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Patient-reported outcome measurement [PDF]

Journal of the Royal Society of Medicine, 2010
Alan Maynard and Karen Bloor1 raise interesting questions, particularly in relation to breast cancer. One issue is that treatment-related toxicities may not become problematic for several years, particularly when radiotherapy is administered. Research so far seems to indicate that hypofractionation causes more long-term problems than hyperfractionation,
openaire   +2 more sources

Patient reported outcomes in genital gender-affirming surgery: the time is now

Journal of Patient-Reported Outcomes, 2022
Transgender and non-binary (TGNB) individuals often experience gender dysphoria. TGNB individuals with gender dysphoria may undergo genital gender-affirming surgery including vaginoplasty, phalloplasty, or metoidioplasty so that their genitourinary ...
Nnenaya Agochukwu-Mmonu, Asa Radix, L. Zhao, D. Makarov, R. Bluebond-Langner, A. M. Fendrick, Elijah Castle, Carolyn Berry   +7 more
semanticscholar   +1 more source

Development of an electronic patient-reported outcome measure (ePROM) system to aid the management of patients with advanced chronic kidney disease

Journal of Patient-Reported Outcomes, 2020
Background Effective management of patients with chronic kidney disease (CKD) relies on timely detection of clinical deterioration towards end stage kidney failure.
Derek Kyte, Nicola Anderson, Ram Auti, Olalekan Lee Aiyegbusi, Jon Bishop, Andrew Bissell, Elizabeth Brettell, Melanie Calvert, Marie Chadburn, Paul Cockwell, Mary Dutton, Helen Eddington, Elliot Forster, Gabby Hadley, Natalie J. Ives, Louise Jackson, Sonja O’Brien, Gary Price, Keeley Sharpe, Stephanie Stringer, Gael Stephenson, Rav Verdi, Judi Waters, Adrian Wilcockson, Jim Williams   +24 more
doaj   +1 more source

A review of the barriers to using Patient‐Reported Outcomes (PROs) and Patient‐Reported Outcome Measures (PROMs) in routine cancer care

Journal of Medical Radiation Sciences, 2020
Patient‐reported outcomes (PROs) are direct reports from patients about the status of their health condition without amendment or interpretation by others.
Hanh Nguyen, P. Butow, H. Dhillon, P. Sundaresan   +3 more
semanticscholar   +1 more source

Generation of evidence supporting the content validity of SF-36, FACIT-F, and LupusQoL, and novel patient-reported symptom items for use in patients with systemic lupus erythematosus (SLE) and SLE with lupus nephritis (LN)

Lupus Science and Medicine, 2022
Objective SLE and lupus nephritis (LN) have significant impacts on the health-related quality of life of patients living with the condition, which are important to capture from the patient’s perspective using patient-reported outcomes (PROs).
Vibeke Strand, Anna Roberts, Zahi Touma, Amy Ward, Pamela Berry, Rebecca Williams-Hall, Nicola Williamson, Melissa Barclay, Adam Gater, Chloe Tolley, Helena Bradley, Elizabeth Hsia, Qing Zuraw, Patricia DeLong   +13 more
doaj   +1 more source

Protocol for a scoping review exploring the use of patient-reported outcomes in adult social care

BMJ Open, 2021
Introduction Patient-reported outcomes (PROs) are measures of a person’s own views of their health, functioning and quality of life. They are typically assessed using validated, self-completed questionnaires known as patient-reported outcome measures ...
Grace M Turner, Christel McMullan, Melanie Calvert, Sarah E Hughes, Daniel S Lasserson, Jon Glasby, Olalekan Lee Aiyegbusi, Philip Collis, Samantha Cruz Rivera   +8 more
doaj   +1 more source

Patient-reported outcome measures as determinants for the utilization of health care among outpatients with epilepsy: a prognostic cohort study

Journal of Patient-Reported Outcomes, 2023
Background Patient-reported outcome (PRO) measures can inform clinical decision making and planning of treatment in the health care system. The aim of this study was to examine whether patient-reported health domains influence the use of health care ...
Stine Primdahl Rasmussen, Liv Marit Valen Schougaard, Niels Henrik Hjøllund, David Høyrup Christiansen   +3 more
doaj   +1 more source

Composite grading algorithm for the National Cancer Institute’s Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE)

Clinical Trials, 2020
Background: The Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events is an item library designed for eliciting patient-reported adverse events in oncology. For each adverse event, up to three individual items are scored
E. Basch, Claus Becker, L. Rogak, D. Schrag, B. Reeve, P. Spears, M. Smith, M. Gounder, M. Mahoney, G. Schwartz, A. Bennett, T. Mendoza, C. Cleeland, J. Sloan, D. Bruner, G. Schwab, T. Atkinson, G. Thanarajasingam, M. Bertagnolli, A. Dueck   +19 more
semanticscholar   +1 more source

Non–Small Cell Lung Cancer Symptom Assessment Questionnaire: Psychometric Performance and Regulatory Qualification of a Novel Patient-Reported Symptom Measure

Current Therapeutic Research, 2021
: Background: The Non–Small Cell Lung Cancer Symptom Assessment Questionnaire (NSCLC-SAQ) was developed to incorporate the patient's perspective into evaluation of clinical benefit in advanced non–small cell lung cancer trials and meet regulatory ...
Donald M. Bushnell, MA, Thomas M. Atkinson, PhD, Kelly P. McCarrier, PhD, Astra M. Liepa, PharmD, Kendra P. DeBusk, PhD, Stephen Joel Coons, PhD   +5 more
doaj   +1 more source

The impact of patient-reported outcome data from clinical trials: perspectives from international stakeholders

Journal of Patient-Reported Outcomes, 2020
Background Patient-reported outcomes (PROs) are increasingly collected in clinical trials as they provide unique information on the physical, functional and psychological impact of a treatment from the patient’s perspective. Recent research suggests that
Samantha Cruz Rivera, Christel McMullan, Laura Jones, Derek Kyte, Anita Slade, Melanie Calvert   +5 more
doaj   +1 more source