Results 1 to 10 of about 237,681 (118)
Patient Preferences in Neuromuscular Diseases: Insights for Future Drug Development [PDF]
Incorporating patient preferences into drug development is crucial, particularly, for rare diseases with significant unmet needs. This study used Best‐Worst Scaling type 2 (BWS‐2) to explore benefit–risk trade‐offs for patients and caregivers in two rare
Aura Cecilia Jimenez‐Moreno +10 more
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Patient Experiences With Thyroid Nodules: A Qualitative Interview Survey
Objective To qualitatively explore the broad set of preferences and attitudes patients have about thyroid nodules, which influence the decision‐making process. Study Design A descriptive survey design was administered as interviews.
Matthew R. Naunheim +6 more
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Patient Centricity in Patient Preference Studies: The Patient Perspective
Objectives: A factor contributing to the value of patient preference studies is patient centricity. This study aimed to explore how patients want to be involved in the design and conduct of patient preference studies.
Eline van Overbeeke +3 more
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Background Multiple Myeloma (MM) is a cancer characterised by the proliferation of malignant plasma cells in the bone marrow. This study examined the treatment preferences of people living with MM compared to the treatment preferences of other groups ...
Simon J. Fifer +4 more
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Background Guidelines based on patient preferences differ from those developed solely by clinicians and may promote patient adherence to guideline recommendations. There is scant evidence on how to develop patient-informed guidelines. This study aimed to
Jayden Blackwood +7 more
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Teaching Shared Decision Making to Undergraduate Medical Students
Despite the wide endorsement of shared decision making (SDM), its integration into clinical practice has been slow. In this paper, we suggest that this integration may be promoted by teaching SDM not only to residents and practicing physicians, but also ...
Meira Tidhar, Jochanan Benbassat
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Preventive drugs for Huntington’s disease: A choice-based conjoint survey of patient preferences
Introduction: This research examined the perspective of the Huntington’s disease (HD) community regarding the use of predictive biomarkers as endpoints for regulatory approval of therapeutics to prevent or delay the onset of clinical HD in asymptomatic ...
Marcus C. Parrish +3 more
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Brazilian breast cancer patient-reported outcomes: What really matters for these women
IntroductionPatient-Reported Outcomes (PRO) are directly reported by the patient without interpretation of the patient's response by a clinician or anyone else and pertains to the patient's health, quality of life, or functional status associated with ...
Aline Silveira Silva +7 more
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Yonas Gurmu Department of Nursing, College of Medicine & Health Sciences, Ambo University, Ambo, EthiopiaCorrespondence: Yonas Gurmu, Department of Nursing, College of Medicine & Health Sciences, Ambo University, P. O.
Gurmu Y
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Ian P Smith,1,* Mirko Ancillotti,2,* Esther W de Bekker-Grob,3,4 Jorien Veldwijk2– 4 1Julius Center for Health and Primary Care, University Medical Center Utrecht, Utrecht, the Netherlands; 2Centre for Research Ethics and Bioethics, Department of
Smith IP +3 more
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