Bridging clinical care and lived experience: early implementation of longitudinal health-related quality of life monitoring in congenital heart disease. [PDF]
Willems J +10 more
europepmc +1 more source
Pain, sleep, fatigue, and health-related quality of life in pediatric sickle cell disease: a serial multiple mediator analysis. [PDF]
Varni JW.
europepmc +1 more source
Experiences, outcomes and unmet needs of caregivers of children with Cerebral Palsy in Spain: Protocol for a mixed-methods study. [PDF]
Arumí-Trujillo C +4 more
europepmc +1 more source
Translation and Cultural Adaptation of the PedsQL Neurofibromatosis Module, Version 3.0, Into Brazilian Portuguese. [PDF]
Oliveira Machado M +5 more
europepmc +1 more source
PedsQL Sağlık Bakımı Ebeveyn Memnuniyet Ölçeğinin Türkçe’ye Uyarlanması
ÖZET Amaç: Bu araştırma, “PedsQL Sağlık Bakımı Memnuniyet Ölçeği”nin geçerlik ve güvenirliğinin yapılması amacı ile planlanmıştır. Yöntem: Bu çalışma metodolojik niteliktedir. Araştırmanın verileri J.W.Varni’nin geliştirdiği “PedsQL Sağlık Bakımı Memnuniyet Ölçeği” ile top lanmıştır.
Ulus, Bahire, Kublay, Gülümser
openaire +1 more source
Relationship Between Negative Cognition and Poor Quality of Life and Anxiety in Adolescents: A Meta-Analysis. [PDF]
Kılınçel Ş, Kılınçel O.
europepmc +1 more source
Quality of life and disease burden in tuberous sclerosis and comparison with the population with idiopathic autism spectrum disorder: an investigation conducted through questionnaires and clinical data collection in the pediatric population. [PDF]
Sforza G +9 more
europepmc +1 more source
Psychological and functional predictors of chronic pain outcomes in youth with Duchenne muscular dystrophy. [PDF]
Li R, Gao L, Chen T, Zhou C, Huang M.
europepmc +1 more source
Physical Therapy Surveillance in Children with Acute Lymphoblastic Leukemia: A Quality Improvement Initiative. [PDF]
Ospina PA +6 more
europepmc +1 more source

