Results 51 to 60 of about 1,662 (112)

Measurement properties of the Brazilian version of the Pediatric Quality of Life Inventory (PedsQL™) cancer module scale

open access: yesHealth and Quality of Life Outcomes, 2008
Background The use of health-related quality of life (HRQOL) measurements has been increased progressively in health surveys. These measurements document the functional and psychosocial outcomes of health conditions and complement clinical indicators to ...
Varni James W   +5 more
doaj   +1 more source

Comparison of child and family reports of health-related quality of life in pediatric acute lymphoblastic leukemia patients after induction therapy

open access: yesBMC Pediatrics, 2020
Background This study aims at determining the health-related quality of life (HRQOL) of children with acute lymphoblastic leukemia (ALL) after the induction therapy, assessing the agreement between child self-reports and family proxy-reports HRQOL, and ...
Shohei Nakajima   +10 more
doaj   +1 more source

How to measure patient and family important outcomes in extremely preterm infants: A scoping review

open access: yesActa Paediatrica, Volume 113, Issue 6, Page 1228-1235, June 2024.
Abstract Aim Parents of children born preterm have identified outcomes to be measured for audit and research at 18–24 months of age: child well‐being, quality of life/function, socio‐emotional/behavioural outcomes, respiratory, feeding, sleeping, and caregiver mental health.
Anne Synnes   +6 more
wiley   +1 more source

Quality of life assessment instruments in children and adolescents with neuromuscular diseases: a systematic scoping review

open access: yesHealth and Quality of Life Outcomes
Objective (1) To identify instruments used to assess quality of life (QoL) in children and adolescents with neuromuscular diseases; (2) To identify the psychometric properties contained in these instruments.
Karoliny Lisandra Teixeira Cruz   +3 more
doaj   +1 more source

Associations between gender and health‐related quality of life in people with IgE‐mediated food allergy and their caregivers: A systematic review

open access: yesClinical &Experimental Allergy, Volume 54, Issue 2, Page 93-108, February 2024.
We systematically reviewed the impact of gender on health‐related quality of life (HRQL) in populations with immunoglobulin‐E‐mediated food allergy. Females with food allergy self‐report poorer baseline HRQL than males, regardless of age. Gender may impact total HRQL and subdomain HRQL in food allergy studies.
Sophie A. Rosser   +4 more
wiley   +1 more source

Health-related quality of life and subjective well-being among children aged 9–12 years in Shandong Province, China

open access: yesHealth and Quality of Life Outcomes
Purpose To investigate the health-related quality of life (HRQoL) and subjective well-being (SWB) of children aged 9–12 years in eastern China, and examine concordance within child self-reported and parent proxy-assessed.
Zhao Shi   +6 more
doaj   +1 more source

Health-related quality of life in children with PFAPA syndrome

open access: yesOrphanet Journal of Rare Diseases, 2018
Background Conventionally, PFAPA syndrome is considered as a benign disease compared to other recurrent fevers because it completely passes before adulthood.
Claire Grimwood   +4 more
doaj   +1 more source

THE FIRST STEP IN VALIDATING THE PedsQL™ – FAMILY IMPACT MODULE QUESTIONNAIRE IN ROMANIA. THE QUALITY OF LIFE OF PARENTS WITH CHILDREN WITH AUTISTIC SPECTRUM DISORDER

open access: yesAnthropological Researches and Studies
Objectives. The study’s objectives were to test the psychometric properties of the Romanian version of The Pediatric Quality of Life Inventory (PedsQL) – Family Impact Module (PedsQL™ – FIM), an instrument that evaluates the quality of life of parents of
Camelia POPA   +3 more
doaj   +1 more source

Quality of life in children and adolescents with blood coagulation disorders and hemoglobinopathies [PDF]

open access: yesBrazilian Oral Research
The aim of this study was to evaluate the impact of oral conditions and health-related quality of life (HRQoL) on oral health-related quality of life (OHRQoL) in children and adolescents with blood coagulation disorders and hemoglobinopathies (BCDH). The
Leandro Tavares da SILVA   +8 more
doaj   +1 more source

Impaired health-related quality of life in children and adolescents with chronic conditions: a comparative analysis of 10 disease clusters and 33 disease categories/severities utilizing the PedsQL™ 4.0 Generic Core Scales

open access: yesHealth and Quality of Life Outcomes, 2007
Background Advances in biomedical science and technology have resulted in dramatic improvements in the healthcare of pediatric chronic conditions. With enhanced survival, health-related quality of life (HRQOL) issues have become more salient.
Burwinkle Tasha M   +2 more
doaj   +1 more source

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