Results 191 to 200 of about 3,451,766 (282)

Silence around SUDEP and its impact on caregivers of individuals with developmental and epileptic encephalopathies: An international survey

Epilepsia Open, EarlyView.
Abstract Objective Sudden Unexpected Death in Epilepsy (SUDEP) is the leading cause of epilepsy‐related mortality, particularly in individuals with Developmental and Epileptic Encephalopathies (DEEs). The goal of this work is to assess SUDEP‐related knowledge, information practices, emotional and psychological impact, and the use of preventive measures
José Ángel Aibar, Ana Cantó Martínez, David Alarcón Alarcón, Eulalia Turón‐Viñas, Rima Nabbout, Isabella Brambilla, Franck Kalume, Danielle Andrade, Simona Giorgi   +8 more
wiley   +1 more source

Empowerment in medicine: An analysis of publication trends 1980–2005

Open Medicine, 2008
Loukanova Svetla, Bridges John
doaj   +1 more source

Knowledge, attitudes, and proactive practices regarding PICC in gastrointestinal cancer: a mediation analysis of a patient empowerment attempt. [PDF]

Front Med (Lausanne)
Wei M, Liu C, Zhuang S.
europepmc   +1 more source

Prepare, don't scare: Rethinking cognitive readiness before epilepsy surgery

Epilepsia Open, EarlyView.
Abstract Epilepsy surgery is an effective but underutilized treatment for drug‐resistant epilepsy, and concerns about postsurgical cognitive change are a prominent barrier. Refinements in surgical technique can reduce cognitive impact, but cognitive change cannot always be avoided, and approaches carrying lower cognitive risk are often less effective ...
Kayela Arrotta, Sofia Lesica, Hien Luu, Sallie Baxendale   +3 more
wiley   +1 more source

Mediation analysis of adherence to pelvic floor muscle training and weekly self-monitoring on urinary symptoms in men with localized prostate cancer A secondary analysis of the Prostate Cancer-Patient Empowerment Program (PC-PEP) randomized controlled trial. [PDF]

Can Urol Assoc J
Chedrawe E, Smith NK, Ilie G, Rendon RA, Mason R, Kokorovic A, MacDonald C, Patil N, Bowes D, Bailly G, Abou-Samra E, Bourne A, Hagerman LP, Rutledge R.   +13 more
europepmc   +1 more source

Reversal of refractory epilepsy in an adult with GAMT deficiency: A case report and comparative literature review

Epilepsia Open, EarlyView.
Abstract Objective Guanidinoacetate methyltransferase (GAMT) deficiency is a rare autosomal recessive creatine biosynthesis disorder. Reports specifically focusing on adult patients remain scarce. Methods We report a 52‐year‐old female (the oldest documented case of GAMT deficiency to date) presenting with severe intellectual disability, refractory ...
Wei‐Hung Sung, Hsi Chen, Che‐Wei Hsu, Meng‐Han Tsai   +3 more
wiley   +1 more source

Evaluating the cost-effectiveness of the Prostate Cancer Patient Empowerment Program A comprehensive health economic analysis from a randomized controlled trial. [PDF]

Can Urol Assoc J
Nuyens A, Ilie G, Rendon RA, Mason RJ, Hajizadeh M, Koto PS, Foley M, Kokorovic A, Patil N, Bowes D, Bailly G, Wilke D, MacDonald C, Rutledge RDH.   +13 more
europepmc   +1 more source

From Lived Experience to Digital Advocacy: Eating Disorder Recovery Content Creation on Social Media

European Eating Disorders Review, EarlyView.
ABSTRACT Objective Despite the importance of incorporating individuals with lived experience in the collaborative development and delivery of eating disorder (ED) services, a paucity of research has addressed the role of content creators with lived experience within the context of social media in contributing to help‐seeking and recovery spaces.
Albano Gaia, Mariarita Semola, Orsola Maneri, Vittoria Franchina, Salvatore Gullo, Rachel Rodgers, Gianluca Lo Coco   +6 more
wiley   +1 more source

‘We Need Help Too’—The Forgotten Stakeholders: Exploring the Needs of Carers During Their Young Persons' Transition From Child to Adult Eating Disorder Services

European Eating Disorders Review, EarlyView.
ABSTRACT Background Carers are essential in their young person's recovery during transition from child to adult eating disorder services. Despite recommendations, carer's own needs can be overlooked in transition planning. Subsequently, carers experience distress in supporting their young person and navigating the transition.
Isabel Lenham, Maria Livanou, Anya Heneghan, Grace Hill, Alanta McKenzie, Marta Marlais, Francesca Marshall, Zara Smalley, Eleni Xanthopoulou, Nora Kornai, Jessica Wilks, Ailsa McKay, Jun Teh, Julian Baudinet   +13 more
wiley   +1 more source

Aftasten/Tantear: A sensorial, coalitional wayfinding among Muslim runners

Feminist Anthropology, EarlyView.
Abstract Muslim recreational runners in Muslim‐minority settings that take up running as their preferred form of leisure indicate that they feel they have to navigate a sense of exclusion when running outdoors. This article explores the process of exploration and sensing in public, represented by the Dutch verb aftasten, to investigate the way Muslim ...
Jasmijn Rana
wiley   +1 more source