Advance care planning for paediatric patients [PDF]
Medical and technological advances have increased survival rates and enhanced the quality of life for infants, children and youths with chronic life-threatening conditions. Advance care planning includes the process of discussing life-sustaining treatments and establishing long-term care goals.
openaire +2 more sources
RAB39B Related Parkinsonism in an Italian Family: A Unique Use of Advanced Therapies
ABSTRACT Parkinson's disease (PD) is a neurodegenerative disorder that may sometimes be caused by deleterious genetic variants. Among them, RAB39B polymorphisms are known as rare causes of early‐onset PD associated with intellectual disability (Waisman's syndrome).
Caterina Del Regno +13 more
wiley +1 more source
Ludic representations of nursing technicians about the systematization of nursing care
The objective was to describing the ludic representations of nursing technicians about the Systematization of Nursing Care. This is a clipping of a phenomenological investigation results.
Pétala Tuani Candido de Oliveira Salvador +1 more
doaj +1 more source
Palliative care and Parkinson's disease : meeting summary and recommendations for clinical research [PDF]
Introduction: Palliative care is an approach to caring for patients and families affected by serious illnesses that focuses on the relief of suffering through the management of medical symptoms, psychosocial issues, advance care planning and spiritual ...
Bekelman, David +17 more
core +1 more source
Amyotrophic Lateral Sclerosis Prevalence Projection in 2040: A Less Rare Disease
ABSTRACT Objective To project ALS prevalence across multiple countries through 2040, accounting for both population aging and increased survival. Methods Data from the Piemonte and Valle d'Aosta ALS register (PARALS) was used to estimate the trends in incidence and prevalence from 2005 to 2019. Survival trends over this period were also assessed.
Rosario Vasta +18 more
wiley +1 more source
Analisis Pengetahuan Konsep Discharge Planning Mahasiswa Keperawatan Universitas Muhammadiyah Malang [PDF]
ANALISIS PENGETAHUAN KONSEP DISCHARGE PLANNING MAHASISWA KEPERAWATAN UNIVERSITAS MUHAMMADIYAH MALANGDischarge Planning Concept Knowledge Analysis Amongst Nursing Students of Muhammadiyah University of MalangIndah Dwi PratiwiProgram Studi Ilmu Keperawatan
Pratiwi, I. D. (Indah)
core
A collaborative platform for management of chronic diseases via guideline-driven individualized care plans [PDF]
Older age is associated with an increased accumulation of multiple chronic conditions. The clinical management of patients suffering from multiple chronic conditions is very complex, disconnected and time-consuming with the traditional care settings ...
Arvanitis, Theodoros N. +22 more
core +1 more source
ABSTRACT Background There is growing recognition of the potential of plasma proteomics for Alzheimer's Disease (AD) risk assessment and disease characterization. However, differences between proteomics platforms introduce uncertainties regarding cross‐platform applicability.
Manyue Hu +9 more
wiley +1 more source
Insights Into the Antigenic Repertoire of Unclassified Synaptic Antibodies
ABSTRACT Objective We sought to characterize the sixth most common finding in our neuroimmunological laboratory practice (tissue assay‐observed unclassified neural antibodies [UNAs]), combining protein microarray and phage immunoprecipitation sequencing (PhIP‐Seq). Methods Patient specimens (258; 133 serums; 125 CSF) meeting UNA criteria were profiled;
Michael Gilligan +22 more
wiley +1 more source
Network Localization of Fatigue in Multiple Sclerosis
ABSTRACT Background Fatigue is among the most common symptoms and one of the main factors determining the quality of life in multiple sclerosis (MS). However, the neurobiological mechanisms underlying fatigue are not fully understood. Here we studied lesion locations and their connections in individuals with MS, aiming to identify brain networks ...
Olli Likitalo +12 more
wiley +1 more source

