Results 151 to 160 of about 7,135 (173)

PedsQL™ Gastroparesis Symptoms Module Domain and Item Development

Journal of Pediatric Gastroenterology and Nutrition, 2021
ABSTRACTObjectives:Like adults, children suffer from gastroparesis; however, there are currently no validated instruments to determine the impact of gastroparesis in pediatric patients. The objective of this study was to develop the items and domains to support the content validity of the new Pediatric Quality of Life Inventory (PedsQL™) Gastroparesis ...
James W, Varni, Robert J, Shulman, Mariella M, Self, Liz, Febo-Rodriguez, Heather, Charron, Kent, Williams, Sam, Nurko, Rachel L, Rosen, Bruno P, Chumpitazi   +8 more
openaire   +2 more sources

PedsQL Gastrointestinal Symptoms Module Item Development

Journal of Pediatric Gastroenterology and Nutrition, 2012
ABSTRACTObjectives:The objective of the present qualitative study was to develop the items and support the content validity for the Pediatric Quality of Life Inventory (PedsQL) Gastrointestinal Symptoms Module for pediatric patients with functional gastrointestinal (GI) disorders and organic GI diseases, hereafter referred to as GI disorders.Methods ...
James W, Varni, Marie T, Kay, Christine A, Limbers, James P, Franciosi, John F, Pohl   +4 more
openaire   +2 more sources

PedsQL Multiple Sclerosis Module Domain and Item Development: Qualitative Methods

Journal of Child Neurology, 2021
Background: The objective of this qualitative methods study was to develop the domains and items to support the content validity for the Pediatric Quality of Life Inventory (PedsQL) Multiple Sclerosis Module for youth with pediatric-onset multiple sclerosis.
Cristina Gaudioso, Samuel Oo, Soe Mar, Verna L. Hendricks-Ferguson, Pamela Newland, James W. Varni   +5 more
openaire   +2 more sources

Establishing clinical cutoffs for the PedsQL™ Epilepsy Module

Epilepsy & Behavior, 2019
The purpose of the present study was to establish clinical cutoffs for the PedsQL Epilepsy Module scales by dichotomizing scores into normative or impaired. We predicted that these cutoffs would be useful in identifying children at greater risk for impairments in health-related quality of life (HRQOL) including those who exhibit effects of ongoing ...
Katherine W, Junger, Avani C, Modi, Shanna M, Guilfoyle, Gigi, Smith, Janelle, Wagner, Grace A, Mucci, Heather, Huszti, Constance A, Mara   +7 more
openaire   +2 more sources

The PedsQL™ as a pediatric patient-reported outcome: reliability and validity of the PedsQL™ Measurement Model in 25,000 children

Expert Review of Pharmacoeconomics & Outcomes Research, 2005
The PedsQL Measurement Model was designed as a modular approach to measuring pediatric health-related quality of life, and developed to integrate the relative merits of generic and disease-specific approaches. The PedsQL 4.0 Generic Core Scales have been translated into over 60 languages, with published data on over 25,000 children and adolescents in ...
James W, Varni, Tasha M, Burwinkle, Michael, Seid   +2 more
openaire   +2 more sources

PedsQL Correlates to PODCI in Pediatric Orthopaedic Outpatient Clinic

Journal of Pediatric Orthopaedics, 2014
Quality-of-life (QOL) measures can be a valuable tool to assess the general welfare across a spectrum of patients in a pediatric orthopaedic outpatient clinic and can be a simple way to assess patient-based outcomes particularly for quality initiatives.
Mahan, Susan T., Kalish, Leslie A., Connell, Patricia L., Harris, Marie, Abdul-Rahim, Zainab, Waters, Peter   +5 more
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The PedsQL™ brain tumor module: Initial reliability and validity

Pediatric Blood & Cancer, 2006
AbstractBackgroundBrain tumors (BT) are second only to acute lymphoblastic leukemia as the most prevalent form of pediatric cancer, with BT 5‐year survival rates approaching 70%. With increased survival, quality of life has emerged as an essential health outcome. This investigation examines the internal consistency reliability and construct validity of
Stephanie N, Palmer, Kathleen A, Meeske, Ernest R, Katz, Tasha M, Burwinkle, James W, Varni   +4 more
openaire   +2 more sources

Quality of life evaluation in patients with mucopolysaccharidosis using PedsQL

Journal of Child Health Care, 2018
Mucopolysaccharidosis (MPS) is a rare and neglected disorder. Only a few studies to date have focused on humanistic impacts of the disease, particularly health-related quality of life (HRQOL). The objective of our research is to (1) evaluate HRQOL in Brazilian patients with MPS and (2) assess the validity of the PedsQL 4.0 Generic Core Scales (PedsQL)
Marcos Almeida, Matos, Fábio, Ferri-de-Barros, Roberto, Guarniero   +2 more
openaire   +2 more sources

PedsQL™ Sickle Cell Disease Module: Feasibility, Reliability and Validity

Blood, 2012
Abstract Abstract 476 Background: Sickle cell disease (SCD) is an inherited chronic disease characterized by complications such as recurrent painful vaso-occlusive events that can require hospitalizations and contribute to early and increased mortality.
Julie A. Panepinto, Cristiane B. Bendo, Sylvia Torres, Timothy McCavit, Christina J. Bemrich-Stolz, Bogdan R. Dinu, Sandra Sherman-Bien, Lauren M. Beverung, James W. Varni   +8 more
openaire   +1 more source

The PedsQL??? in Pediatric Cancer Pain

Journal of Developmental & Behavioral Pediatrics, 2004
The objective of this prospective study was to investigate the cross-sectional and longitudinal associations between pain and emotional distress in children and adolescents with cancer as measured by the Pediatric Quality of Life Inventory (PedsQL) Emotional Functioning and Pain Scales.
James W, Varni, Tasha M, Burwinkle, Ernest R, Katz   +2 more
openaire   +2 more sources