Results 51 to 60 of about 7,176,843 (353)

Pruritus and Patient Reported Outcomes in Non-Dialysis CKD.

American Society of Nephrology. Clinical Journal, 2019
BACKGROUND AND OBJECTIVES Among patients on hemodialysis, pruritus has been associated with poorer mental and physical quality of life, sleep quality, depression, and mortality.
Nidhi Sukul, É. Speyer, Charlotte Tu, B. Bieber, Yun Li, A. Lopes, K. Asahi, L. Mariani, M. Laville, H. Rayner, B. Stengel, B. Robinson, R. Pisoni   +12 more
semanticscholar   +1 more source

Psychosocial Outcomes in Patients With Endocrine Tumor Syndromes: A Systematic Review

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Introduction The combination of disease manifestations, the familial burden, and varying penetrance of endocrine tumor syndromes (ETSs) is unique. This review aimed to portray and summarize available data on psychosocial outcomes in patients with ETSs and explore gaps and opportunities for future research and care.
Daniël Zwerus, Floortje Strobbe, Annemarie A. Verrijn Stuart, Hanneke M. van Santen, Gerlof D. Valk, Sasja A. Schepers, Rachel S. van Leeuwaarde   +6 more
wiley   +1 more source

Patient-Reported Outcomes and Fibromyalgia [PDF]

Rheumatic Disease Clinics of North America, 2016
Fibromyalgia (FM) is classified as a chronic pain condition accompanied by symptoms of fatigue, sleep problems, problems with cognition, negative mood, limited functional status, and the presence of other chronic overlapping pain conditions. Comprehensive assessment of all of these components can be challenging.
David A, Williams, Anna L, Kratz
openaire   +2 more sources

Impact of missing data on bias and precision when estimating change in patient-reported outcomes from a clinical registry

Health and Quality of Life Outcomes, 2019
BackgroundClinical registries, which capture information about the health and healthcare use of patients with a health condition or treatment, often contain patient-reported outcomes (PROs) that provide insights about the patient’s perspectives on their ...
O. Ayilara, Lisa Zhang, T. Sajobi, R. Sawatzky, E. Bohm, L. Lix   +5 more
semanticscholar   +1 more source

How patient-generated health data and patient-reported outcomes affect patient–clinician relationships: A systematic review

Health Informatics Journal, 2020
Introduction: Many patients use mobile devices to track health conditions by recording patient-generated health data. However, patients and clinicians may disagree how to use these data.
Ross J. Lordon, S. Mikles, Laura Kneale, H. Evans, Sean A Munson, Uba Backonja, William Lober   +6 more
semanticscholar   +1 more source

Nutritional and Behavioral Intervention for Long‐Term Childhood Acute Leukemia Survivors With Metabolic Syndrome

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Purpose Metabolic syndrome (MetS) is a common complication in survivors of childhood acute lymphoblastic and myeloid leukemia (AL), and a major risk factor for premature cardiovascular disease, type‐2‐diabetes, and metabolic dysfunction‐associated steatotic liver disease (MASLD).
Visentin Sandrine, Béliard Sophie, Renard Cécile, Caussy Cyrielle, Hamidou Zeinab, Romano David, Gacem Mélanie, Petit Arnaud, Saultier Paul, Borentain Patrick, Michel Gérard   +10 more
wiley   +1 more source

Mixed methods study of views and experience of non-hospitalised individuals with long COVID of using pacing interventions

Scientific Reports
Long COVID is highly prevalent and debilitating, with key symptoms including fatigue, breathlessness, and brain fog. Pacing is an approach to energy conservation used to help people with chronic conditions like ME/CFS manage the impact of their condition,
Christel McMullan, Shamil Haroon, Grace Turner, Olalekan Lee Aiyegbusi, Sarah E. Hughes, Sarah Flanagan, Anuradhaa Subramanian, Krish Nirantharakumar, Elin Haf Davies, Chris Frost, Louise Jackson, Naijie Guan, Yvonne Alder, Amy Chong, Lewis Buckland, Felicity Jeyes, David Stanton, Melanie Calvert   +17 more
doaj   +1 more source

Paving the way for patient centricity in real-world evidence (RWE): Qualitative interviews to identify considerations for wider implementation of patient-reported outcomes in RWE generation

Heliyon, 2023
Objectives: Real-world evidence (RWE) generation can be enhanced by including patient-reported outcomes (PROs). Methods for collecting and using PRO data in the real-world setting are currently underdeveloped and there is no international guidance ...
Konrad Maruszczyk, Christel McMullan, Olalekan Lee Aiyegbusi, Thomas Keeley, Roger Wilson, Philip Collis, Catherine Bottomley, Melanie J. Calvert   +7 more
doaj   +1 more source

Survival for Children Diagnosed With Wilms Tumour (2012–2022) Registered in the UK and Ireland Improving Population Outcomes for Renal Tumours of Childhood (IMPORT) Study

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background The Improving Population Outcomes for Renal Tumours of childhood (IMPORT) is a prospective clinical observational study capturing detailed demographic and outcome data on children and young people diagnosed with renal tumours in the United Kingdom and the Republic of Ireland.
Naomi Ssenyonga, Angela Lopez‐Cortes, Reem Al‐Saadi, Suzanne Tugnait, Kristina Dzhuma, Catriona Duncan, Gordan Vujanic, Tanzina Chowdhury, Claudia Allemani, Michel P. Coleman, Kathy Pritchard‐Jones, the Children's Cancer and Leukaemia Group (CCLG) Renal Tumour Special Interest Group, Hugh Bishop, Anthony McCarthy, Pamela Kearns, Helen Rees, Amos Burke, Meriel Jenney, Jane Pears, Hamish Wallace, Milind Ronghe, Tanzina Chowdhury, Susan Picton, Emma Ross, Lisa Howell, Bernadette Brennan, Gail Halliday, Richard Grundy, Shaun Wilson, Sucheta Vaidya, Daniel Yeomanson, Jessica Bate, Vesna Pavasovic, Jessica Bate, Sabine Irtan, Jesper Brok, Minou Oostveen, Kristina Dzhuma, Mark Weeks, Richard Williams, Mark Powis, Max Pachl, Bruce Okoye, Naima Smeulders, Gordan Vujanic, Oystein Olsen, Tom Watson, Susan Shelmerdine, Dan Saunders, Angela Lopez-Cortes, Taryn Treger, Tom Jackson, Suzanne Tugnait, Lisa Howell, Tanzina Chowdhury, Sam Behjati, Angela Polanco   +56 more
wiley   +1 more source

A qualitative study of health, social, and community professionals’ practices to reduce alcohol-related risks among people living in social precarity in the Greater Paris region

Harm Reduction Journal
Alcohol-related harms constitute a major global public health challenge. Despite similar consumption levels to their more affluent counterparts, alcohol-related morbidity and mortality is disproportionately higher in socioeconomically deprived ...
Coline Frechet, Rokhayatou Kane, Clair-Antoine Veyrier, Issifou Yaya, Tristan Alain, Martin Duracinsky, Lisa Yombo Kokule, Lorraine Cousin Cabrolier   +7 more
doaj   +1 more source