therapy for chronic limb‐threatening ischemia (CLTI) with wounds. Methods Six patients with CLTI involving ulcers unresponsive to revascularization underwent single‐needle Rheocarna treatment.
Yasutaka Yamauchi   +9 more
wiley   +1 more source

Development of a quality of life measure for left ventricular assist device recipients using a mixed methods approach

open access: yesESC Heart Failure
Background Left ventricular assist device (LVAD) recipients report symptom improvement but find adjusting to life with the LVAD challenging. These challenges are unique, and existing patient‐reported outcome measures (PROMs) do not reflect their ...
Anita L. Slade   +10 more
doaj   +1 more source

A systematic evaluation of compliance and reporting of patient-reported outcome endpoints in ovarian cancer randomised controlled trials: implications for generalisability and clinical practice

open access: yesJournal of Patient-Reported Outcomes, 2017
Background This study aimed to evaluate the patient-reported outcome (PRO) content of ovarian cancer randomised-controlled trial (RCT) publications, describe PRO compliance, and explore potential relationships among these and completeness of PRO protocol
Rebecca Mercieca-Bebber   +6 more
doaj   +1 more source

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