Results 21 to 30 of about 9,313 (188)

The PedsQL™ Present Functioning Visual Analogue Scales: preliminary reliability and validity [PDF]

open access: yes, 2006
Background The PedsQL™ Present Functioning Visual Analogue Scales (PedsQL™ VAS) were designed as an ecological momentary assessment (EMA) instrument to rapidly measure present or at-the-moment functioning in children and adolescents.
James W Varni   +11 more
core   +1 more source

Agreement and 2‐year trajectories of youth‐ and parent‐reported health‐related quality of life in youth with epilepsy treated with surgery vs medical therapy

open access: yesEpilepsia, EarlyView.
Abstract Objective This cohort study examined the agreement between youth‐ and parent‐reported health‐related quality of life (HRQOL) of children treated with epilepsy surgery compared to medical therapy. A second aim was to evaluate whether changes in HRQOL over 2 years differed between the two groups, and to determine whether these trajectories ...
Mary Lou Smith   +2 more
wiley   +1 more source

Beyond seizures: A multidimensional approach to non‐seizure issues in Lennox–Gastaut syndrome. Insights from Italian experts

open access: yesEpilepsia Open, EarlyView.
Abstract Non‐seizure issues (NSIs), including cognition, behavior/psychiatric symptoms, adaptive and social functioning, sleep, autonomic, and motor impairments, often shape day‐to‐day outcomes in Lennox–Gastaut syndrome (LGS) more than seizures, yet clinicians lack LGS‐specific, feasible assessment pathways.
Giancarlo Di Gennaro   +7 more
wiley   +1 more source

Quality of life for pediatric patients with short bowel syndrome‐associated intestinal failure treated with teduglutide

open access: yesJournal of Pediatric Gastroenterology and Nutrition, EarlyView.
Abstract Objectives The complex care needs of pediatric patients with short bowel syndrome‐associated intestinal failure (SBS‐IF) can negatively impact the health‐related quality of life (HRQoL) of patients and their caregivers. We assessed the impact of teduglutide on HRQoL of pediatric patients with SBS‐IF.
Danielle Wendel   +9 more
wiley   +1 more source

Adaptation and validation of the PEDSQL™ Oral Health Scale for toddlers in chilean population

open access: yes, 2020
Background: The Pediatric Quality of Life Inventory™ (PedsQL™) Oral Health Scale was developed to measure oral health-related quality of life (OHRQoL). The aim of this study was to cross-culturally adapt the parent-reported version for toddlers of PedsQL™
Atala-Acevedo, Claudia   +6 more
core   +1 more source

The PedsQL™ Oral Health Scale: feasibility, reliability and validity of the Brazilian Portuguese version [PDF]

open access: yes, 2012
Background Oral and orofacial problems may cause a profound impact on children’s oral health-related quality of life (OHRQoL) because of symptoms associated with these conditions that may influence the physical, psychological and social aspects of their ...
Vale, Miriam P   +14 more
core   +1 more source

European Society for Paediatric Gastroenterology, Hepatology and Nutrition/North American Society for Pediatric Gastroenterology, Hepatology and Nutrition guidelines for treatment of functional constipation in children aged 0–18 years

open access: yesJournal of Pediatric Gastroenterology and Nutrition, EarlyView.
Abstract Objectives Functional constipation (FC) is common in childhood, significantly impacting quality of life. Since the 2014 international guideline, new evidence has been published, and methods on making guidelines have developed. This treatment guideline for FC in children aged 0–18 years is a collaborative effort of the European and North ...
Morris Gordon   +17 more
wiley   +1 more source

Scale descriptives for PedsQL TM Healthcare Satisfaction Generic Module.

open access: yes, 2023
Scale descriptives for PedsQL TM Healthcare Satisfaction Generic Module.
Federica Pederiva (14559639)   +3 more
core   +1 more source

The Brain‐Age Gap in Pediatric Dystonia: Neuroanatomical Deviations Inform Deep Brain Stimulation Outcomes

open access: yesMovement Disorders, EarlyView.
Abstract Background Dystonia in children is a heterogeneous condition with variable response to deep brain stimulation (DBS). Brain‐age gap, a machine learning‐derived metric of structural deviation from norm, may capture signatures that differentiate underlying biotypes and predict outcomes.
Timur H. Latypov   +11 more
wiley   +1 more source

Health related quality of life of Dutch children: psychometric properties of the PedsQL in the Netherlands [PDF]

open access: yes, 2009
Background Knowledge about psychometric properties of the Pediatric Quality of Life Inventory (PedsQL) in the Netherlands is limited and Dutch reference data are lacking.
Koopman, H.M.   +19 more
core   +1 more source

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