Cross-cultural adaptation and validation of the PedsQL™ stem cell transplant module in China: A methodological and cross-sectional study [PDF]
Frontiers in Pediatrics, 2023 BackgroundHematopoietic stem cell transplantation (HSCT), as a mature technology, has significantly improved the survival rate of children. However, there lack efficient scales to assess the quality of life (QoL) of children with HSCT in China, which has
Yuting Wei +10 more
doaj +2 more sources
Adaptation and validation of the PEDSQL™ oral health scale for toddlers in Chilean population [PDF]
BMC Oral Health, 2020 Background The Pediatric Quality of Life Inventory™ (PedsQL™) Oral Health Scale was developed to measure oral health-related quality of life (OHRQoL). The aim of this study was to cross-culturally adapt the parent-reported version for toddlers of PedsQL™
Claudia Atala-Acevedo +6 more
doaj +2 more sources
Translation and validation of Indonesian version of Pediatric Quality of Life Inventory™ (PedsQL™) Neuromuscular Module [PDF]
Health and Quality of Life Outcomes, 2022 Background The Pediatric Quality of Life™ 3.0 Neuromuscular Module is an instrument to assess health-related quality of life (HRQoL) among children with neuromuscular diseases (NMDs) aged 2–18 years.
Guswan Wiwaha +4 more
doaj +2 more sources
The Italian version of the Pediatric Quality of Life Inventory™ (PEDSQL™) 3.0 healthcare satisfaction hematology/oncology module: reliability and validity in radiation oncology [PDF]
Health and Quality of Life Outcomes, 2023 Background Health-related quality of life (HRQOL) measurement has become an important health care outcome even in oncological pediatric scenario. During radiation therapy care path, pediatric patients and their relatives may suffer from emotional and ...
Elisa Marconi +15 more
doaj +2 more sources
Validation of the Chinese version of PedsQL™ brain tumor module [PDF]
Frontiers in Pediatrics, 2023 BackgroundThe study introduced the Pediatric Quality of Life Inventory™ (PedsQL™) brain tumor module for the first time in China. Further, the Chinese version of the PedsQL™ brain tumor module was developed and its feasibility, reliability, and validity ...
Juan Wang +5 more
doaj +2 more sources
The impact of vanishing white matter on unaffected family members [PDF]
Orphanet Journal of Rare DiseasesBackground Vanishing White matter (VWM) is one of the more prevalent leukodystrophies, caused by biallelic pathogenic variants in any of the EIF2B1–5 genes.
Romy J. van Voorst +8 more
doaj +2 more sources
International Journal of Preventive Medicine, 2017 Background: This study aimed at determining the validity of the Pediatric Quality of Life Inventory 4.0 (PedsQL™ 4.0) for the measurement of health-related quality of life (HRQOL) in Colombian children.
Ana Carolina Amaya-Arias +2 more
doaj +2 more sources
Determining the longitudinal validity and meaningful differences in HRQL of the PedsQL™ Sickle Cell Disease Module [PDF]
Health and Quality of Life Outcomes, 2017 Background Detecting change in health status over time and ascertaining meaningful changes are critical elements when using health-related quality of life (HRQL) instruments to measure patient-centered outcomes.
Julie A. Panepinto +20 more
doaj +2 more sources
Health and Quality of Life Outcomes, 2023 Background Childhood cancer negatively impacts a child's physical, mental, and behavioural health and significantly affects their health-related quality of life.
Tenaw Gualu Melesse +5 more
doaj +1 more source
The PedsQL™ Family Impact Module: Preliminary reliability and validity
Health and Quality of Life Outcomes, 2004 Background The PedsQL™ Measurement Model was designed to measure health-related quality of life (HRQOL) in children and adolescents. The PedsQL™ 4.0 Generic Core Scales were developed to be integrated with the PedsQL™ Disease-Specific Modules.
Dickinson Paige E +4 more
doaj +1 more source