Results 101 to 110 of about 7,176,843 (353)

Patient and public perspectives on cell and gene therapies: a systematic review

Nature Communications, 2020
Cell and gene therapies offer opportunities for treating disease. Here, the authors conduct a systematic review of the evidence of patient and public perceptions of gene and cell therapies, and highlight the need for appropriate patient and public ...
Olalekan Lee Aiyegbusi, Karen Macpherson, Lauren Elston, Susan Myles, Jennifer Washington, Nisha Sungum, Mark Briggs, Philip N. Newsome, Melanie J. Calvert   +8 more
doaj   +1 more source

Characterizing Parental Concerns About Lasting Impacts of Treatment in Children With B‐Acute Lymphoblastic Leukemia

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background B‐acute lymphoblastic leukemia (B‐ALL) is the most common pediatric cancer, and while most children in high‐resource settings are cured, therapy carries risks for long‐term toxicities. Understanding parents’ concerns about these late effects is essential to guide anticipatory support and inform evolving therapeutic approaches ...
Kellee N. Parker, Sarah W. Alexander, Lisa M. Jacola, Kimberly A. Buff, Kyobin Hwang, Elham Hashemi, Gregory Stoddard, Lindsay A. Jibb   +7 more
wiley   +1 more source

Impact of tofacitinib on patient-reported outcomes in patients with psoriatic arthritis. Data from the real clinical practice

, 2022
L. D. Vorobyeva, Т. В. Коротаева, Е. Yu. Loginova, Yu. L. Kоrsakova, Е. Е. Gubar, Е. Л. Насонов   +5 more
openalex   +2 more sources

Effectiveness of Omeprazole in Acid Peptic Disease: A Real-World, Patient-Reported Outcome Measures Study [PDF]

, 2023
Suresh P. Jain, Sandeep Shamrao Kulkarni Sandeep Shamrao Kulkarni, Jyoti R Mahapatra, Dilip Todi, Anup Petare, Ritwik Banerjee, Rahul H. Rathod, Syed Yaseen Naqvi, Amey Mane, Gauri Dhanaki, Bhavesh P Kotak   +10 more
openalex   +1 more source

Clinical Characteristics and Prognostic Risk Factors for Pediatric B‐Cell Lymphoblastic Lymphoma: A Multicenter Retrospective Cohort Study for China Net Childhood Lymphoma

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background B‐cell lymphoblastic lymphoma (B‐LBL) represents a rare variety of non‐Hodgkin lymphoma, with limited research on its biology, progression, and management. Methods A retrospective analysis was performed on the clinical characteristics of 256 patients aged ≤18 years who received treatment under the China Net Childhood Lymphoma (CNCL)‐
Zhijuan Liu, Jian Wang, Ling Jin, Yanlong Duan, Fu Li, Yueping Jia, Leping Zhang, Xiaojun Yuan, Wei Liu, Ying Liu, Ansheng Liu, Mincui Zheng, Yunpeng Dai, Lian Jiang, Lirong Sun, Xiaowen Zhai, Rong Liu, Chunju Zhou, Zifen Gao, Yonghong Zhang, Xiaomei Yang   +20 more
wiley   +1 more source

Patient‐reported outcomes in adults with type 1 diabetes in global real‐world clinical practice: The SAGE study [PDF]

, 2021
Emma G. Wilmot, Kelly L. Close, Dubravka Jurišić‐Eržen, Daniela Bruttomesso, Francisco Javier Ampudia‐Blasco, Zsolt Bosnyák, Aude Roborel de Climens, Grégory Bigot, Anne L. Peters, Éric Renard, Lori Berard, Luís Eduardo Calliari, Jochen Seufert   +12 more
openalex   +1 more source

Exercise Interventions in Children, Adolescents and Young Adults With Paediatric Bone Tumours—A Systematic Review

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Bone tumours present significant challenges for affected patients, as multimodal therapy often leads to prolonged physical limitations. This is particularly critical during childhood and adolescence, as it can negatively impact physiological development and psychosocial resilience.
Jennifer Queisser, Claire Laurie, Teresa Schmidt, Irene von Luettichau, Peter Bekkering, Sabine Kesting   +5 more
wiley   +1 more source

Development of a quality of life measure for left ventricular assist device recipients using a mixed methods approach

ESC Heart Failure
Background Left ventricular assist device (LVAD) recipients report symptom improvement but find adjusting to life with the LVAD challenging. These challenges are unique, and existing patient‐reported outcome measures (PROMs) do not reflect their ...
Anita L. Slade, Christel McMullan, M. Sayeed Haque, Stephen Griffith, Laura Marley, David Quinn, Margaret E. O'Hara, Mike Horton, Melanie J. Calvert, Hoong Sern Lim, Deirdre A. Lane   +10 more
doaj   +1 more source

Assessing health-related quality of life (HRQoL) in survivors of out-of-hospital cardiac arrest: A systematic review of patient-reported outcome measures [PDF]

, 2017
Kirstie Haywood, Nathan A. Pearson, Laurie J. Morrison, Maaret Castrén, Gisela Lilja, Gavin D. Perkins   +5 more
openalex   +1 more source

The Japanese version of the National Cancer Institute’s patient-reported outcomes version of the common terminology criteria for adverse events (PRO-CTCAE): psychometric validation and discordance between clinician and patient assessments of adverse events

Journal of Patient-Reported Outcomes, 2018
BackgroundThe Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE) was developed by the National Cancer Institute as an adverse event assessment system to evaluate patients’ symptoms, which tend to be ...
T. Kawaguchi, Kanako Azuma, M. Sano, Soan Kim, Yosuke Kawahara, Yoko Sano, Tomohide Shimodaira, K. Ishibashi, T. Miyaji, E. Basch, Takuhiro Yamaguchi   +10 more
semanticscholar   +1 more source