Results 181 to 190 of about 700,979 (308)

Burden of Myasthenia Gravis in the Czech Republic: Analysis of the Nationwide Patient Registry. [PDF]

Neurol Ther
Voháňka S, Tichopád A, Horáková M, Junkerová J, Jakubíková M, Piťha J, Týblová M, Vlažná D, Breciková K, Cudny J, Hájek P.   +10 more
europepmc   +1 more source

Increased understanding of atypical haemolytic uraemic syndrome (aHUS): characteristics of patients recruited into the global aHUS registry [PDF]

, 2014
Ardissimo, Gianluigi, Ariceta, Gema, Cohen, David, Frémeaux-Bacchi, Véronique, Greenbaum, Larry A, Johnson, Sally, Licht, Christoph, Ogawa, Masayo, Schaefer, Franz, Vande Walle, Johan   +9 more
core  

Preferences for post‐traumatic osteoarthritis prevention strategies in individuals with anterior cruciate ligament injury

Arthritis Care &Research, Accepted Article.
Objectives There is growing interest in evaluating new strategies to delay or prevent post‐traumatic osteoarthritis (PTOA) in individuals who have sustained anterior cruciate ligament (ACL) injury. This study sought to determine characteristics of potential treatments that are acceptable to patients with ACL injury.
Kevin Kennedy, Lily Waddell, Adam Easterbrook, Jeffrey N. Katz, Cale Jacobs, Morgan Jones, Faith Selzer, Elena Losina, Liana Fraenkel, Nick Bansback   +9 more
wiley   +1 more source

The PKU Patient Registry: Development of a patient-driven registry and initial outcomes

Molecular Genetics and Metabolism
Kelsey McQueen, Lauren Youngborg, Christine S. Brown, Eileen M. Blakely, Olaf Bodamer, Rhonda Connolly, Kathryn D. Moseley, Elaina Jurecki, Susan A. Berry   +8 more
openaire   +1 more source

Accuracy of Diagnostic Codes and Algorithms Used to Identify Rheumatoid Arthritis and Juvenile Idiopathic Arthritis in Administrative Claims and Electronic Health Records: Systematic Review and Meta‐Analysis

Arthritis Care &Research, EarlyView.
Objective This systematic review aimed to assess the diagnostic accuracy of algorithms used to identify rheumatoid arthritis and juvenile idiopathic arthritis in electronic health records. Methods We searched Medline, Embase, and Cochrane Central Register for Controlled Trials databases and included studies that validated case definitions against a ...
Constanza Saka‐Herrán, Jessica Bennett, Yara Alkabti, Muhammad Fatir, Barbara Clyne, Caroline McCarthy, Gráinne Tynan, Nikki Dunne, Michelle Flood, Eoghan McCarthy, Frank Moriarty   +10 more
wiley   +1 more source

Methicillin-resistant <i>Staphylococcus aureus</i> and pulmonary outcome in people with cystic fibrosis: a European Cystic Fibrosis Patient Registry data analysis. [PDF]

ERJ Open Res
Mei-Zahav M, Dotan M, Annicchiarico L, Orenti A, Prais D.   +4 more
europepmc   +1 more source

Financial Distress and Its Determinants in Rheumatoid Arthritis

Arthritis Care &Research, EarlyView.
Objective To quantify the degree of financial distress and identify its determinants in adults with rheumatoid arthritis (RA) given the frequent prolonged use of expensive disease‐modifying therapies. Methods We identified adults enrolled in the FORWARD databank with either RA or noninflammatory musculoskeletal disease (NIMSKD) completing the ...
Amber Brown Keebler, Yunju Im, Sofia Pedro, Ted R. Mikuls, Edward S. Peters, Kaleb Michaud   +5 more
wiley   +1 more source

Occupational and Hobby Exposures Associated With Myositis Phenotypes in a National Myositis Patient Registry. [PDF]

Arthritis Care Res (Hoboken)
Parks CG, Wilkerson J, Rose KM, Faiq A, Farhadi PN, Bayat N, Schiffenbauer A, Brunner HI, Goldberg B, Sandler DP, Miller FW, Rider LG.   +11 more
europepmc   +1 more source

Testing a Personalized Approach to Chronic Low Back Pain: A Randomized Controlled Trial in Older Veterans

Arthritis Care &Research, EarlyView.
Objective We aimed to test the efficacy of personalized treatment of older veterans with chronic low back pain (CLBP) delivered by Aging Back Clinics (ABCs) as compared with usual care (UC). Methods Two hundred ninety‐nine veterans aged 65 to 89 with CLBP from three Veterans Affairs (VA) medical centers underwent baseline testing, randomization to ABC ...
Debra K. Weiner, Angela Gentili, Meika A. Fang, Edward Garay, Laura Lawson, Lenore Joseph, Cathy C. Lee, Michelle I. Rossi, Beverly Thorn, Subashan Perera   +9 more
wiley   +1 more source

Stakeholders' Perspectives Toward the Use of Patient Registry Data for Decision-Making on Medicines: A Cross-Sectional Survey. [PDF]

Drug Saf
Windfuhr F, de Vries ST, Melinder M, Dahlqvist T, Almeida D, Sepodes B, Torre C, Wettermark B, Mol PGM.   +8 more
europepmc   +1 more source