Results 231 to 240 of about 237,279 (294)

Evaluating the impact of an AI‐powered chatbot on epilepsy education and stigma reduction: A pre‐post intervention study using EpiloBot

Epilepsia Open, EarlyView.
Abstract Objective Effective epilepsy management requires accurate epilepsy knowledge, active patient engagement, and stigma reduction to improve health outcomes. Educational interventions have been shown to enhance patients' quality of life (QOL) and knowledge. This study evaluated the effectiveness of EpiloBot, an artificial intelligence (AI)‐powered
Izumi Kuramochi, Ryoya Oba, Naoki Nozawa, Tomoki Ishihara, Koko Oga, Takayuki Iwayama, Takafumi Shiganami, Sayaka Kobayashi, Hironori Kuga, Haruo Yoshimasu, Keiichi Watanuki   +10 more
wiley   +1 more source

Person-Centred Diabetes Care: Examining Patient Empowerment and Diabetes-Specific Quality of Life in Slovenian Adults with Type 2 Diabetes. [PDF]

Healthcare (Basel)
Virtič Potočnik T, Ružić Gorenjec N, Mihevc M, Zavrnik Č, Mori Lukančič M, Poplas Susič A, Klemenc-Ketiš Z.   +6 more
europepmc   +1 more source

Perspectives on the burden of drug‐resistant epilepsy and treatment priorities: Findings from a multistakeholder survey

Epilepsia Open, EarlyView.
Abstract Objective Drug‐resistant epilepsy (DRE) imposes a significant burden on patients and their caregivers. This study aimed to explore the concerns and perceptions of healthcare providers (HCPs), patients, and caregivers regarding the burden of disease and quality of life (QoL) in patients with DRE.
Simona Lattanzi, Bettina Schmitz, Nuno Canas, John Paul Leach, Caroline Benoist, Daniela Pierucci, Elena Álvarez‐Barón   +6 more
wiley   +1 more source

The Cancer Patient Empowerment Program: A Comprehensive Approach to Reducing Psychological Distress in Cancer Survivors, with Insights from a Mixed-Model Analysis, Including Implications for Breast Cancer Patients. [PDF]

Cancers (Basel)
Ilie G, Knapp G, Davidson A, Snow S, Dahn HM, MacDonald C, MacDonald C, Tsirigotis M, Rutledge RDH.   +8 more
europepmc   +1 more source

Practical consensus recommendations for polytherapy involving stiripentol in Dravet syndrome: A nominal group approach

Epilepsia Open, EarlyView.
Abstract Objectives Dravet syndrome (DS) is a drug‐resistant developmental and epileptic encephalopathy, often requiring three or more antiseizure medications (ASMs). Consequently, the therapeutic landscape is highly complex, combining DS‐specific agents (stiripentol, STP; cannabidiol, CBD; fenfluramine, FFA), non‐specific ASMs, and non‐pharmacologic ...
J. Helen Cross, Rima Nabbout, Barry Gidal, Joseph Sullivan, Elaine Wirrell   +4 more
wiley   +1 more source

ILAE dietary treatments task force special report: Maternal ketogenic diet exposure in epilepsy pregnancy registries—A call to action

Epilepsia Open, EarlyView.
Abstract Ketogenic dietary therapies (KDTs) are increasingly used worldwide as a non‐pharmacological treatment for epilepsy, including among people of childbearing potential. In many cases, KDTs allow for the reduction of antiseizure medications (ASMs) and lower drug exposure during pregnancy.
Magnhild Kverneland, Valentina De Giorgis, Laura Healy, Kelly Faltersack, Tanya J. W. McDonald, Marisa Armeno, Mackenzie C. Cervenka, Anita Devlin   +7 more
wiley   +1 more source

CAREPATH Patient Empowerment Platform

This deliverable provides the Patient Empowerment Platform Prototype ready to be integrated with final CAREPATH solution.
openaire   +1 more source

‘That's Not Our Pathway’: Parent and Carer Experiences of Eating Disorder Focused Family Therapy (FT‐ED) for Autistic Young People With Anorexia Nervosa

European Eating Disorders Review, EarlyView.
ABSTRACT Objective Autistic people report poorer treatment outcomes for their eating disorder (ED) in comparison to non‐autistic peers. Eating disorder focused family therapy (FT‐ED) is the leading outpatient intervention for adolescents with Anorexia Nervosa (AN). The aim of this study was to explore the experiences of parents of autistic young people
Emy Nimbley, Imogen Peebles, Rachel Loomes, Emma Clark, Amelia Austin, Fiona Duffy   +5 more
wiley   +1 more source

Are Mental Health Symptoms of Parents of Young People Accessing Treatment for Eating Disorders Associated With Accommodating and Enabling Behaviours?

European Eating Disorders Review, EarlyView.
ABSTRACT Background Parental and family factors influence treatment outcomes of adolescents with eating disorders (EDs), particularly in family‐based interventions. However, little is known about how parental mental health is associated with well‐established factors that influence treatment outcomes.
Daniel Wilson, Renata A. Mendes, Natalie J. Loxton, James G. Scott, Lieve Leering, Govind Krishnamorthy, Jacinda White   +6 more
wiley   +1 more source

When Rare Is Not Small: Amyotrophic Lateral Sclerosis Initiatives and Therapy

Exploration, EarlyView.
In the precision‐medicine era, rare diseases must not be sidelined in translational infrastructure. The Mr. Cai Lei—led “Ice‐Breaking Team” turns an amyotrophic lateral sclerosis patient community into a sustainable ecosystem, realigning philanthropy, data, and research and development to reshape rare‐disease pipelines and guide precision therapies ...
Yang Liu, Xue Xia, Yingfang Chen, Haoying Yang, Xiaochen Chen, Lei Cai, Bingyang Shi   +6 more
wiley   +1 more source