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Patient-reported outcomes in vasculitis
Best Practice & Research Clinical Rheumatology, 2023Systemic vasculitis encompasses a group of multisystem disorders; both the diseases and the treatment strategies can have a significant impact on a patient's health-related quality of life (HRQoL). Using patient-reported outcome measures (PROMs) and patient-reported experience measures (PREMs) to evaluate the patient's view of their condition ...
Helena Crawshaw +5 more
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Patient-reported Outcomes in Arthrogryposis
Journal of Pediatric Orthopaedics, 2020Background: Little is known about patient-reported health status in children and adolescents with arthrogryposis. Utilizing the Patient-Reported Outcome Measurement Information System (PROMIS) and Pediatric Outcomes Data Collection Instrument (PODCI) questionnaires, we investigated functional and psychosocial measures in ...
Lindley B, Wall +4 more
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Patient-Reported Outcomes in Lupus
Rheumatic Disease Clinics of North America, 2021Patient-reported outcome (PRO) was identified as a core systemic lupus erythematosus (SLE) outcome in 1999. More than 20 years later, however, generic PRO measures evaluating impact in SLE are used mainly for research. Generic and disease-targeted PRO tools have unique advantages.
Narender, Annapureddy, Meenakshi, Jolly
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Patient‐reported outcomes and patient voices
Seminars in Dialysis, 2022AbstractOnline hemodiafilration (HDF) treatment may be associated with better quality of life due to improved clearance of middle‐molecular‐weight uremic toxins and hemodynamic stability in dialysis patients, in addition to better overall survival.
Asci, Gulay, Ok, Ercan
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B&G Bewegungstherapie und Gesundheitssport, 2020
ZusammenfassungBewegungs- und sporttherapeutische Maßnahmen bilden einen festen Therapiebestandteil im Rahmen der multidisziplinären Rehabilitation von alkoholabhängigen Menschen. Dies begründet sich aus den suchtbedingten Folgen im physischen, psychischen und sozialen Bereich.
Hubertus Deimel, Chloé Chermette
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ZusammenfassungBewegungs- und sporttherapeutische Maßnahmen bilden einen festen Therapiebestandteil im Rahmen der multidisziplinären Rehabilitation von alkoholabhängigen Menschen. Dies begründet sich aus den suchtbedingten Folgen im physischen, psychischen und sozialen Bereich.
Hubertus Deimel, Chloé Chermette
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Patient-Reported Outcomes in Myositis
Rheumatic Disease Clinics of North AmericaIdiopathic inflammatory myopathies (IIM) impact patients' lives in diverse and complex ways beyond their muscle weakness. Patient-reported outcomes (PROs), which directly measure patients' daily experience with IIM without interpretation of care providers, are crucial to assess the real-world impact of IIM.
Jin Kyun, Park, Christopher A, Mecoli
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Interpretation of patient-reported outcomes
Statistical Methods in Medical Research, 2013A patient-reported outcome is any report on the status of a patient’s health condition that comes directly from the patient. Clear and meaningful interpretation of patient-reported outcome scores are fundamental to their use as they can be valuable in designing studies, evaluating interventions, educating consumers, and informing health policy makers ...
Joseph C, Cappelleri +1 more
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Patient-Reported Outcomes in Asthma
The Journal of Allergy and Clinical Immunology: In PracticeFood and Drug Administration's Center for Drug Evaluation and Research defines patient-reported outcomes as "any report of the status of a patient's health condition, health behavior, or experience with healthcare that comes directly form the patient, without interpretation of the patient's response by a clinician or anyone else." Validated patient ...
Giselle Mosnaim +5 more
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