Results 261 to 270 of about 700,979 (308)
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Review of patient registries in dermatology
Journal of the American Academy of Dermatology, 2016Patient registries are datasets containing information on patients with a particular disease or patients who are undergoing a specific treatment.Our objective was to search for and catalog the types of registries being used in dermatology and investigate their characteristics and uses.We searched Google, the Registry of Patient Registries, Orphanet ...
Gabriella, DiMarco +2 more
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Registries of immunodeficiency patients and mutations
Human Mutation, 1997Immunodeficiencies form a distinct group of human hereditary diseases with several rare disorders. During recent years, information has been collected concerning immunodeficiency patients and mutations causing disorders. The large European (ESID) registry contains clinical data for some 7,000 patients.
I, Lappalainen +3 more
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2015
Patient registries collect, analyze and disseminate data and information on a group of people defined by a particular disease, condition, exposure or health-related service. Key principles: •Registries serve a predetermined scientific, clinical or/and public health (policy) purpose - the improvement of patient care and healthcare planning as well as ...
Poljičanin, Tamara +2 more
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Patient registries collect, analyze and disseminate data and information on a group of people defined by a particular disease, condition, exposure or health-related service. Key principles: •Registries serve a predetermined scientific, clinical or/and public health (policy) purpose - the improvement of patient care and healthcare planning as well as ...
Poljičanin, Tamara +2 more
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MDS patient registries - achievements and challenges
Annals of HematologySince the late 1980s, patient registries have played a pivotal role in the elucidation of rare diseases. For myelodysplastic syndromes (MDS), they revealed the disease actually to be diverse rather than rare. Registry data enabled the definition of various MDS subtypes and prognostic scores tailoring therapy. These classifications have been revised and
Tilman, Steinmetz +5 more
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New registry: National Cancer Patient Registry--Colorectal Cancer.
The Medical journal of Malaysia, 2009Colorectal cancer is emerging as one of the commonest cancers in Malaysia. Data on colorectal cancer from the National Cancer Registry is very limited. Comprehensive information on all aspects of colorectal cancer, including demographic details, pathology and treatment outcome are needed as the management of colorectal cancer has evolved rapidly over ...
L, Wendy, M, Radzi
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The benefits of patient-centered patient registries.
Journal of Clinical Oncology, 2017e21625 Background: Created in 2001, The Lift Raft Group GIST Patient Registry has always put the patient at the heart of its work. Those contributing data are not merely study participants but people in need of help. In 2017, the newest evolution of the Registry debuts- GIST/PRIME, an interactive desktop/mobile application that serves both the ...
Michelle Durborow +4 more
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Trauma Patient Followup Registry
1987Abstract : The goal of this project has been to explore and document the information management capabilities needed to develop a transportable spartan but automated patient care record for trauma patients which would be a model for a comparable system to be used in the echelons of care employed by military operational medicine and for which the Fleet ...
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Patient Registries: Utility, Validity and Inference
2010Patient registries are essential tools for public health surveillance and research inquiry, and are a particularly important resource for understanding rare diseases. Registries provide consistent data for defined populations and can support the study of the distribution and determinants of various diseases.
Rachel, Richesson, Kendra, Vehik
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Budapest Registry of Self-poisoned patients
Mutation Research/Environmental Mutagenesis and Related Subjects, 1994The majority of persons attempting suicide are young (peak in the 17-19 age group), female (68%), otherwise healthy, and use chemicals for this purpose (self-poisoning); 98% of these persons survive. Thus, survivors of self-poisoning present a unique model for the study of somatic and germinal mutagenic effects of large doses of chemicals in human ...
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