Results 11 to 20 of about 1,662 (112)

Children with Intestinal Failure are at Risk for Psychopathology and Trauma

Journal of Pediatric Gastroenterology and Nutrition, Volume 77, Issue 6, Page e104-e113, December 2023., 2023
Objectives: The objective of this study is to assess the psychopathology and medical traumatic stress in children with intestinal failure (IF) and identify associated risk factors. Methods: Two‐center study, performed from September 2019 until April 2022 (partly during COVID‐19 pandemic), including children (1.5–17 years) with IF, dependent on ...
Lotte E. Vlug, Jeroen S. Legerstee, Merit M. Tabbers, Aysenur Demirok, Merel W. Verloop, Lotte Bosman, Edmond H.H.M. Rings, René M.H. Wijnen, Marjolein Spoel, Barbara A.E. de Koning, on behalf of the PICASsO Group, Petra Mazer, Elisabeth W.C. Aendekerk, Esther G. Neelis, Jessie M. Hulst   +14 more
wiley   +1 more source

Attrition from paediatric weight management impacts anthropometric outcomes at 2 years, but not health‐related quality of life

Clinical Obesity, Volume 13, Issue 5, October 2023., 2023
Summary The study objective is to evaluate the influence of attrition from a paediatric weight management program (PWM) on health indicators over a 2‐year period. In this observational study, children and youth with obesity were recruited at entry into a family‐based behaviour modification PWM and had four research study visits, independent of clinic ...
Katherine M. Morrison, Elizabeth Gunn, Stephanie Schwindt, Linda Hu, Mark Tarnopolsky   +4 more
wiley   +1 more source

Response to sirolimus in capillary lymphatic venous malformations and associated syndromes: Impact on symptomatology, quality of life, and radiographic response

Pediatric Blood &Cancer, Volume 70, Issue 4, April 2023., 2023
Abstract Background Capillary lymphatic venous malformations (CLVM) and associated syndromes, including Klippel–Trenaunay syndrome (KTS) and congenital lipomatous overgrowth, vascular malformation, epidermal nevi, skeletal, and spinal syndrome (CLOVES), are underrecognized disorders associated with high morbidity from chronic pain, recurrent infections,
Elissa R. Engel, Adrienne Hammill, Denise Adams, Roderic J. Phillips, Michael Jeng, Megha M. Tollefson, Ionela Iacobas, Deborah Schiff, Shoshana Greenberger, Michael Kelly, Ilona Frieden, Nibal Zaghloul, Beth Drolet, Amy Geddis, Dov Goldenberg, Kiersten Ricci   +15 more
wiley   +1 more source

Health related quality of life of Iranian children with type 1 diabetes: reliability and validity of the Persian version of the PedsQL™ Generic Core Scales and Diabetes Module

Health and Quality of Life Outcomes, 2011
Background The aim of this study was to measure health related quality of life (HRQOL) in Iranian children with type 1 diabetes and to test the psychometric properties of the Persian version of the PedsQL™ 4.0 Generic Core Scales and the PedsQL™ 3.0 ...
Jafari Peyman, Forouzandeh Elham, Bagheri Zahra, Karamizadeh Zohreh, Shalileh Keivan   +4 more
doaj   +1 more source

Lived experience of CamAPS FX closed loop system in youth with type 1 diabetes and their parents

Diabetes, Obesity and Metabolism, Volume 24, Issue 12, Page 2309-2318, December 2022., 2022
Abstract Aim To examine changes in the lived experience of type 1 diabetes after use of hybrid closed loop (CL), including the CamAPS FX CL system. Materials and Methods The primary study was conducted as an open‐label, single‐period, randomized, parallel design contrasting CL versus insulin pump (with or without continuous glucose monitoring ...
Korey K. Hood, Natasha Garcia‐Willingham, Sarah Hanes, Molly L. Tanenbaum, Julia Ware, Charlotte K. Boughton, Janet M. Allen, Malgorzata E. Wilinska, Martin Tauschmann, Louise Denvir, Ajay Thankamony, Fiona Campbell, R. Paul Wadwa, Bruce A. Buckingham, Nikki Davis, Linda A. DiMeglio, Nelly Mauras, Rachel E. J. Besser, Atrayee Ghatak, Stuart A. Weinzimer, D. Steven Fox, Lauren Kanapka, Craig Kollman, Judy Sibayan, Roy W. Beck, Roman Hovorka, on behalf of the DAN05 Consortium   +26 more
wiley   +1 more source

Validation of the pedHALshort and HALshort in Dutch children and adults with haemophilia

Haemophilia, Volume 28, Issue 6, Page 1007-1015, November 2022., 2022
Abstract Introduction The Haemophilia Activities List (HAL) and paediatric HAL assess self‐reported limitations in various daily activities. To reduce patient burden, shorter versions of the pedHAL (22 items) and HAL (18 items) have been developed.
Isolde A. R. Kuijlaars, Janjaap van der Net, Lize F. D. van Vulpen, Mariette H. E. Driessens, Saskia E. M. Schols, Melanie Tan, Samantha C. Gouw, Kathelijn Fischer   +7 more
wiley   +1 more source

Validity and reliability of the Italian version of the cardiac quality of life questionnaire for pediatric patients with heart disease (PedsQLTM)

BMC Cardiovascular Disorders, 2021
Background Congenital heart disease (CHD) accounts for nearly a third of all major congenital anomalies. Advances in pediatric cardiology shifted attention from mortality to morbidity and health-related quality of life (HRQOL) of patients with CHD and ...
Teresa Grimaldi Capitello, Francesca Bevilacqua, Roberta Vallone, Anna Maria Dall’Oglio, Francesca Santato, Salvatore Giannico, Giulio Calcagni, Simone Piga, Marta Ciofi degli Atti, Simonetta Gentile, Angela Rossi   +10 more
doaj   +1 more source

Longitudinal Development of Health‐related Quality of Life and Fatigue in Children on Home Parenteral Nutrition

Journal of Pediatric Gastroenterology and Nutrition, Volume 74, Issue 1, Page 116-122, January 2022., 2022
ABSTRACT Objectives: The aim of the study was to describe the longitudinal development of health‐related quality of life (HRQOL) and fatigue in children with chronic intestinal failure (CIF) on home parenteral nutrition (PN) and compare these children to the general population.
Sjoerd C.J. Nagelkerke, Hedy A. van Oers, Lotte Haverman, Lotte E. Vlug, Barbara A.E. de Koning, Marc A. Benninga, Merit M. Tabbers   +6 more
wiley   +1 more source

Reliability and validity of the Chinese version of the PedsQL Multidimensional Fatigue Scale in children with acute leukemia

International Journal of Nursing Sciences, 2016
Background: The PedsQL Multidimensional Fatigue Scale (PedsQL™ MFS) is widely used to rate fatigue in children living in English-speaking countries. However, insufficient instruments are available to conduct parallel assessment on fatigue in parents and ...
Qimeng Ye, Ke Liu, Jun Wang, Xiuqing Bu, Lili Zhao   +4 more
doaj   +1 more source

The Chinese version of the Pediatric Quality of Life Inventory™ (PedsQL™) 3.0 Asthma Module: reliability and validity

Health and Quality of Life Outcomes, 2011
Background Health-related quality of life (HRQOL) has been recognized as an important health outcome measurement for pediatric patients. One of the most promising instruments in measuring pediatric HRQOL emerged in recent years is the Pediatric Quality ...
Chen Ruoqing, Zhang Yingfen, Feng Lifen, Hao Yuantao   +3 more
doaj   +1 more source