Results 81 to 90 of about 10,730,196 (305)

The SOS-SAH questionnaire in clinical practice: a multi-method evaluation study

BMC Neurology, 2023
Background In patients with mild disabilities after aneurysmal subarachnoid hemorrhage (aSAH), invisible symptoms might be easily overlooked during consultations in the outpatient clinic.
E. Nobels-Janssen, I. L. Abma, I. R. de Ridder, R. H. L. Haeren, M. H. Hertog, D. Nanda, B. van der Pol, W. I. M. Verhagen, R. H. M. A. Bartels, P. J. van der Wees, H. D. Boogaarts   +10 more
doaj   +1 more source

The future of measuring patient‐reported outcomes in rheumatology: Patient‐Reported Outcomes Measurement Information System (PROMIS) [PDF]

Arthritis Care & Research, 2011
The National Institutes of Health (NIH) Patient-Reported Outcomes Measurement Information System (PROMIS®) Roadmap initiative (www.nihpromis.org) is a cooperative research program designed to develop, evaluate, and standardize item banks to measure patient-reported outcomes (PROs) across different medical conditions as well as the US population (1 ...
Khanna, Dinesh, Krishnan, Eswar, Dewitt, Esi Morgan, Khanna, Puja P., Spiegel, Brennan M. R., Hays, Ron D.   +5 more
openaire   +3 more sources

Bone Mineral Density After Contemporary Treatment for Acute Lymphoblastic Leukaemia: A Matched Cross‐Sectional Study

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Reduced bone mineral density (BMD) has been reported in survivors of childhood and young adult acute lymphoblastic leukaemia (ALL); however, data from cohorts treated with contemporary protocols and including matched controls remain limited.
Karen Schow Jensen, Mette Tiedemann Skipper, Niels Holtum Birkebæk, Kjeld Schmiegelow, Thomas Leth Frandsen, Bente Langdahl, Rikke Beck Jensen, Asger Roer Pedersen, Christian Mølgaard, Liv Andrés‐Jensen, Birgitte Klug Albertsen   +10 more
wiley   +1 more source

Psychometric properties of the Czech Integrated Palliative Outcome Scale: reliability and content validity analysis

BMC Palliative Care, 2020
Background Outcome measurement is an essential part of the evaluation of palliative care and the measurements need to be reliable, valid and adapted to the culture in which they are used.
Karolina Vlckova, Eva Hoschlova, Eva Chroustova, Martin Loucka   +3 more
doaj   +1 more source

Patient-reported outcome measures in functional dyspepsia: a systematic review and COSMIN analysis

BMC Gastroenterology, 2023
Background Functional dyspepsia (FD) as a type of disorders of brain-gut interaction (DBGI), patient self-reporting of its symptoms becomes an important component of clinical outcome assessment.
Xinai Wang, Yan Fei, Wenjing Li, Hao Liu, Hongling Xiao, Yaxuan Wu, Chenqi Wang   +6 more
doaj   +1 more source

Parents of Youth With Cancer Report on Their Psychosocial Care: iSTEPPP Survey Finds Alignment and Gaps With Standards

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background The Standards for Psychosocial Care for Children with Cancer and Their Families guide the provision of comprehensive psychosocial care. Parallel to research characterizing implementation of the Standards from the perspective of providers, this study examines implementation of the Standards from the perspective of parents of youth ...
Emily M. Pariseau, Kimberly Buff, Michele A. Scialla, Kimberly S. Canter, Lori Wiener, Victoria Sardi‐Brown, Julia B. Tager, Kamyar Arasteh, Anne E. Kazak   +8 more
wiley   +1 more source

Transition of care in a Danish context: translation, cross-cultural adaptation and content validation of CTM-15 and PACT-M

Journal of Patient-Reported Outcomes
Background Transition of care from hospitalisation to home is a complex process with potential patient safety risks, especially for patients with multimorbidity.
Merete Ajstrup, Caroline Trillingsgaard Mejdahl, David Høyrup Christiansen, Lene Kongsgaard Nielsen   +3 more
doaj   +1 more source

Chemotherapy for Spinal Cord Intramedullary Pediatric Low‐Grade Glioma—A Systematic Literature Review

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Pediatric intramedullary low‐grade gliomas (PIMLGGs) are rare neoplasms that present unique clinical and management challenges. Although surgery remains the primary tool for tissue diagnosis and decompression, complete gross‐total resection is frequently unfeasible due to the infiltrative nature of these lesions.
Olga M. Sergeenko, Segev Gabay, Jonathan Roth, Amit Ringel, Rina Dvir, Shlomi Constantini   +5 more
wiley   +1 more source

Validation of a Patient-Reported Outcome Measure for Moist Desquamation among Breast Radiotherapy Patients

, 2022
There has been an increasing interest in patient-reported outcome (PRO) measures in both the clinical and research settings to improve the quality of life among patients and to identify when clinical intervention may be needed.
Olson, Robert, Terry Lee, Joel Singer, Lee, Terry, Josslynn Spence, Koulis, Theodora, Singer, Joel, Elisa K. Chan, Levi Burns, Theodora Koulis, Burns, Levi, Spence, Josslynn, David Morris, Lee, Terry C. K., Cheryl Duzenli, Robert A. Olson, Chan, Elisa K., Sheri Grahame, Morris, David, Grahame, Sheri, Duzenli, Cheryl, Olson, Robert A.   +21 more
core   +1 more source

Exercise Capacity, Physical Activity, Fatigue, and Neurocognitive Function in Adult Survivors of Childhood Acute Lymphoblastic Leukemia

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Adult survivors of childhood acute lymphoblastic leukemia (ALL) are at risk of reduced exercise capacity, decreased physical activity levels, persistent fatigue, and neurocognitive deficits. The aim was to investigate exercise capacity and physical activity levels of adult survivors of childhood ALL and their associations with ...
Laura Jess, Gustaf Glavå, Simon Skau, Hans‐Georg Kuhn, Maria Bäck, Marianne Jarfelt   +5 more
wiley   +1 more source