Results 31 to 40 of about 1,662 (112)

Longitudinal Improvements in Health‐Related Quality of Life Among Children Enrolled in the CANadian Paediatric Weight Management Registry (CANPWR) Over 3 Years

Pediatric Obesity, Volume 21, Issue 3, March 2026.
ABSTRACT Background Health‐related quality of life (HRQoL) can be impaired in children with obesity. Utilising data from the CANadian Paediatric Weight Management Registry (CANPWR), we examined changes in HRQoL up to 3‐year after enrollment in paediatric weight management programs (PWMP) and demographic, socioeconomic, behavioural and health‐related ...
Marina Ybarra, Grace Rebekah, Geoff D. C. Ball, Annick Buchholz, Jill Hamilton, Josephine Ho, Ian Zenlea, Rajibul Mian, Lehana Thabane, Katherine M. Morrison, on behalf of the CANPWR Investigators, Stasia Hadjiyannakis, Anne‐Marie Laberge, CHU Sainte Justine, Laurent Legault, Mark Tremblay   +15 more
wiley   +1 more source

Cross-Cultural Validation of Health and Quality of Life Measures for Children in Hong Kong

Occupational Therapy International, 2022
Objective. The Pediatric Quality of Life Inventory (PedsQL™) 4.0 is a health-related quality of life (HRQOL) measure designed for clinical practice and research, health policy evaluation, and general population surveys.
Hiu Lam Helen Sze, Cheuk Lam Beanie Fung, Pui Pui Phoebe Cheung, Tsz Yuk Amy Chim, Ming Ho Lee, Cheuk Chi Cynthia Law, Wui Man Benson Lau   +6 more
doaj   +1 more source

“I don't grieve as much as I used to”: A qualitative study on parents of children with rare and undiagnosed conditions navigating grief in the context of uncertainty

Journal of Genetic Counseling, Volume 34, Issue 6, December 2025.
Abstract The aim of this qualitative interview study was to explore the lived experiences of parents, experiencing high anxiety and poorer quality‐of‐life/family functioning, caring for a child with a rare and undiagnosed condition. Data analysis led to the generation of a substantial corpus of insights focusing on how parents cope with grief amidst ...
Tara Maria Hoffmann, Bettina Friedrich, Celine Lewis   +2 more
wiley   +1 more source

Initial validation of the Argentinean Spanish version of the PedsQL™ 4.0 Generic Core Scales in children and adolescents with chronic diseases: acceptability and comprehensibility in low-income settings

Health and Quality of Life Outcomes, 2008
Background To validate the Argentinean Spanish version of the PedsQL™ 4.0 Generic Core Scales in Argentinean children and adolescents with chronic conditions and to assess the impact of socio-demographic characteristics on the instrument's ...
Bauer Gabriela, Rodríguez Susana, Roizen Mariana, Medin Gabriela, Bevilacqua Silvina, Varni James W, Dussel Veronica   +6 more
doaj   +1 more source

Perspectives on Accessing Mental Health Supports for Youth Living With Post‐Traumatic Stress Symptoms After a Solid Organ Transplant

Pediatric Transplantation, Volume 29, Issue 7, November 2025.
This study explored the personal experiences of pediatric SOT recipients and their families to understand emotional and physical impacts during the transplant journey. Many preferred early information on PTS risks. Participants recommended improved access to mental health care, counseling, and patient‐centered supports to better prepare and support ...
Mallorie T. Tam, Anna Riminchan, Julia M. Wu, Candice Wiedman, Monica Ho, Linda Li, Tom Blydt‐Hansen, Julie M. Robillard   +7 more
wiley   +1 more source

Preliminary reliability and validity of the PedsQL™ Family Impact Module in parents of children with congenital muscular dystrophy

Journal of Rare Diseases
Purpose This study examines the preliminary reliability and validity of the PedsQL™ Family Impact Module (PedsQL™ FIM) in parents of children with congenital muscular dystrophy (CMD).
Yoonjeong Lim, Seungmin Lee, Ickpyo Hong, Areum Han   +3 more
doaj   +1 more source

The Chinese version of the Pediatric Quality of Life Inventory™ (PedsQL™) Family Impact Module: cross-cultural adaptation and psychometric evaluation

Health and Quality of Life Outcomes, 2011
Background A pediatric chronic health condition not only influences a child's life, but also has impacts on parent health-related quality of life (HRQOL) and family functioning.
Feng Lifen, Hao Yuantao, Chen Ruoqing, Zhang Yingfen, Huang Zhuoyan   +4 more
doaj   +1 more source

Patterns of Adherence to Lung Volume Recruitment Therapy Amongst Individuals With Duchenne Muscular Dystrophy: A Secondary Analysis of the STEADFAST Randomized Controlled Trial

Pediatric Pulmonology, Volume 60, Issue 10, October 2025.
ABSTRACT Background Duchenne muscular dystrophy (DMD) is associated with impaired airway clearance and chest wall restriction, treated with lung volume recruitment (LVR) therapy. This study evaluated adherence patterns to LVR over 2 years in a cohort of boys with DMD.
Naomi Dussah, Douglas A. McKim, Jean K. Mah, Hugh J. McMillan, Craig Campbell, Vid Bijelić, Nicholas Barrowman, Franco Momoli, Henrietta Blinder, Shawn Aaron, Laura C. McAdam, The Thanh Diem Nguyen, Mark Tarnopolsky, David Wensley, David Zielinski, Lisa Wolfe, Sherri L Katz   +16 more
wiley   +1 more source

Measuring health-related quality of life in Hungarian children with heart disease: psychometric properties of the Hungarian version of the Pediatric Quality of Life Inventory™ 4.0 Generic Core Scales and the Cardiac Module

Health and Quality of Life Outcomes, 2010
Objectives The aim of the study was to investigate the psychometric properties of the Hungarian version of the Pediatric Quality of Life Inventory™ (PedsQL™) Generic Core Scales and Cardiac Module.
Kardos László, Varni James W, Kemény Csilla, Kiss Mariann, Pataki István, Berkes Andrea, Mogyorósy Gábor   +6 more
doaj   +1 more source

Clinical presentation of Rett syndrome in relation to quality of life and family functioning

Journal of International Medical Research, 2021
Objective Rett syndrome (RTT) is a chronic condition that manifest in young children, with concomitant comorbidities such as respiratory problems, scoliosis, epilepsy, and malnutrition, which may affect children’s quality of life (QoL) and family ...
Anna Rozensztrauch, Agnieszka Sebzda, Robert Śmigiel   +2 more
doaj   +1 more source