Exploratory Analysis of ELP1 Expression in Whole Blood From Patients With Familial Dysautonomia
ABSTRACT Background Familial dysautonomia (FD) is a hereditary neurodevelopmental disorder caused by aberrant splicing of the ELP1 gene, leading to a tissue‐specific reduction in ELP1 protein expression. Preclinical models indicate that increasing ELP1 levels can mitigate disease manifestations.
Alejandra González‐Duarte +13 more
wiley +1 more source
Developing an implementation intervention, and identifying strategies for integrating health innovations in routine practice: A case study of the implementation of an insulin patient decision aid. [PDF]
Tong WT, Lee YK, Ng CJ, Lee PY.
europepmc +1 more source
Evaluation of a Novel Hospice-Specific Patient Decision Aid. [PDF]
Tate CE +8 more
europepmc +1 more source
Use of Adaptive Conjoint Analysis-Based Values Clarification in a Patient Decision Aid Is Not Associated with Better Perceived Values Clarity or Reduced Decisional Conflict but Enhances Values Congruence. [PDF]
Yılmaz NG +5 more
europepmc +1 more source
Development of a patient decision aid for children and adolescents following anterior cruciate ligament rupture: an international mixed-methods study. [PDF]
Gamble AR +12 more
europepmc +1 more source
Related searches:
Problem with patient decision aids
BMJ Evidence-Based Medicine, 2020Patient decision aids are evidence-based tools designed to help patients make specific and deliberated choices among healthcare options. Research shows that patient decision aids increase knowledge, accuracy of risk perceptions, alignment of care with patient values and preferences, and patient involvement in decision making. Some patient decision aids
Joshua R Zadro +3 more
openaire +2 more sources
Digital Patient Education and Decision Aids
Rheumatic Disease Clinics of North America, 2019New technologies can do more than just digitize health information; they can support multimedia platforms for patient education and health decision support. Technology can simplify the way health decisions are made by offering quick access to a vast amount of information that can be tailored to specific populations. Digital tools can increase knowledge
Maria A, Lopez-Olivo +1 more
openaire +2 more sources
Legal Briefing: Shared Decision Making and Patient Decision Aids
The Journal of Clinical Ethics, 2013This "Legal Briefing" column covers recent legal developments involving patient decision aids.This topic has been the subject of recent articles in JCE. It is included in the 2010 Patient Protection and Affordable Care Act. And it has received significant attention in the biomedical literature, including a new book, a thematic issue of Health Affairs ...
Thaddeus Mason, Pope, Melinda, Hexum
openaire +2 more sources

